Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Alternating Diarrhea & Constipation Since Gluten Free


Walter S

Recommended Posts

Walter S Explorer

Hello everyone. I have to be brief here because I do not have much time to post so if more info is needed or if anyone has questions I can pos more details at a later time. The short version is, i have been gluten free for a while. For years, I have suffered from chronic diarrhea, long beofre I knew I had Celiac. Now I am alternating between severe diarrhea and severe constipation, never being "regular". I never used to have that problem. It was always strictly diarrhea. Any idea what could cause this? Anyone else have this? Any advice especially for coping with the constipation as this is new to me nad quite uncomfortable? Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest thatchickali

I am the opposite, I was constipated for years and it got to a really bad point of no movements for 2 weeks. Now on Gluten Free I started having diarrhea. I figured out my diet wasn't balanced, I was eating too many fruits and drinking too much juice because my sensitive stomach didn't want anything else. Now I'm trying to add more chicken and rice and corn tortillas until my appointment with my dietitian can help me map out a plan.

Maybe look at the things you are eating. It may not be related to Celiac, but just your diet.

spunky Contributor

I think during the early healing process, a lot of strange, new intestinal things can happen.

You can try taking some fiber (although this doesn't agree with some individuals, so be careful about adding it to see how your body responds) that is gentle, gluten free, such as Citricel or ground flax seeds and see if that helps. Things might get better after several months' healing time.

Also, it happens frequently that some new food intolerances tend to pop up their ugly little heads during the healing phase. Diary products and soy are two of the big ones to watch out for. You might need to avoid them entirely for awhile. Some people end up just avoiding them forever.

Hope it's better soon. My gut didn't find a normal regular routine for about 18 months.

gfpaperdoll Rookie

I would cut out all dairy - & do not add in soy because it could also become a problem.

The top problems after gluten are dairy, soy, eggs & the nightshade family tomatoes, potatoes, peppers, egg plant... Some people have problems with legumes they are a high lectin food. I have cut them out of my diet, now that I am eating more Paleo. remember Peanuts are a Legume, I have switched to almond butter - much better for you...

sometimes when people go gluten-free they start eating more potatoes - really not a good idea, try sweet potatoes instead & try to eat meat at most meals or as a snack with fruit. If you do not eat some meat with fruit for a snack try nuts & a fruit.

& yes, your system could be adjusting to all the new foods...

you should not be eating any of the gluten-free goodies like brownies etc, until you are all healed... that does include the gluten-free pastas etc etc...

eat a few things at a time & see how you do before adding another food.

think plain foods - like a roast with carrots & onions maybe serve with some steamed broccoli or a salad

rsm Newbie
I think during the early healing process, a lot of strange, new intestinal things can happen.

You can try taking some fiber (although this doesn't agree with some individuals, so be careful about adding it to see how your body responds) that is gentle, gluten free, such as Citricel or ground flax seeds and see if that helps. Things might get better after several months' healing time.

Also, it happens frequently that some new food intolerances tend to pop up their ugly little heads during the healing phase. Diary products and soy are two of the big ones to watch out for. You might need to avoid them entirely for awhile. Some people end up just avoiding them forever.

Hope it's better soon. My gut didn't find a normal regular routine for about 18 months.

This is good news, I'm just over 6 months and still bouncing from one extreme to another. At this point I feel so much better I don't really care but it would be nice to regulate. I will try the almond butter, peanut butter with cottonseed oil, that's most of them, is a problem for me. The paleo diet is very good.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748

    Travis25
    Newest Member
    Travis25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.