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Return Dh After 4 Months Gluten Free

geeze

By geeze
in Coping with Celiac Disease

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geeze Rookie
geeze
Posted

For many years I had an itchy lesion on my buttock in the same place which would disappear after about a week. It recurred 1-3 times a year for many years. In about March of this year I developed a rash on a knee and elbow and after much study through the internet, I learned the connection between the rashes and all of the abdominal symptoms I had for many years. in April I was diagnosed by blood test and history with celiac disease and have been gluten free since that time. The abdominal symptons and rashes disappeared. Several of my blood levels are low and I am working on that. I have felt really good about the progress - well worth what I have given up.

Today I have the return of the itchy area on my right buttock, same spot as before. I also have had some bowel rumbling for the past day or so. I am very careful with what I eat, do not eat out and read everything on a product label. Nothing new has been added to my diet. I am somewhat concerned that maybe I am not doing as well as I thought.

Has anyone out there had this situation where you feel like you are doing incredlbly well and then have a set back for no apparent reason Thanks for any info.

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Guest j_mommy
Guest j_mommy
Posted

Yes, I have had situations like your's. I have been gluten-free since may. I'll be going along...eating foods I make, I don't eat out and BAM I get the buttock lesion and the big D.

Currently going through that now.....am in the process of rechecking EVERYTHING in my kitchen!!!! The only thing I can think of it's cross contamination of a product...ie processed in teh same faciltiy as wheat/gluten products!!!

Good Luck!

gfpaperdoll Rookie
gfpaperdoll
Posted

cross contamination in gluten free grains is a possibility. Are you eating any processed crackers or any of the gluten free grains for baking?

geeze Rookie
geeze
Posted
  • Author
cross contamination in gluten free grains is a possibility. Are you eating any processed crackers or any of the gluten free grains for baking?
geeze Rookie
geeze
Posted
  • Author
Yes, I have had situations like your's. I have been gluten-free since may. I'll be going along...eating foods I make, I don't eat out and BAM I get the buttock lesion and the big D.

Currently going through that now.....am in the process of rechecking EVERYTHING in my kitchen!!!! The only thing I can think of it's cross contamination of a product...ie processed in teh same faciltiy as wheat/gluten products!!!

Good Luck!

Thanks. I feel better just knowing I am not alone in this. Do you think a biopsy of the lesion is necessary. I have been diagnosed by blood test and would prefer not but my husband seems to think I need to get a second opinion. I am fine with all of this - he is in denial. Hope I am doing this right, I have tried to reply before and it has never worked.

geeze Rookie
geeze
Posted
  • Author
cross contamination in gluten free grains is a possibility. Are you eating any processed crackers or any of the gluten free grains for baking?

I have not had any grains of any kind and only baked the gluten-free bread once maybe two months ago. I guess this is just going to take tincture of time and continued watching carefully. Thanks

Ursa Major Collaborator
Ursa Major
Posted

First of all, you may get outbreaks of DH for up to two years after going gluten-free, even if you don't get any gluten at all. The reason is, that it takes that long for the gliadin deposits under the skin to disappear.

The bowel problems could be caused by dairy, or possibly soy. It may not be gluten at all. You might have to try figuring out if you have other intolerances besides gluten.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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