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Anyone Have These Symptoms

Joni63

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Joni63 Collaborator
Joni63
Posted

I visited my celiac sister yesterday and she had Redbridge beer. I can't tell you the last time I drank beer because I would always get a burning in my belly, stuffed up nose, and feel really bad the next day, and that is with only 1 or 2 beers. I tried one and could not believe I could still breathe clearly. I had to have another because I could not believe I felt ok when drinking it. Has anyone else had a similar reaction to regular beer. I never had a headache or felt bad in any way. Is that because I am celiac?

I also realized that whenever I wear mascara and forget to take it off before bed that I would get a stuffed up nose and itchy eyes. Does mascara have gluten in it and can it cause this type of reaction?

Just a FYI. My bloodtests were positive and I haven't had the endoscope done yet so I am still eating gluten containing food.

Anyone ever had similar experiences?

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Lisa Mentor
Lisa
Posted
I visited my celiac sister yesterday and she had Redbridge beer. I can't tell you the last time I drank beer because I would always get a burning in my belly, stuffed up nose, and feel really bad the next day, and that is with only 1 or 2 beers. I tried one and could not believe I could still breathe clearly. I had to have another because I could not believe I felt ok when drinking it. Has anyone else had a similar reaction to regular beer. I never had a headache or felt bad in any way. Is that because I am celiac?

I also realized that whenever I wear mascara and forget to take it off before bed that I would get a stuffed up nose and itchy eyes. Does mascara have gluten in it and can it cause this type of reaction?

Just a FYI. My bloodtests were positive and I haven't had the endoscope done yet so I am still eating gluten containing food.

Anyone ever had similar experiences?

Bellyfat,

If you had a positive blood test for celiac ( by a true Celiac Panel), you then have Celiac. No doubt about it, other than yours. You are diagnosed. If you want to continue eating gluten to check on the amount of damage, then yes, continue eating gluten. If you are comfortable with your diagnosis, then you can begin the diet immediately and begin your road to recovery.

May I recommed that you read some of these posts on this site. They can be very informative.

Joni63 Collaborator
Joni63
Posted
  • Author

I did have the celiac panel and know I am celiac. I had an ovarian cyst rupture in March and have had pains every time I eat food since then. The ovarian cysts are coming and going and are benign so we are going to do another ultrasound in about 6 months. But I think it set off the celiac disease in full force even though I do see now that I had some stomach aches and constipation for a year or so now. I'm really lucky they found it so quickly since my sister was already diagnosed. She has had it for about 10 years now and became really ill before they figured out what was wrong with her.

Thankfully when all this was going on my Dr. asked about family history and very willingly tested me for celiac since my sister has it and my grandmother died of intestinal or bowel cancer. The GI Dr. wanted to do a colonoscopy and endoscopy at the same time because of past family history. I'm only going through the tests to get completely checked out. I really don't want to, but think I will feel better if I have everything checked over in case there are other problems.

Next I think I'll have to get my children checked. I hate that thought because they are only 7 and 9. I'm sure it's better to know early in life to avoid all kinds of problems for them. I just hope they would only have to go through the blood test and not the endoscope. I've read some of the threads about the Doctor not diagnosing them if they don't get the scope. I dread all this for them.

I'm very anxious to go on the diet now to see if I really can NOT have a belly ache. I think it's become so normal that I didn't realize how long it might have been going on!

Thanks Momma Goose, I do understand that the blood test is accurate when positive. I think in the future they will not require the endoscopy for a positive Dx on celiac. Won't that be wonderful!

Lisa Mentor
Lisa
Posted
I did have the celiac panel and know I am celiac. I had an ovarian cyst rupture in March and have had pains every time I eat food since then. The ovarian cysts are coming and going and are benign so we are going to do another ultrasound in about 6 months. But I think it set off the celiac disease in full force even though I do see now that I had some stomach aches and constipation for a year or so now. I'm really lucky they found it so quickly since my sister was already diagnosed. She has had it for about 10 years now and became really ill before they figured out what was wrong with her.

Thankfully when all this was going on my Dr. asked about family history and very willingly tested me for celiac since my sister has it and my grandmother died of intestinal or bowel cancer. The GI Dr. wanted to do a colonoscopy and endoscopy at the same time because of past family history. I'm only going through the tests to get completely checked out. I really don't want to, but think I will feel better if I have everything checked over in case there are other problems.

Next I think I'll have to get my children checked. I hate that thought because they are only 7 and 9. I'm sure it's better to know early in life to avoid all kinds of problems for them. I just hope they would only have to go through the blood test and not the endoscope. I've read some of the threads about the Doctor not diagnosing them if they don't get the scope. I dread all this for them.

I'm very anxious to go on the diet now to see if I really can NOT have a belly ache. I think it's become so normal that I didn't realize how long it might have been going on!

Thanks Momma Goose, I do understand that the blood test is accurate when positive. I think in the future they will not require the endoscopy for a positive Dx on celiac. Won't that be wonderful!

I am sorry if my post was a bit blunt. I had a really bad week full of emotions. I am usually quite a bit more welcoming than realized in my post.

But, I would continue to suggest that you read as much here as you can, so when you are ready for the diet you will be armed and ready. This is the best source of information that I that I know of.

Joni63 Collaborator
Joni63
Posted
  • Author

No need for apology! I didn't think that at all!

Thank you for your suggestion about reading all I can. There is a lot to it and it can be a lot to handle. I think this is a great place and full of helpful people. :)

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