Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Worse All Of A Sudden!


trishydee

Recommended Posts

trishydee Rookie

Hi Everyone,

I don't know what's going on with me, I'm hoping you can help!

I've been strictly gluten-free for over 6 years. (I was dx'ed by both labs & biopsy) For the past few months, I've had MAJOR episodes of D, with horrible abdominal pain, bloody stools (sometimes it looks like pure blood), sweats, etc. The episodes last at least 24 hours and they usually happen a few times a week to once a week. :o Immodium helps a little.

I haven't felt this bad in years. What could be going on? I had a colonoscopy in Oct 06 and it was fine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

I would go back for medical tests, complete blood work up, first thing to rule out cancer or anything else...RIGHT AWAY

Then I would look at what you are eating. Have you added in anything new, or you eating replacement grains? oats? Then I would go grain free & also dairy free.

I would immediately go to your "safe" foods, & soft foods, cut out all nightshade foods, & eat a limited diet of things like (for me) cooked carrots, rice, chicken soup with cabbage, tuna or whatever protein suits you best ( not beef) etc etc oh, Baked sweet potatoes are good...

mftnchn Explorer

That really sounds awful. Have you had any testing done for something else that might be going on?

I am assuming that you have eliminated any problem foods, like "oldies" that you buy without checking labels that have switched ingredients?

Perhaps checking to see if you have developed an allergy? What I understand is that soy can also flatten the villi if you are intolerant. So an elimination process perhaps? My allergist said to first of all check the grains because they are notorious to cross react. (include checking cane sugar, which is a "grass" like the other grains). Then check legumes, and third check night-shades. Other big allergens are eggs and milk. The milk casein protein is apparently very similar to gluten.

Check by totally and strictly eliminating for at least 5 days and then not more than 10 days, then challenge the food.

Keep us posted on how you are doing, please!

Teacher1958 Apprentice
Hi Everyone,

I don't know what's going on with me, I'm hoping you can help!

I've been strictly gluten-free for over 6 years. (I was dx'ed by both labs & biopsy) For the past few months, I've had MAJOR episodes of D, with horrible abdominal pain, bloody stools (sometimes it looks like pure blood), sweats, etc. The episodes last at least 24 hours and they usually happen a few times a week to once a week. :o Immodium helps a little.

I haven't felt this bad in years. What could be going on? I had a colonoscopy in Oct 06 and it was fine.

First, as another message recommended, make an appointment immediately to have this checked, then check and re-check the labels on absolutely everything you're eating, even those foods you have always assumed were gluten free. You could even put the list on here in case someone has some ideas as to what the problem might be. There has to be an explanation.

Take care. I hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,217
    • Most Online (within 30 mins)
      7,748

    Biasotti, Pat
    Newest Member
    Biasotti, Pat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
×
×
  • Create New...