Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Always Feels/looks Tired


buffettbride

Recommended Posts

buffettbride Enthusiast

DD always seems tired. I have a heck of a time getting her out of bed in the morning. She is 10. She goes to bed about 8:30 or 9pm and wakes up around 6am. I could adjust her bedtime by about a half hour and get her to bed shortly after 8, but not much earlier as we're usually just finishing up with dinner around 7 or 7:30 and she needs to shower, do chores, finish homework, etc.

She definitely seems more worn out than other kids at school, though, and her teacher even commented she seems more tired.

I suppose it could be Celiac related, although she is gluten-free now and has far less going on busy-wise in her life now than she did this time last year before diagnosis.

We make sure she has a full (32 oz) water bottle every day and she fills it up once while at school, too.

What else can I do to help her be more rested and energetic?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



EBsMom Apprentice
What else can I do to help her be more rested and energetic?

My dd is also 10 and went gluten-free around the same time that your dd did, I believe (4 months ago?) She has periods of being very tired, also. I've been making her go to bed a bit earlier and I've been giving her a multivite. I've also been pushing the iron-rich foods. I've recently decided that if this persists past 6 months, I'm going to ask to have her iron level checked. I'm assuming that my dd is still healing - after all, she was sick for a while - and she has lots more activity to contend with now that school has resumed. But still....I share your concern.

Rho

buffettbride Enthusiast
My dd is also 10 and went gluten-free around the same time that your dd did, I believe (4 months ago?) She has periods of being very tired, also. I've been making her go to bed a bit earlier and I've been giving her a multivite. I've also been pushing the iron-rich foods. I've recently decided that if this persists past 6 months, I'm going to ask to have her iron level checked. I'm assuming that my dd is still healing - after all, she was sick for a while - and she has lots more activity to contend with now that school has resumed. But still....I share your concern.

Rho

I'm glad to know I'm not alone. It seems I could come up with a reason every week to take her to the doctor. We've been diligent about the daily vitamins. I suspect her deficindies might be iron related, but probably more B-vitamin related. School is definitely a factor too--it really is hard work and obviously more tiring than summer vacation.

Virgie Apprentice

Hi! I so know how you feel. I am having issues with fatigue in both of my children - son 18 & Senior in High School has Ulcerative Colitis - remission ?? daughter 13 & an 8th grader dx 9/07 with Celiac. Both have a very hard time getting up in the morning. It doesn't seem to matter when they go to bed. The 2nd day of school my daughter fell asleep on the couch at 6:00 p.m. & didn't get up unti 6:00 AM. Very tired but then I too think that she is still healing. Both kids have had complete bloodwork up and everything seems ok. But they also both have a middle ear infection (just was at the doctor yesterday, again!) so I suppose they could be tired from that. But it is very frustrating because especially for my son the fatigue is so bad that he can not go to school until about 11:00 some days. He hates missing too as he misses out on those classes and he does like those subjects. So it isn't anything like they want to get out of school.

FWIW I do agree that school is more tiring than summer vacation. My son usually doesn't have any UC issues in the summer which I feel is because he can sleep as much as he wants, eats when & what he wants, no homework, lots less stress, etc. So hopefully soon they can all get into a better schedule and feel better and not be so tired. My kids tend to look like racoons with the circles under their eyes.

Hope your kiddo has more energy soon. :)

Take care.

Virgie

I'm glad to know I'm not alone. It seems I could come up with a reason every week to take her to the doctor. We've been diligent about the daily vitamins. I suspect her deficindies might be iron related, but probably more B-vitamin related. School is definitely a factor too--it really is hard work and obviously more tiring than summer vacation.
Nathan's mom Apprentice

Make her an appointment and have her vitamin levels, thyroid, and iron storage levels checked. For my friends daughter, 10 was when she started having mood swings, being tired all the time, etc. She has hypothyroidism. They think the prepuberty hormones kicking in triggered it.

And of course, with Celiac, there is a higher chance of other autoimmune things coming into play.

Take care,

Debbie

gfpaperdoll Rookie

I think B12, a sublingual, is very important, even if their levels test okay - give the B12, it will not hurt them, the excess is excreted in the urine.

At least 9 hours of sleep. Also, make sure that their room is absolutely dark - no clock lights, no night lights, no light at all, even if you have to black out the windows with something - the room needs to be black for proper sleep. some people forget that...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748

    patanddiane
    Newest Member
    patanddiane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.