Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tallahassee/north Florida

might

By might
in Introduce Yourself / Share Stuff

Recommended Posts

taylor- Rookie
taylor-
Posted

Hey! so its been almost 2 months..only one more home football game left and i ran into somebody that has celiac today..again..so i thought we should start talking about this again.

we should try and get something going!

(hope you all did super on your midterms! haha)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MedicMan Newbie
MedicMan
Posted

Has anyone started a celiac disease support / discussion group here in Tallahassee. I'm a resident of Tallahassee and am scheduled to start grad school in January at FSU. I was dignosed with celiac disease just recently and would love to talk with others here in town. It has been a tough year and having some friends to share with and learn from would be outstanding. I'm willing to host a meeting at my home, in is in the Chaires area on the east side of town. I've got lots of room for parking, sitting, and talking. We are also a gluten free household.

Please advise,

Thanks,

MedicMan

taylor- Rookie
taylor-
Posted
Has anyone started a celiac disease support / discussion group here in Tallahassee. I'm a resident of Tallahassee and am scheduled to start grad school in January at FSU. I was dignosed with celiac disease just recently and would love to talk with others here in town. It has been a tough year and having some friends to share with and learn from would be outstanding. I'm willing to host a meeting at my home, in is in the Chaires area on the east side of town. I've got lots of room for parking, sitting, and talking. We are also a gluten free household.

Please advise,

Thanks,

MedicMan

hey! so we were talking about it at the beginning of the year, and there are defintely people interested, but with football season and everything it was sort of hard to get a weekend. I think we should do something though!

  • 2 weeks later...
GFinNC Newbie
GFinNC
Posted
hey! so we were talking about it at the beginning of the year, and there are defintely people interested, but with football season and everything it was sort of hard to get a weekend. I think we should do something though!

I have just been accepted to a Ph.D. program at FSU, starting in January. I'm very excited, although a bit nervous because of living with Celiac.

I don't know anything about Tallahassee. I've only visited Florida twice (Orlando, both times). Is there a Whole Foods or other specialty grocery store? I frequent Outback and Carrabba's for my special "eat-out nights" with friends.

Any info about living gluten-free or Tallahassee in general is more than appreciated!!

Guess I'm trading in my Hokie gear for some 'Noles stuff! :P

  • 4 months later...
Jeff Swartz Newbie
Jeff Swartz
Posted
Has anyone started a celiac disease support / discussion group here in Tallahassee. I'm a resident of Tallahassee and am scheduled to start grad school in January at FSU. I was dignosed with celiac disease just recently and would love to talk with others here in town. It has been a tough year and having some friends to share with and learn from would be outstanding. I'm willing to host a meeting at my home, in is in the Chaires area on the east side of town. I've got lots of room for parking, sitting, and talking. We are also a gluten free household.

Please advise,

Thanks,

MedicMan

Let me know If i can do anything to help this process along. We really need a good support group. I have been a tallahassee boy for a looooong time [moving here with my family from Arizona in 1957]. Let me hear from you if you get a group together.

After I was diagnosed, my doctor tested a number of other patients. I was his first case ever.] Now he has a number of Celiac patients, also looking for a group. His name is John Ness, and might be willing to help out too.

Let me hear from you

Jeff Swartz

  • 5 weeks later...
RockHammer Rookie
RockHammer
Posted

I have spoken to Dr John Ness in Tallahassee about starting a support group in Tallahassee. He has offered the use of his waiting room on an evening or weekend. Anyone interested in joining in, give me an email here, or at jswartz.pg@gmail.com. We need a support group in this town.

Also, anyone in the Tallahassee area, Dr Ness is not a specialist. He is the Best, however.

RockHammer

taylor- Rookie
taylor-
Posted

thats awesome!! im most definitely interested, and can do anything to help out with it. i actually was just talking to my Intro. to Dietetics teacher in class last friday about whether or not she had any patients with Celiac and getting a group started. Let me know if you need any help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RockHammer Rookie
RockHammer
Posted
thats awesome!! im most definitely interested, and can do anything to help out with it. i actually was just talking to my Intro. to Dietetics teacher in class last friday about whether or not she had any patients with Celiac and getting a group started. Let me know if you need any help!

Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

SEE YOU THERE

RH

jparsick84 Rookie
jparsick84
Posted

Hey guys, Taylor found me on Facebook this morning and sent me the link to check out the board here. I'm so excited to see so many other Celiacs - I'm the only one in my family, and I don't personally know anyone else who has to deal with this, so I can't wait to meet all of you. I moved here from northern VA for grad school about 2 months after I was diagnosed, not knowing ANYONE in Tally and dealing with this strange disease (and, oh yeah, grad school too). I have DH, so luckily most of my symptoms are external and quick (I can tell within 30 minutes if I've eaten something bad), and that's how I was diagnosed so quickly (less than a year from bumps to diagnosis)

And for those who are on Facebook, I started a group called "Celiacs at FSU" if you want to join that too, help keep us all up to date and all. Two things:

1. La Fiesta on the Appalachee Parkway is safe for eating out, as long as you stick to the corn stuff

2. RICE CHEX IS NOW GLUTEN-FREE!!!

Yay!

  • 5 weeks later...
CarolAnne Apprentice
CarolAnne
Posted

Hello! My name is Carolanne...and I've lived in Florida for over 20 years. I am a Celiac, and I've been Wheat-Free for 20 years, and Gluten-Free for over 3 years. I'm trying to locate people who live Gluten Free here in Florida...and it's not been easy. Most of the links I've found have been disconnected or discontinued...and I'm having a devil of time finding people to connect to. I'd really like to find others who are interested in getting together...and I understand that I am not alone. I've read several posts from people looking for help, Doctors, restaurants, support groups, meetups and such here in Florida.

GlutenFreeInFlorida-subscribe@yahoogroups.com

I've created a Yahoo Group in the hopes of connecting with other people here in the Sunshine State...and to help others connect as well. I'd like to know if anyone is interested in something that will enable you to contact others in your own local area. I'd like to make more information available to people who are living Gluten-Free in Florida.

jparsick84 Rookie
jparsick84
Posted

Is the Tally support group meeting through the summer? I haven't heard anything from anyone and just want to make sure I'm not being left out of the loop...

Are any of the students in Tally for the summer? I'd love to meet up with you if you are! :)

taylor- Rookie
taylor-
Posted

im here!!

and i haven't really heard anything, but i would love to start doing something..

  • 4 weeks later...
taylor- Rookie
taylor-
Posted

We are having a support group meeting for Tallahassee and the surrounding area on Tuesday June 24th at 6:30pm. It will be at the office of Dr John Ness.

616 Universal Dr.

Directions: Heading North on Monroe St. Take a Left at Chick-fl-a near the DQ. His office is the second building on the right. It is a short street. You can't miss it.

If you have any questions feel free to ask! (sorry this is really short notice, hopefully we will get more established and have a set day!)

  • 2 months later...
GFinNC Newbie
GFinNC
Posted

Did anyone start a Tallahassee or FSU Facebook page? I just did a search and couldn't find anything.

taylor- Rookie
taylor-
Posted
Did anyone start a Tallahassee or FSU Facebook page? I just did a search and couldn't find anything.

Actually...YES!! its called Tallahassee Celiacs...it was just started..everyone go join :)

  • 2 weeks later...
ckitty Newbie
ckitty
Posted

are these support meetings still going on? i just found out i cant have gluten or casein (milk) and would love to get involved in a group in tallahassee. i would like to start a monthly potluck group...

thanks,

carla caison (on facebook too)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,373
    • Most Online (within 30 mins)
      7,748
    Alexis Parker
    Newest Member
    Alexis Parker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      Coeliac UK Research Conference 2025

      By Russ H · Posted

      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Basic metabolic panel results - more flags

      By Rejoicephd · Posted

      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.