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Do You Go Through Detox When You Start gluten-free Eating?

Janniec6

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Janniec6 Rookie
Janniec6
Posted

My son has only been eating gluten-free for a couple of days~he has been complaining of headaches. Do you go through a kind of detox when you start the gluten-free diet? I've put the entire family on gluten-free, I thought it would be healthy for all of us.

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stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

When I started the glutenfree diet 3 years ago, my body hurt like it's detoxing from something. I never took any (hard) drugs in my life. I just had to take pain killers everyday for like 7 years to help against my celiac migraine and I guess, that's what it was. Not sure though...

EBsMom Apprentice
EBsMom
Posted
My son has only been eating gluten-free for a couple of days~he has been complaining of headaches. Do you go through a kind of detox when you start the gluten-free diet? I've put the entire family on gluten-free, I thought it would be healthy for all of us.

Both of my kids had a detox period when they went gluten-free. My dd (9) had headaches, periods of nausea (which were not one of her celiac disease symptoms), low energy, brain fog and weepiness. My ds (12) complained of a low grade headache for a few days, and had zero energy for about a week and a half. I think it's a normal response to giving up the gluten. I went gluten-free when my dd did. My ds followed a month later. We're still waiting for my dh to jump on board, lol! Hope your son feels better soon!

Rho

Electra375 Newbie
Electra375
Posted

I think some do go through detox, it depends on your level of gluten eating before combined with level of sugar, I found a lot of the gluten products I ate were far higher in sugar than they should ever have been. I get headaches from sugar withdrawl more than gluten withdrawl. I crave chocolate like crazy the first few weeks into gluten-free (I've gone on and off and on again for a gluten challenge).

When one of my children was dx, he slept the first month gluten free. I was worried he was going into a diabetic coma or something from lack of eating. I now think it was his body healing and catching up on deep restful sleep he had missed from the pain he lived in.

Now he gets headaches and leg aches if he eats gluten in addition to gastro symptoms.

Moustique77 Newbie
Moustique77
Posted

Me and my mother-in-law went gluten free at the same time. (My wife is a celiac and kept encouraging us to get tested because of our symptom. Sure enough wife is always right and we are all celiacs.) Definitely felt like withdrawl symptoms. Just felt lethargic and irritable for a while. And constantly hungry. Finally after three months Im feeling more energy and calm.

Mother-in-law asked her doctor why she would feel bad from being gluten-free, shouldnt she feel better? Doctor replied that wheat has neurotransmitters that often provide a euphoric, filled feeling. It has been documented that when you stop eating it you may notice a withdrawl. Depends on how much you used to eat and your body's reliance on it. I thought that was really interesting. It explains the cravings I think.

NewGFMom Contributor
NewGFMom
Posted

And that can take months of these symptoms? YIKES :o

My son's been so grouchy since we pulled the gluten. He doesn't miss it. His meals are mostly the same. It took a while to find some cereal that he really likes. But MAN he's been impossible. I know some of it is normal 3 1/2 year old stuff. But it's been notably worse since we stopped the gluten mid June. He's hungry and GRUMPY a lot of the time. :angry:

I keep hoping the veil will lift and we'll be on the other side of this with the good health. But it's encouraging to hear that it took some people a few months.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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