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Teeth ?


Nikki'smom

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Nikki'smom Apprentice

My 7 yr old was just diagnosed and she does have the loss of enamal in her teeth. Sad her brand new adult teeth are yellow from Celiac! It breaks me heart. Well the enamel come back in time as she heals?


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gfpaperdoll Rookie

I would also like to know that!!

My double DQ1 granddaughter age 9 has also lost the enamel on her teeth. But she is not gluten-free & her parents are not going to put her on the diet. She is also now overweight. I can just imagine the horrors tha she is going to go thru with her teeth...

Gemini Experienced
My 7 yr old was just diagnosed and she does have the loss of enamal in her teeth. Sad her brand new adult teeth are yellow from Celiac! It breaks me heart. Well the enamel come back in time as she heals?

When my adult teeth came in as a child, my 2 front bottom teeth were yellow....no enamel on them.

It kills me because I had so many signs of celiac disease then and no one picked up on it. If the teeth are yellow with no enamel on them, as opposed to being a yellowish color, with enamel intact, I am afraid the enamel does not come back. I had both teeth capped and they look great now but it does cost money. My insurance did cover some of the expense though.

One thing you may want to keep an eye out for is Sjogren's Syndrome. It's another autoimmune disease that is concurrent with celiac disease. There is a blood test for it. It attacks the salivary glands and you produce less saliva, giving you dry mouth. This can affect dental health. The less saliva you have, the less protection against tooth decay. I would even recommend my dental routine....4 cleanings per year, with a dentist that is versed in what celiac disease can do. My teeth look great but I keep on top of any problems. However, I am losing 2 teeth due to Sjogrens and will have to have implants within the next couple of years. The bad news is that celiac disease can cause all kinds of dental problems but the good news is that much can be fixed today!

juliela Rookie

Gemini- wonderful advice- especially about the Sjogren's Syndrome.

The enamel does not come back, just as osteoporosis can't really be reversed once the bone is gone. If the teeth are just discolored, there's always professional whitening.

Unfortunately if there are enamel defects- the choices are composite bonding (for very small areas), or crowns or veneers or finally extraction followed by implants.

Best of luck, and I hope you find a dentist w/ knowledge of celiac- not easy to find!

Julie

juliela Rookie

Also, forgot to mention- if it makes you feel a little better- if she is gluten-free now, there is a chance that her remaining teeth will come in OK- for example her 2nd molars at age 12 or her wisdom teeth. Also, her premolars may be OK, but you just have to wait and see. Unfortunately, her front teeth have already formed and probably erupted already.

Julie

Gemini Experienced
Gemini- wonderful advice- especially about the Sjogren's Syndrome.

The enamel does not come back, just as osteoporosis can't really be reversed once the bone is gone. If the teeth are just discolored, there's always professional whitening.

Unfortunately if there are enamel defects- the choices are composite bonding (for very small areas), or crowns or veneers or finally extraction followed by implants.

Best of luck, and I hope you find a dentist w/ knowledge of celiac- not easy to find!

Julie

Julie....I have learned much since diagnosis and many problems I had over the years were all connected to celiac disease. No one connects the dots. I know that my knowledge is better than many doctor's and dentists and I am teaching both about how devastating celiac disease can be in many ways. My dentist now is aware and my information to her is helping her recognize symptoms in others....whether they want to hear it or not! Sjogren's has affected my teeth, gums and eyes but there are things that can be done to help, thank goodness. I still get annoyed that people who are diagnosed with celiac disease are not even told about all the other autoimmune diseases that can come with it! Then again, I have told my immediate family members, who I KNOW have a problem with gluten, and do you think they listen? :rolleyes:

Nikki'smom Apprentice

Thanks. It breaks my heart because she is only 7! She has only lost 6 teeth so maybe those baby teeth can hange on for a bit longer and we can heal the big teeth.

When her allergist asked me if she had ever been tested for Celiac after I had her ttested for milk allergies and she was fine. I went home and read about Celiac and the yellow teeth for me was a huge sign and I took her to be tested(blood) litterly the next day. I do feel so blessed that I was able to get her diagnosed in a month, I am actually going to call her allergist back this week and thank her for mentioning celiac!

As for caping and stuff I think I will wait until she gets older because my guess is she will need braces or at least until more adult teeth come in and see.


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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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