Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Celiac Get Worst?


7-cody

Recommended Posts

7-cody Apprentice

Does Celiac get worse? For example, I'm 19 now but if I waited until I was 30 would my symptoms get much worse?

Logic tells me that the answer is yes, but I'm wondering if anyone would know from experience.

Edit: OMG, brain fog... I meant worse, not worst


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

I'm 24 and was diagnosed in april. My Gma has celiac and her symptoms have stayed the same through the years(ie she just got tested when I found out and doesn't want to do the diet...she figures she dealt with it this long and will continue the way she is...don't blame her).

The risks get higher the longer you go undiagnosed.....ie lymphomas,more damage to the intestines ect!!

Lisa Mentor
Does Celiac get worse? For example, I'm 19 now but if I waited until I was 30 would my symptoms get much worse?

Logic tells me that the answer is yes, but I'm wondering if anyone would know from experience.

Edit: OMG, brain fog... I meant worse, not worst

Yes, and consider yourself one of the lucky ones. I was diagnosed at 50. Which leave those of us diagnosed at a later age to potentially be at risk for much more unfortunate issues such as diabetes, fibromyalgia, MS, intestinal lymphoma, peripheral neuropathy and other paths that gluten can get a hold of and reek havoc.

Celiac is celiac, but it's friends are not welcome house guests. :( Please be true to you diet.

7-cody Apprentice
Yes, and consider yourself one of the lucky ones. I was diagnosed at 50. Which leave those of us diagnosed at a later age to potentially be at risk for much more unfortunate issues such as diabetes, fibromyalgia, MS, intestinal lymphoma, peripheral neuropathy and other paths that gluten can get a hold of and reek havoc.

Celiac is celiac, but it's friends are not welcome house guests. :( Please be true to you diet.

Yeah that's pretty much what I figured... :D

GeoffCJ Enthusiast

I was diagnosed at 31, but have had symptoms since I was in college. Maybe 19 years old or so. Didn't get diagnosed. Symptoms got worse, and I got more of them. around 6-7 years ago, I started having issues with Periphial (sp?) Neuropathy. I get painful tingling and numbness in my hands and feet.

Since going gluten-free, most of my symptoms have gotten better, but I am still having issues with the Neuropathy. It coems and goes, but is frequently still pretty severe. Some times I think it's getting better, sometimes I'm not sure. At this point, I'm hoping it isn't completely permanent.

I'd say it's like driving a car with low oil. The earlier you figure it out, the better, but it probably has more to do with the time between onset and diagnosis, perhaps not as much as the age at which you get it.

It does seem likely to my non-doctor mind that having undiagnosed celiacs during times of large body changes (growth, puberty, pregnancy, etc) might have larger implications than perhaps during times where there is less change (like as an adult).

Geoff

Betty in Texas Newbie

I think the older you are before being dignosed the more damaged you would have and more chances of having intiestional canser. I was 53 and always had it the dr said. I can rember going on road trips with partents when I was small and always said I waould get car sick and throu up well that is because we would stop on the way and eat the hamburgers. So it wasn't car sick it was sick with celiac.

Queen Serenity Newbie

I agree with everyone. The later the diagnosis, the worse off you could be. I was diagnosed at the age of 28. Six years later, I was diagnosed with hypothyroidism. So, the younger, the better. You are really lucky, and I hope that you stay healthy! :)

Vicki

G.F. since Sept. 1995


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    2. - pothosqueen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Celiac for dummies

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,010
    • Most Online (within 30 mins)
      7,748

    tldormer
    Newest Member
    tldormer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
    • pothosqueen
      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
    • trents
      Would it be rude to ask your age?
    • pothosqueen
      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.