Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Glutened?


Motorboater

Recommended Posts

Motorboater Explorer

Yesterday my husband & I went to Costco and he wanted a hotdog so we both had one, I ordered mine with no bun. Within 4 hours my stomach hurt so bad I thought about going to the ER. This hasn't happened to me as I've just been diagnosed in July '07. I also had diareaha and a headache and couldn't sleep well. I crawled into a ball at 8:00 PM trying to make the pain stop.........is this being "glutened"??? Anyone with suggestions I'm listening as I never want to feel so miserable again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I want to say I read somewhere here that Nathan's hotdogs are not gluten free, but I could be wrong. It could be anything from CC to the actual brand of hotdog. Do you happen to know what brand you had gotten there?

Guest j_mommy

Yup I agree...not all brands of hotddogs are gluten-free!!! You could have been glutened or they could have just touched a bun with their hand and picked up your hotdog right after!!!!

Motorboater Explorer
I want to say I read somewhere here that Nathan's hotdogs are not gluten free, but I could be wrong. It could be anything from CC to the actual brand of hotdog. Do you happen to know what brand you had gotten there?

I called Costco this morning and they said Siani, which according to a site I found they are gluten-free, but how does a Celiac know if they've been glutened or possibly just the stomach flu..........? Very frustrating today.

blueeyedmanda Community Regular

Thats the thing, sometimes there is no way to tell. Quite possibly you could have the stomach flu...where we are it's going around.

The Lovebug Rookie
Yesterday my husband & I went to Costco and he wanted a hotdog so we both had one, I ordered mine with no bun. Within 4 hours my stomach hurt so bad I thought about going to the ER. ...is this being "glutened"??? Anyone with suggestions I'm listening as I never want to feel so miserable again.

M

Dear Motorboater,

It sure does sound like what I go through periodically, and I've been as gluten-free as I can get for 4 years! Yesterday, within 5 minutes of finishing breakfast, I began cramping and bloating and, eventually vomiting. I spent the rest of the day, in a weakened state, trying to sit or lie still so the symptoms wouldn't return. Today, I'm trying to trace what it was that caused my reaction. Mine was not the flu -- I now know the symptoms of being glutened and can usually trace it to something I've eaten without checking ingredients. It's just so hard to be on-guard ALL THE TIME!

Did you eat any condiments with the hot dog? Mustard, catsup, relish, kraut, etc.? Maybe that was the source of your glutening. I recently had a "duh" moment when I realized that the mints which I pop into my mouth all the time (Mentos), because they were soothing to my tummy, were actually glutening me! It never occurred to me to check the ingredients because they aren't "food." But I can now attribute several bouts of hanging over the toilet bowl directly to my consumption of Mentos.

Welcome to being a member of the celiac community. This board is a wonderful source of information and support.

blueeyedmanda Community Regular
M

Dear Motorboater,

It sure does sound like what I go through periodically, and I've been as gluten-free as I can get for 4 years! Yesterday, within 5 minutes of finishing breakfast, I began cramping and bloating and, eventually vomiting. I spent the rest of the day, in a weakened state, trying to sit or lie still so the symptoms wouldn't return. Today, I'm trying to trace what it was that caused my reaction. Mine was not the flu -- I now know the symptoms of being glutened and can usually trace it to something I've eaten without checking ingredients. It's just so hard to be on-guard ALL THE TIME!

Did you eat any condiments with the hot dog? Mustard, catsup, relish, kraut, etc.? Maybe that was the source of your glutening. I recently had a "duh" moment when I realized that the mints which I pop into my mouth all the time (Mentos), because they were soothing to my tummy, were actually glutening me! It never occurred to me to check the ingredients because they aren't "food." But I can now attribute several bouts of hanging over the toilet bowl directly to my consumption of Mentos.

Welcome to being a member of the celiac community. This board is a wonderful source of information and support.

Thanks for the heads up on the Mento's although I do not use them often I will keep this in the back of my mind.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kali-mist Apprentice

I too have a problem with knowing whether or not I have been glutened. I have knowingly eaten gluten containing food just to see what would happen and nothing did. Maybe at the most I feel tired or rundown for a couple of days but that could be due to any number of things and it's not severe where I'd actually notice it. This scares me because on my quest to become completely gluten-free I could be eating things that are doing damage to me on the inside but there is no outward sign. I try my best by sticking with the basics (rice, potatoes, salad, meat) but it's so tempting to eat a big fat juicy burger or a piece of cake, especially when I know I will not get sick on the outside. I just have to keep telling myself that it's doing long term damage on the inside.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.