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momofcddh

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momofcddh Newbie
momofcddh
Posted

hello,

I have searched this site for quite awhile,have gotten alot of info,recipiesetc. I have a 4yr old with celiac disease and dh,also lactose int. every day seems to be trial and error but we get through it, I never ever thought about gluten until 9mths ,ago when our child was diagnosed, what a nightmare. Everything from food to meds, soap shampoo,calling companys, is very frustrating. My daughter is the only one at her daycare with celiac disease. I provide everything, this year she starts kindergarten a whole new can of worms to deal with. I see on this site alot of parents with children that have celiac disease. The meeting I attend for celiac disease is very informative but I have the only child so far,so I am hoping to converse with outer parents on this site.

Thank You so very much

momofcddh child

  • 3 weeks later...
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flagbabyds Collaborator
flagbabyds
Posted

You should try to find a ROCK group, raising our celiac kids which is a kids group and it is really helpful

Guest jhmom
Guest jhmom
Posted

Hi momofcddh: My 8 year old daughter was recently diagnosed, the gluten-free diet took some getting use to but we are both feeling a lot better on it. :D

As far as her school, she is in the 3rd grade and I am sure she is the only one with celiac disease too. She takes her lunch everyday and I asked her teacher if she would mind warming her hot lunch up (rice, chicken,corn pasta or hamburgers), I told her it wasn't as simple as packing her a sandwich. It has not been a problem yet and I hope it never becomes one.

I provide her snacks and candy for the treat jar. Everything has went pretty well this year except one time a parent brought in cup cakes and no one called me to let me know so that I could provide her with one. They gave her one and she ATE it!!! I was a little upset, I sent another letter to her teacher explaining the seriousness of this disease and told her that was like giving a sugar treat to a diabetic child!!! I instructed them to give her a couple pieces of her candy if that ever happened again, but if someone would call me to let me know I would arrange for my daughter to have a special treat too!!!

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