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momofcddh

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momofcddh Newbie
momofcddh
Posted

hello,

I have searched this site for quite awhile,have gotten alot of info,recipiesetc. I have a 4yr old with celiac disease and dh,also lactose int. every day seems to be trial and error but we get through it, I never ever thought about gluten until 9mths ,ago when our child was diagnosed, what a nightmare. Everything from food to meds, soap shampoo,calling companys, is very frustrating. My daughter is the only one at her daycare with celiac disease. I provide everything, this year she starts kindergarten a whole new can of worms to deal with. I see on this site alot of parents with children that have celiac disease. The meeting I attend for celiac disease is very informative but I have the only child so far,so I am hoping to converse with outer parents on this site.

Thank You so very much

momofcddh child

  • 3 weeks later...
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flagbabyds Collaborator
flagbabyds
Posted

You should try to find a ROCK group, raising our celiac kids which is a kids group and it is really helpful

Guest jhmom
Guest jhmom
Posted

Hi momofcddh: My 8 year old daughter was recently diagnosed, the gluten-free diet took some getting use to but we are both feeling a lot better on it. :D

As far as her school, she is in the 3rd grade and I am sure she is the only one with celiac disease too. She takes her lunch everyday and I asked her teacher if she would mind warming her hot lunch up (rice, chicken,corn pasta or hamburgers), I told her it wasn't as simple as packing her a sandwich. It has not been a problem yet and I hope it never becomes one.

I provide her snacks and candy for the treat jar. Everything has went pretty well this year except one time a parent brought in cup cakes and no one called me to let me know so that I could provide her with one. They gave her one and she ATE it!!! I was a little upset, I sent another letter to her teacher explaining the seriousness of this disease and told her that was like giving a sugar treat to a diabetic child!!! I instructed them to give her a couple pieces of her candy if that ever happened again, but if someone would call me to let me know I would arrange for my daughter to have a special treat too!!!

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      Draft gluten-free ciders… can they be trusted ?

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      Hi everyone do you know whether when you get a draft cider if there is a chance that it runs through the same tubing as a beer did sometime prior?  the reason I’m asking is that I’m trying to eliminate a source of hidden gluten that I think hits me about once a month. And I have a suspicion it might be cider from the draft at certain bars. When I am out, if I decide to drink, I usually order a cider brand that I know is gluten free.    what I’ve noticed is that a couple times when I got a draft cider, I got symptoms of being  glutened that night and the day after. This doesn’t seem to happen with all times I drink cider. I had a draft at a very clean brewery and I didn’t react from that, which is what made me start to wonder. Does anyone know if this is a possible source of getting glutened? I am like 99% sure that this is the cause and I think I’ll switch to bottle/can only from here on out, but would be interested if others experienced the same thing (or work in a bar and know how this works). Thanks!
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