Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 9 Month Old

amandadn

Recommended Posts

amandadn Newbie
amandadn
Posted

We are going to see the doctor next week to talk about the chances she has celiac and get the blood test done. I took her off wheat because of her reactions, but she needs to have it in her system for the test. Does anyone know how long I need to give it to her for the test to be accorate?

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kevieb Newbie
kevieb
Posted

she is too young for the tests to be accurate---some young kids do not produce Ttg antibodies until they are older. that being said, it is still good to test if you suspect it. kids that young can react to alot of different foods----and alot of them will outgrow those intolerances.

gfpaperdoll Rookie
gfpaperdoll
Posted

Just test thru Enterolab.com & get the gene test - because they test for all the gluten problem genes not just DQ2 & DQ8

& a lot of kids do not outgrow those allergies or food problems - they just keep getting worse, at least mine did. & if it is a gluten problem that will never go away...

maggiemom Newbie
maggiemom
Posted
We are going to see the doctor next week to talk about the chances she has celiac and get the blood test done. I took her off wheat because of her reactions, but she needs to have it in her system for the test. Does anyone know how long I need to give it to her for the test to be accorate?

Thanks

I'm going in on Monday to discuss my 12 month old and chances of Celiac...what made you have your daughter tested? Do you or a family member have it? Just wondering...

Janeti Apprentice
Janeti
Posted

I'm curious also...When my son(now22) was 5 days old, he stopped breathing. Thanks to my mom, who was a nurse, she did cpr on him, and got him breathing. It seemed forever til the ambulance came, I don't think he would have survived. The Dr claimed he was allergic. Growing up, he had projectile vomiting, never slept and had a chronic cough(up until this past June, from the time he was an infant)chronic ear infections, etc...Last year when he was away at college, he ran a fever of 104, got dehydrated, and we had to bring him to the hospital to be infused. This past July, after developing DH, I knew that he had celiacs, and he started a gluten free diet. For the first time in 22 years, he is not sick. That chronic cough that used to keep him up all night is GONE!!! He is now back at college, and when I talk to him, I feel like crying, but now its due to happiness. We are waiting for the dna results from enterolab, but I think we know the answer. Hopefully you and your baby will never have this happen. Janet

amandadn Newbie
amandadn
Posted
  • Author
I'm curious also...When my son(now22) was 5 days old, he stopped breathing. Thanks to my mom, who was a nurse, she did cpr on him, and got him breathing. It seemed forever til the ambulance came, I don't think he would have survived. The Dr claimed he was allergic. Growing up, he had projectile vomiting, never slept and had a chronic cough(up until this past June, from the time he was an infant)chronic ear infections, etc...Last year when he was away at college, he ran a fever of 104, got dehydrated, and we had to bring him to the hospital to be infused. This past July, after developing DH, I knew that he had celiacs, and he started a gluten free diet. For the first time in 22 years, he is not sick. That chronic cough that used to keep him up all night is GONE!!! He is now back at college, and when I talk to him, I feel like crying, but now its due to happiness. We are waiting for the dna results from enterolab, but I think we know the answer. Hopefully you and your baby will never have this happen. Janet

Thank you all for your info...We went to the doctor today and her doctor wants the celiac panel test done. The only problem is that she is on a glyten free diet. I am pretty sure that she has to have it in her system for an accutate. So I am not sure what to do...anyone have any ideas?

gfpaperdoll Rookie
gfpaperdoll
Posted

Fire your doctor & test thru Enterolab.com ?? :D

It is okay that you know more than your doctor - you are the Mother & in charge of her health for the next 20 years - or until she is taking care of your health!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Janeti Apprentice
Janeti
Posted

I too think that the most accurate way to diagnose is through enterolab. Babies are not able to produce the antibodies needed for the blood test.(taken from the book"gluten free for dummies") My son suffered so much growing up, especially these past 4 years when he wasn't able to keep any food in stomach. I would just cut to the chase, and do the DNA testing, especially if she is now gluten free. My best wishes for your little girl...Janet

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,244
    • Most Online (within 30 mins)
      7,748
    wildbutterfly7
    Newest Member
    wildbutterfly7
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      High Deamidated Gliadin Abs, IgA after being gluten-free for 6 months

      By RMJ · Posted

      It can take longer than 6 months for antibodies to drop to the normal range,  My DGP IgA took a few years as I got stricter and stricter about being gluten free  But having symptoms again could also mean you’re getting some gluten in your diet.
    • TexasCeliacNewbie
      High Deamidated Gliadin Abs, IgA after being gluten-free for 6 months

      By TexasCeliacNewbie · Posted

      Hi, I just had my 6 month check after being diagnosed Celiac 6 months ago.  All of my panel numbers were normal except: Deamidated Gliadin Abs, IgA (It is 31 with high being over 30)  I have also been having symptoms again. Am I not actually being as careful as I think I am or does it take longer than 6 months for this particular test to come back down?  I can't get ahold of my doctor this week as she is out.     Thank you!
    • Scott Adams
      Diagnosis and further testing Celiac

      By Scott Adams · Posted

      That is very strange, because it looks to me like two very different test results, but for the same test! It's definitely time to contact your doctor for clarity on this.
    • Redanafs
      Diagnosis and further testing Celiac

      By Redanafs · Posted

      Same day which is strange to me. 
    • JForman
      7yo struggling!

      By JForman · Posted

      Scott, thank you SO MUCH for this!! She has been through so much in the last three years as we've tried to track down answers. This language will definitely help me help her to reframe.
×
×
  • Create New...