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My Dx

Kelleigh

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Kelleigh Newbie
Kelleigh
Posted

Hi -

I got my dx today from Entero - do you agree with my assessment? Celiacs with an intolerance with soy and dairy....

Any thoughts would be helpful -I can't see my doc until next week...

Thanks!!

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 29 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 17 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 294 Units (Normal Range <300 Units)

Fecal anti-casein (cow

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gfpaperdoll Rookie
gfpaperdoll
Posted

Hi welcome to the board, looks like you have double DQ1 genes, same as me & my family. There is a double DQ1 thread on the "Coping With" forum, you might want to also post your symptoms, questions etc there. Us double DQ1's like to get to know each other. Do you have any other auto immune illnesses? Is your family from Ireland & England orginally? Anyone in your hfamily ever been diagnosed with hemochromatosis?

With those genes you are considered gluten intolerant, you can google that & come up with a lot of information. this forum does recognize gluten intolerance to a degree, but really it is all the same you still have to avoid gluten and for you dairy also. It is my opinion and some of the other gluten intolerant people that gluten intolerance is nothing more than the beginning stages of celiac, of course you can have double DQ1 & still be dxd by biopsy. 1% of biopsy dxd celiacs do not have DQ2 or DQ8. most of us just say celiac because it is shorter, although that bugs some people ;)

Do you have neurological symptoms also? It is very prevalent with DQ1 genes. Do you have other food sensitivities, "allergies" a lot of us DQ1's also fall into those categories.

Do you know what blood type you are? You can also google double DQ1...

gfpaperdoll Rookie
gfpaperdoll
Posted

Here is a link to the Gluten Intolerance Group Open Original Shared Link

Kelleigh Newbie
Kelleigh
Posted
  • Author

Hi -

Wow. Answers for you: yes - I have Hashimotos Thyroiditis. My fam is Irish and English decent. I don't even know what hemochromatosis is, so I'll have to google that one. ;-) I suffer from migraines as do my Mom, Dad and brother. A Pos on the blood type. I don't have other allgergies that I know of, but this all seems to be a work in progress....

Thanks for the info and reply!

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
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