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Newbie Here

happyfeet

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happyfeet Newbie
happyfeet
Posted

Hi I'm new to this site. My 5 year old son, Ryan, is in the process of being diagnosed with Celiac. He had a blood test 3 months ago, and we found out today when we saw the GI doctor that it was inconclusive. That 2 of the tests were not valid b/c he has some protien in his blood that is on the low side and can effect the test. However, the 3rd one showed high levels and needed to be looked into. He did another blood test today and if the numbers are still high, he is going to do an Endoscopy and find out for sure if he has it or not.

So, when I was googling info about this disease I found this website. I decided to join to find out some info, so if he does end up having it, I can be prepared. Hope to meet other moms who have kids with it. :)

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darkangel Rookie
darkangel
Posted

Welcome! This is a great supportive and educational forum. Check out the parents' subforum, if you haven't already.

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    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
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      Positive biopsy

      By pothosqueen · Posted

      26F!
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      Celiac for dummies

      By pothosqueen · Posted

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      Positive biopsy

      By trents · Posted

      Would it be rude to ask your age?
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      Positive biopsy

      By pothosqueen · Posted

      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
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