Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 9 Month Old

amandadn

Recommended Posts

amandadn Newbie
amandadn
Posted

We are going to see the doctor next week to talk about the chances she has celiac and get the blood test done. I took her off wheat because of her reactions, but she needs to have it in her system for the test. Does anyone know how long I need to give it to her for the test to be accorate?

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kevieb Newbie
kevieb
Posted

she is too young for the tests to be accurate---some young kids do not produce Ttg antibodies until they are older. that being said, it is still good to test if you suspect it. kids that young can react to alot of different foods----and alot of them will outgrow those intolerances.

gfpaperdoll Rookie
gfpaperdoll
Posted

Just test thru Enterolab.com & get the gene test - because they test for all the gluten problem genes not just DQ2 & DQ8

& a lot of kids do not outgrow those allergies or food problems - they just keep getting worse, at least mine did. & if it is a gluten problem that will never go away...

maggiemom Newbie
maggiemom
Posted
We are going to see the doctor next week to talk about the chances she has celiac and get the blood test done. I took her off wheat because of her reactions, but she needs to have it in her system for the test. Does anyone know how long I need to give it to her for the test to be accorate?

Thanks

I'm going in on Monday to discuss my 12 month old and chances of Celiac...what made you have your daughter tested? Do you or a family member have it? Just wondering...

Janeti Apprentice
Janeti
Posted

I'm curious also...When my son(now22) was 5 days old, he stopped breathing. Thanks to my mom, who was a nurse, she did cpr on him, and got him breathing. It seemed forever til the ambulance came, I don't think he would have survived. The Dr claimed he was allergic. Growing up, he had projectile vomiting, never slept and had a chronic cough(up until this past June, from the time he was an infant)chronic ear infections, etc...Last year when he was away at college, he ran a fever of 104, got dehydrated, and we had to bring him to the hospital to be infused. This past July, after developing DH, I knew that he had celiacs, and he started a gluten free diet. For the first time in 22 years, he is not sick. That chronic cough that used to keep him up all night is GONE!!! He is now back at college, and when I talk to him, I feel like crying, but now its due to happiness. We are waiting for the dna results from enterolab, but I think we know the answer. Hopefully you and your baby will never have this happen. Janet

amandadn Newbie
amandadn
Posted
  • Author
I'm curious also...When my son(now22) was 5 days old, he stopped breathing. Thanks to my mom, who was a nurse, she did cpr on him, and got him breathing. It seemed forever til the ambulance came, I don't think he would have survived. The Dr claimed he was allergic. Growing up, he had projectile vomiting, never slept and had a chronic cough(up until this past June, from the time he was an infant)chronic ear infections, etc...Last year when he was away at college, he ran a fever of 104, got dehydrated, and we had to bring him to the hospital to be infused. This past July, after developing DH, I knew that he had celiacs, and he started a gluten free diet. For the first time in 22 years, he is not sick. That chronic cough that used to keep him up all night is GONE!!! He is now back at college, and when I talk to him, I feel like crying, but now its due to happiness. We are waiting for the dna results from enterolab, but I think we know the answer. Hopefully you and your baby will never have this happen. Janet

Thank you all for your info...We went to the doctor today and her doctor wants the celiac panel test done. The only problem is that she is on a glyten free diet. I am pretty sure that she has to have it in her system for an accutate. So I am not sure what to do...anyone have any ideas?

gfpaperdoll Rookie
gfpaperdoll
Posted

Fire your doctor & test thru Enterolab.com ?? :D

It is okay that you know more than your doctor - you are the Mother & in charge of her health for the next 20 years - or until she is taking care of your health!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Janeti Apprentice
Janeti
Posted

I too think that the most accurate way to diagnose is through enterolab. Babies are not able to produce the antibodies needed for the blood test.(taken from the book"gluten free for dummies") My son suffered so much growing up, especially these past 4 years when he wasn't able to keep any food in stomach. I would just cut to the chase, and do the DNA testing, especially if she is now gluten free. My best wishes for your little girl...Janet

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,904
    • Most Online (within 30 mins)
      7,748
    AnneSN
    Newest Member
    AnneSN
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.