Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 9 Month Old

amandadn

Recommended Posts

amandadn Newbie
amandadn
Posted

We are going to see the doctor next week to talk about the chances she has celiac and get the blood test done. I took her off wheat because of her reactions, but she needs to have it in her system for the test. Does anyone know how long I need to give it to her for the test to be accorate?

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kevieb Newbie
kevieb
Posted

she is too young for the tests to be accurate---some young kids do not produce Ttg antibodies until they are older. that being said, it is still good to test if you suspect it. kids that young can react to alot of different foods----and alot of them will outgrow those intolerances.

gfpaperdoll Rookie
gfpaperdoll
Posted

Just test thru Enterolab.com & get the gene test - because they test for all the gluten problem genes not just DQ2 & DQ8

& a lot of kids do not outgrow those allergies or food problems - they just keep getting worse, at least mine did. & if it is a gluten problem that will never go away...

maggiemom Newbie
maggiemom
Posted
We are going to see the doctor next week to talk about the chances she has celiac and get the blood test done. I took her off wheat because of her reactions, but she needs to have it in her system for the test. Does anyone know how long I need to give it to her for the test to be accorate?

Thanks

I'm going in on Monday to discuss my 12 month old and chances of Celiac...what made you have your daughter tested? Do you or a family member have it? Just wondering...

Janeti Apprentice
Janeti
Posted

I'm curious also...When my son(now22) was 5 days old, he stopped breathing. Thanks to my mom, who was a nurse, she did cpr on him, and got him breathing. It seemed forever til the ambulance came, I don't think he would have survived. The Dr claimed he was allergic. Growing up, he had projectile vomiting, never slept and had a chronic cough(up until this past June, from the time he was an infant)chronic ear infections, etc...Last year when he was away at college, he ran a fever of 104, got dehydrated, and we had to bring him to the hospital to be infused. This past July, after developing DH, I knew that he had celiacs, and he started a gluten free diet. For the first time in 22 years, he is not sick. That chronic cough that used to keep him up all night is GONE!!! He is now back at college, and when I talk to him, I feel like crying, but now its due to happiness. We are waiting for the dna results from enterolab, but I think we know the answer. Hopefully you and your baby will never have this happen. Janet

amandadn Newbie
amandadn
Posted
  • Author
I'm curious also...When my son(now22) was 5 days old, he stopped breathing. Thanks to my mom, who was a nurse, she did cpr on him, and got him breathing. It seemed forever til the ambulance came, I don't think he would have survived. The Dr claimed he was allergic. Growing up, he had projectile vomiting, never slept and had a chronic cough(up until this past June, from the time he was an infant)chronic ear infections, etc...Last year when he was away at college, he ran a fever of 104, got dehydrated, and we had to bring him to the hospital to be infused. This past July, after developing DH, I knew that he had celiacs, and he started a gluten free diet. For the first time in 22 years, he is not sick. That chronic cough that used to keep him up all night is GONE!!! He is now back at college, and when I talk to him, I feel like crying, but now its due to happiness. We are waiting for the dna results from enterolab, but I think we know the answer. Hopefully you and your baby will never have this happen. Janet

Thank you all for your info...We went to the doctor today and her doctor wants the celiac panel test done. The only problem is that she is on a glyten free diet. I am pretty sure that she has to have it in her system for an accutate. So I am not sure what to do...anyone have any ideas?

gfpaperdoll Rookie
gfpaperdoll
Posted

Fire your doctor & test thru Enterolab.com ?? :D

It is okay that you know more than your doctor - you are the Mother & in charge of her health for the next 20 years - or until she is taking care of your health!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Janeti Apprentice
Janeti
Posted

I too think that the most accurate way to diagnose is through enterolab. Babies are not able to produce the antibodies needed for the blood test.(taken from the book"gluten free for dummies") My son suffered so much growing up, especially these past 4 years when he wasn't able to keep any food in stomach. I would just cut to the chase, and do the DNA testing, especially if she is now gluten free. My best wishes for your little girl...Janet

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
    3. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to...
    4. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
    5. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,833
    • Most Online (within 30 mins)
      7,748
    Grandma13
    Newest Member
    Grandma13
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.