Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bioposy Wednesday!


emsmom

Recommended Posts

emsmom Apprentice

Hi I just needed to vent somwhere! and I find you very helpful. I just don't know how I am going to get my DD through these next few days. The dr's have her on a liquid only diet for 2 days before the test which is wednesday. ONly drinks and jello she is hyperglycemic so i am waiting for her to crash any second. I let her go to school this morning but picked her up for lunch I did not think it was fair to have her sit there while everyone ate. I am so nervous about the testing they are doing the endoscope and a coloscopy (there was blood in her stool). Her 1st blood tests came back positive but the GI dr did a different blood test that came back negative. they have done upper gi's, allergy testing, ulrasounds and numourous other testing I just can not wait for them to figure out what is wrong. Shes foggy headed alot, her belly swells pretty big after she eats. shes always tired, gets confused easily, has constant stomach pain sometimes severe I will find her laying on the bathroom floor some nights crying it hurts so bad She has also now had 2 episopes where she has been bede ridden for a day with severe belly pain and headaches her list of symptoms go on. celiac disease seems to be the answer I just hope they figure it out soon. HOw did you other parents get through these test I am a nervous wreck THey will be putting her to sleep I think thats making me very nervous. Sorry for ranting I am just on edge THanks for listening.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lily Rookie

I know how difficult it must be to watch your child go through this. I had the biopsy last month and I slept peacefully and didn't even know they had done the procedure. You'll be in my prayers. If she has Celiac, at least you'll finally know what it is and head in the direction of wellness :)

Lily

DLayman Apprentice

I'm silly but I chose to think of it this way.. I was going to joke with the anaestesiologist that he should come by the house every day around 1:30 so I can get my ornery toddler to take a nap every day!

It'll be fine!

  • 3 weeks later...
wclemens Newbie

I'll be hoping that all goes well, and that you receive a speedy reply. If the diagnosis is Celiac, you have a route to good health that will help you forget all this pain and suffering that has occurred. Godspeed! Welda

wdavie Newbie

Why the fluid only diet? I would have thought this could sway the results. Grace was NBM (Nil Orally) for 8 hours before surgery but was encouraged to be on a diet containing Gluten up until her biopsy.

I hope they find an answer for you as having a sick child is very debilitating for your spirit as a parent.

Good Luck.

Wendy

seeking-wholeness Explorer

Wendy, I believe the fluid diet is used to clear out the digestive tract as much as possible so the endoscope has freedom of movement.

wdavie Newbie

Ah probably another difference in protocols in different countries. I used to nurse in Theatres and we did endoscopes regularly. In Australia and NZ rarely we put people on Fluid only etc, Usually just the usual Nil By Mouth for 8-12 hours.

Thanks for your reply, I was just curious cause sometimes the preparations for the tests are quiet difficult and traumatic for kids and it would be nice if the preps were as simple as possible.

Cheers

Wendy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today

    2. - Russ H replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Guinness, can you drink it?

    3. - Scott Adams replied to Borky's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips

    4. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,270
    • Most Online (within 30 mins)
      7,748

    Hope2024
    Newest Member
    Hope2024
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Back home after the scope.  Dr said as soon as he got in there it was clear signs of celiacs.  Must be a decent amount of damage.  I don’t remember the post procedure conversation as the anesthesia was still wearing off but that’s what my wife says anyway.  Still the biopsy results to come back but pretty definitive and now I get to learn to live gluten free
    • Russ H
      There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain more gluten than the generally accepted as safe daily limit of 10 mg. I have seen gluten-free beers testing at between "undetectable" and 5-10 ppm. I have also seen a report of a positive home test on Daura Damm, which is sold as gluten-free beer - the manufacturer did not respond to the tester's query.
    • Scott Adams
      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
    • Scott Adams
      First of all, I want to wish you the very best of luck with your procedure today. It's completely understandable to feel a mix of apprehension and hope. Your proactiveness in researching and advocating for that endoscopy was incredibly smart; securing that formal diagnosis is crucial for both insurance and long-term health management. While it's natural to worry that those five gluten-free days could affect the results, your logic is spot-on—it's highly unlikely your intestines healed completely in that short time, and the fact that your joint pain and stomach issues have flared back up aggressively after reintroducing gluten is a very strong, and unfortunate, sign that the inflammation is indeed present and active. It's also very common for people to look back and connect dots, like your lifelong migraines, once a potential celiac diagnosis is on the table, as it's a systemic condition with many non-gastrointestinal symptoms. I truly hope this scope provides the clear answers you need to finally start on the right path to managing your health and finding lasting relief from the fatigue and pain. Safe travels for your drive, and here's hoping for a definitive answer and a brighter, healthier chapter ahead.
    • Scott Adams
      This article might be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.