Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing My 3 Year Old


goldyjlox

Recommended Posts

goldyjlox Contributor

Is there any other way of testing a child that is 3 besides the bloodtest and Endoscopy?? I know that it will be tramatic to get he tested but I am beginning to think that it may be a good idea, I read that you could get a topical freezing cream and apply that before the needle and they wont feel it. I am going to ask my doctor about it on Thurs. But in the meantime can anyone suggest anything to make it easier or if there is an alternative route.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



vanillazeis Rookie
Is there any other way of testing a child that is 3 besides the bloodtest and Endoscopy?? I know that it will be tramatic to get he tested but I am beginning to think that it may be a good idea, I read that you could get a topical freezing cream and apply that before the needle and they wont feel it. I am going to ask my doctor about it on Thurs. But in the meantime can anyone suggest anything to make it easier or if there is an alternative route.

Thanks.

i hear people on here talking about stool testing through entrolab i think its called. as far as getting a diagnosis from a dr, from what i hear it sounds like dr's dont acknowledge entrolab testing. we had a blood test that my daughters allergist performed, that he read as positive and diagnosed my 3 year old with celiac. when i took her to her g.i. specialist he said the blood test was not the complete celiac panel, and it is not conclusive of celiac disease, although it is likely. The bloodwork will have to be redone, and he said that he would want a biopsy either way, so we go in wednesday, and they will give my little one "goofy juice" and after she goes to sleep then they will start her iv they will get the biopsy and do the bloodtest while shes out as well. i was just thinking that if you highly suspect celiac, and im sure you do since you have it yourself, than you might want a biopsy even if the bloodtest comes back negative... if thats the case then maybe do everything at the same time? good luck to ya'll!!

-breanna

(and Bayleigh 7-23-04)

crittermom Enthusiast

We got the "goofy juice" as well. Katharine was already asleep when they gave her the needle and when they put in the IV. She had know idea what happened. One minute I was there holding her, the next nurses were giving her popsicles (cold for the throat) and mom was back with a stuffed doggy in a green purse named Murphy. He is still one of her favorites. Afterwards she got diarrhea a few times from the meds but that was done by the afternoon. All in all it wasn't so bad for her. She doesn't even remember it really and she was 3 when it was done as well. It was worth it to find out what was going on and fix it. Now she is doing much better. :)

Nikki'smom Apprentice

When my 5yr old had his tonsils out a few months ago they gave him the 'goofy juice' and it was great!!! He was a trip on it it made us laugh the whole time and lightened the mood before they took him in. We also had the numbing cream for the iv and it was great our dr even used theat when doing his allergy testing!

With my DD's scope they gave her the numbing cream and then the 'goofy juice' I am sure the cream worked but being that she is 7 she is more aware of what is going on. to top it off she is 7 going on 37, so she is too smart for her own good. The loopy meds didn't work on her but the nurses said that is rare they don't work.

Honestly as rough as it was watching he be upset I am so happy we did the tests because now we know for sure what is making her sick and we can now move on with our life and not wonder. What actually made it easier was knowing once it was over she would be fine and feel no pain unlike when my sion had his tonsils out. She was feeling so good we went school clothes shopping after a huge last gluten filled lunch for her.

Good luck and I hope your little one feels better soon!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,208
    • Most Online (within 30 mins)
      7,748

    Gail Brown
    Newest Member
    Gail Brown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.