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List Of Alllowed And Not Allowed Ingredients For Celiac

Melmelsmom

By Melmelsmom
in Coping with Celiac Disease

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Melmelsmom Rookie
Melmelsmom
Posted

Hello all I am so happy that I have found this site because now I feel like I don't have to walk around blindfolded.

I have an 11 year old daughter that was diagnosed with Celiac about 2 months ago now after being sick for so long and fianlly when so went from 82lbs down to 62lbs and in a size 8 from the kiddos department while in 7th grade they really started to take me seriously that my daughter was sick. Before that all came about we were in and out of DRs offices and the ER room at our local hospital due to her severe stomach pain and nausea that never left. It was horrible to see my daughter wasting away and all that the DRs could say was that oh she is a good student so it is probably stress that is making her sick or she has anorexia...............How very frustrating for me!

They finally sent us to a specialist and he wanted a endoscopy with biopsy done asap due to the severe weight loss and her symptoms and they found that her isides were a total mess is how he put it and as soon as the biopsy results came back he informed me that he wanted her to take some blood test to confirm that Celiac was causing the damage and that the biopsy showed flat villi (someting to that sort).

Anyhow I wanted to share a little bit of our journey at this point but the main reason I am here is to get some help from those of you who have been dealing with for some time now because I am still having a hard time trying to figure out what ingredients are ok for her and which are not....it is very hard to read labels because I don't understand it that well.

I do know that she cant have Weat, Barley, Rye, and so on but the hard part is that some ingredients don't just say that but she can't have tem because they contain one or more of those things.....for example....................the ingredient Triticale......ok so unless this was on list I would never know that she could not have it because it is a cross between Wheat and Rye.

So I wanted to know does anyone out there have a complete list for dummies like myself that is clear cut of all the ingredients that contain something that my daughter should not have???

Thank you in advance for your help becausae it will be nice to expand her food options because as it stands right now we have been sticking with stuff that says on the box that it is wheat and gluten free and ten of course her meats fruits and veggies and rice.....she loves rice! I just want more options for her to make it more tolerable.

I can't wait for her to start feeling well because it has been 7 weeks now of the gluten free diet and she is still feeling bad.

Oh I should mention that te Dr also told me to keep lactose out of her until she heals so that is something for the time being we are avoiding.

Once again thank you for your help.

Melmelsmom

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ptkds Community Regular
ptkds
Posted

Go to Open Original Shared Link

Scroll down to the bottom and there is a link of safe and unsafe ingredients. This is one of the most curent lists, and they update it as needed.

Hang in there, it will get easier over time. Just remind her to stick to the diet (peer pressure can cause some teens to cheat on the diet!) and she will get healthy.

ptkds

Melmelsmom Rookie
Melmelsmom
Posted
  • Author

Hello ptkds,

Thanks for your reply.

I did go to the link you put in your post and scrolled down to the bottom and could not find what to click on to get hte list of No Nos for ingredients.

I did find a link that took me to a place that you could download for different devices a list that seemed to be what I might be looking for but it was like $78.00 to download it! Is that correct?? Do you have to pay for this type of information?

If you would not mind when you get a chance could you give it a try and the let me know the words I am supposed to click on to get to the list.

Once again thank you for your response.

Blessings,

Melmelsmom

ptkds Community Regular
ptkds
Posted

Ok, I had a hard time too cuz it is really mixed in with the rest of that list! But here is what it says:

"Safe Gluten-Free Food List / Unsafe Foods & Ingredients"

It is in the top half of that long list of links. Also, here is the direct link to the page:

https://www.celiac.com/st_main.html?p_catid=12

I hope that helps!!

BTW, welcome to the boards!

ptkds

Melmelsmom Rookie
Melmelsmom
Posted
  • Author

ptkds & Canadian Karen (who sent me a private message),

Has anyone told you that you are Angels! Thank you so much I found the pages that the both of you mentioned to me so now I have some reading to do today.

Oh and thank you for the welcome to the boards.

I have felt very welcome since starting my first post.

Thanks again!

Blessings,

Melmelsmom

PS. I guess my next questions will be how do I create a signature like you all have with details about diagnosis and so on and also how do I get picture in my little box to the left of the posts like you all have?

No rush on answering this question just when you feel you have the time and if you do not mind helping me out a bit.

Thanks again for your kindness.

Canadian Karen Community Regular
Canadian Karen
Posted

:lol:

There are a few here who would get a real kick out of someone calling me an "angel".....

;)B)

I all too glad to help and any questions, just fire away. Our motto here is there is no such thing as a silly question...... We have all been there....

Karen

ptkds Community Regular
ptkds
Posted

If you look up on top, there is a link called "My Controls". Click that and it should take you to your page so that you can personalize all your stuff.

Glad I could help!

ptkds

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tarnalberry Community Regular
tarnalberry
Posted

You'll come across other 'tritical's of the world - ingredients that you have no idea what they are. Here's the thing with a gluten-free diet: if you don't *know* that it's free of gluten, don't eat it. This isn't a "I don't know that any of these ingredients have gluten, so it's ok" but a "I know that none of these ingredients have gluten, so it's ok" sort of thing.

It will get easier, and the safe/unsafe list that's freely available on this site under the site index is a good place to start. If you're not a big food buff, it'll take a while to learn the vast amount of information out there, but you'll get down what you need to know.

Luisa2552 Apprentice
Luisa2552
Posted

Go out (or order on Amazon) Danna Korns book 'Living Gluten Free for Dummies'. Great beginner book for new Celiacs.

There are endless lists on these boards of safe foods from various manufacturers and stores. Print them and keep a binder. It can be overwhelming at first but it already seems second nature to me and I've been gluten-free only 2 months.

Hang in there, do lots of research and you'll be fine.

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