Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Glutened?


Motorboater

Recommended Posts

Motorboater Explorer

Yesterday my husband & I went to Costco and he wanted a hotdog so we both had one, I ordered mine with no bun. Within 4 hours my stomach hurt so bad I thought about going to the ER. This hasn't happened to me as I've just been diagnosed in July '07. I also had diareaha and a headache and couldn't sleep well. I crawled into a ball at 8:00 PM trying to make the pain stop.........is this being "glutened"??? Anyone with suggestions I'm listening as I never want to feel so miserable again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I want to say I read somewhere here that Nathan's hotdogs are not gluten free, but I could be wrong. It could be anything from CC to the actual brand of hotdog. Do you happen to know what brand you had gotten there?

Guest j_mommy

Yup I agree...not all brands of hotddogs are gluten-free!!! You could have been glutened or they could have just touched a bun with their hand and picked up your hotdog right after!!!!

Motorboater Explorer
I want to say I read somewhere here that Nathan's hotdogs are not gluten free, but I could be wrong. It could be anything from CC to the actual brand of hotdog. Do you happen to know what brand you had gotten there?

I called Costco this morning and they said Siani, which according to a site I found they are gluten-free, but how does a Celiac know if they've been glutened or possibly just the stomach flu..........? Very frustrating today.

blueeyedmanda Community Regular

Thats the thing, sometimes there is no way to tell. Quite possibly you could have the stomach flu...where we are it's going around.

The Lovebug Rookie
Yesterday my husband & I went to Costco and he wanted a hotdog so we both had one, I ordered mine with no bun. Within 4 hours my stomach hurt so bad I thought about going to the ER. ...is this being "glutened"??? Anyone with suggestions I'm listening as I never want to feel so miserable again.

M

Dear Motorboater,

It sure does sound like what I go through periodically, and I've been as gluten-free as I can get for 4 years! Yesterday, within 5 minutes of finishing breakfast, I began cramping and bloating and, eventually vomiting. I spent the rest of the day, in a weakened state, trying to sit or lie still so the symptoms wouldn't return. Today, I'm trying to trace what it was that caused my reaction. Mine was not the flu -- I now know the symptoms of being glutened and can usually trace it to something I've eaten without checking ingredients. It's just so hard to be on-guard ALL THE TIME!

Did you eat any condiments with the hot dog? Mustard, catsup, relish, kraut, etc.? Maybe that was the source of your glutening. I recently had a "duh" moment when I realized that the mints which I pop into my mouth all the time (Mentos), because they were soothing to my tummy, were actually glutening me! It never occurred to me to check the ingredients because they aren't "food." But I can now attribute several bouts of hanging over the toilet bowl directly to my consumption of Mentos.

Welcome to being a member of the celiac community. This board is a wonderful source of information and support.

blueeyedmanda Community Regular
M

Dear Motorboater,

It sure does sound like what I go through periodically, and I've been as gluten-free as I can get for 4 years! Yesterday, within 5 minutes of finishing breakfast, I began cramping and bloating and, eventually vomiting. I spent the rest of the day, in a weakened state, trying to sit or lie still so the symptoms wouldn't return. Today, I'm trying to trace what it was that caused my reaction. Mine was not the flu -- I now know the symptoms of being glutened and can usually trace it to something I've eaten without checking ingredients. It's just so hard to be on-guard ALL THE TIME!

Did you eat any condiments with the hot dog? Mustard, catsup, relish, kraut, etc.? Maybe that was the source of your glutening. I recently had a "duh" moment when I realized that the mints which I pop into my mouth all the time (Mentos), because they were soothing to my tummy, were actually glutening me! It never occurred to me to check the ingredients because they aren't "food." But I can now attribute several bouts of hanging over the toilet bowl directly to my consumption of Mentos.

Welcome to being a member of the celiac community. This board is a wonderful source of information and support.

Thanks for the heads up on the Mento's although I do not use them often I will keep this in the back of my mind.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kali-mist Apprentice

I too have a problem with knowing whether or not I have been glutened. I have knowingly eaten gluten containing food just to see what would happen and nothing did. Maybe at the most I feel tired or rundown for a couple of days but that could be due to any number of things and it's not severe where I'd actually notice it. This scares me because on my quest to become completely gluten-free I could be eating things that are doing damage to me on the inside but there is no outward sign. I try my best by sticking with the basics (rice, potatoes, salad, meat) but it's so tempting to eat a big fat juicy burger or a piece of cake, especially when I know I will not get sick on the outside. I just have to keep telling myself that it's doing long term damage on the inside.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,198
    • Most Online (within 30 mins)
      7,748

    Mya H
    Newest Member
    Mya H
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.