Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Can't Stop Gaining...


Sesheta

Recommended Posts

Sesheta Rookie

I was diagnosed with celiac in Feb 2005 and have been gluten free ever since. My problem is that ever since I started the diet I continue to gain weight, I went from 150 to 218. I've begun an exercise routine, tried dieting, and end up missing lunch a lot. Does anyone have any suggestions for healthy recipes or ways to lose weight because I'm getting married in about half a year and I want to look my best. Please help! :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lmvrbaby Newbie

Hi, I have been gluten free in January 06, and I tried the diet thing and lost in the beginning when everyone said oh wow you will lose weight quick being gluten free... NOT, I lost about 20 in the beginning and since have gained back that and then some. I exercise as well and try to eat right, lots of vegies, less chocolate, but it does not help. No idea what to do now. Hope there are some answers from someone.

Centa Newbie

Hello, Sesheta

Much sympathy. I'm struggling with the same problem. When I expressed frustration to my doctor, and commented that I knew that I wasn't eating more, he remarked that it might be because my GI tract was healthier now and absorbing more of what I ate...that made some sense to me.

I'm also in the metabolism slowdown that comes at midlife. It took me awhile to understand that not only could my GI tract be absorbing more of the calories of the food that I ate, that my baseline caloric limit had moved lower. It's one of my life jokes that it all happened in about the same period of time, thank you very much <_<

In other words, celiac or no celiac, I now was maintaining on fewer calories than I had been maintaining in my early adulthood. And my GI was back to its business taking in those calories from what I ate.

A third factor is that my life definitely has become more sedentary in the last 10 years, especially the last 5. There's another overlap. This in my case is partly due to the computer. Work outside the home takes up most of my day, and it has shifted over to being done on the computer. I no longer move around, inside and outside my work building. So especially at work, I'm burning fewer calories per day...and those little puppies mount up. I suggest that you check this out in your life, too. You may not be nailed to the computer like I am these days, but how sedentary have you been during the period in which you picked up that extra weight?

From past years when I was jogging regularly and running in road races, I can tell you that at least in the case of my body, maybe not others', I have to do what for me is a massive amount of aerobic exercise before exercise takes off any weight at all. For me, I had to get my miles run per week up above 35 (56 kilometers), habitually. I can run off 200 calories or so in the gym but I don't get to the gym every day, so it would take me over a month to exercise off that 3500 calories = lb. off. That's much too slow for what you and I want concerning weight loss.

So for me, weight loss comes down to a matter of number of calories in. Perhaps other members can suggest particular diets or emphases in diets (carbs, no carbs, what to do about dietary fat)

I think people may differ in what psychological strategy works best for them, so I don't urge these following on you But they're necessary to me.

1) I count calories. I really have done everything I can to avoid this...it feels so compulsive to do it But if I don't count, I don't end up making aware choices in the "danger times" of the day.

1a) I sometimes think different people have different needs for the ratio of meat to veggies, but I'm definitely someone who does better on lots of veggies, very little meat, and low on the carbs, so that's what's best for me as I try to lose weight: lots of veggies. I even do well skipping meat protein entirely some days of the week, doing it on things like lentils or hummus: legume protein. I do think you'll need to maintain a ratio of meat to veggies that your body needs, or you'll get some hunger drives related to your body feeling depleted of something that it baseline needs.

2) I shouldn't eat after dinner in the evening, period. I'm working on this one. When I was worst off before I learned that I had celiac sprue, I was ravenous, because my GI tract was not absorbing nutrients. There's no opportunity to eat at work, so my time to eat was in the evening..so I became habituated to opening that refrigerator door in the evening. It just packs on, and if I ate carbs in the evening, oh boy. See 3)

3) Drink water, lots of it, and keep exercising. Because of my age, genetic history (my father was a diabetic) and sedentary work, I tend to stack on water weight. This is very demoralizing. If I haven't had some good exercise, haven't been drinking water, and eat some carbs, I can pick up 2-4 (1-2 kilo) of water weight in one day or evening, and keep it on. I can carry so much that my clothes actually fit differently (so I am constantly reminded and feeling fat all day). For me, I need to do exercise that gets my legs moving: walking, treadmill, working on the elliptical trainer. Once years ago I took a diuretic pill..what a dreadful thing it was..it wasn't a silver bullet, and the caffeine in it kept me stuck to the ceiling for 2 days. Drinking water and doing exercise that gets me moving takes care of the extra water for me.

4) It's not weight loss, but a contribution to your beautiful moments on your wedding day might be to work on muscle tone. That's where calisthenics and working on the weight machines help.

5) People will vary on this one: I need to weigh every day. If seeing the measured weight stay the same although you know you've tried that day, or see a couple of extra pounds of water weight push the needle up upsets you, you may not want to weigh daily, but I'm in the middle of changing how much I eat, really changing some baseline habit on that, so need to be aware, just now, and so I need to get on the scale often.

6) I need to take a multivitamin.

Once again, these are things I have to do, daily, to make a dent in weight loss. They're not direct recommendations to you, but I hope some of them have enough match to your life that they might be worth trying.

The one thing that I think I can report, regardless of your age or how sedentary your day is, is not to expect that exercise will take much weight off, on the timetable that you'd like. It's good for health, muscle tone and feeling good...part of an overall lifestyle.

Congratulations on your upcoming marriage :) You will be beautiful on your wedding day and you're be-yoo-tiful now. Stay in touch!

Your fellow dieter :)

cruelshoes Enthusiast

Several people on another celiac board I am on have mentioned that they have had success with the Weight Watchers core diet - Open Original Shared Link. I don't know much about it, but it is supposed to be quite amenable to the gluten-free diet. I had always been very thin before my diagnosis, but once I went gluten-free, I started to put on weight rapidly. I got pregnant and gained 60 pounds! Holy crap - that's like carrying a second grader around with you all the time. After I had the baby, I got serious about losing the weight. I have had to give up most of the gluten-free breads and cookies. Many of them have a lot of simple carbs and starches. I do still eat bread and cookies occasionally, but not nearly as often as I used to. It took me 5 months to lose all of the baby weight, and now my weight has drifted down to 5 pounds less that when I got pregnant. I think if I lose 5 more pounds I will be happy.

Do something each day for exercise, even if it's just a brisk 30-minute walk. The key is to burn off more calories than one is taking in.

Hang in there. :)

Nancym Enthusiast

Get rid of the simple starches and sugars in your diet and replace them with meat, veggies and low sugar fruits like berries. You'll not only be less hungry and take in fewer calories naturally, you'll probably get a lot healthier.

Open Original Shared Link is a good resource.

Emily Elizabeth Enthusiast

I gained weight too when going gluten free. I started doing weight watchers and stopped eating and drinking wine at night. One thing I love to eat that is easy and gluten free for lunch is a can of tuna, a 1/2 cup of cottage cheese and a 1/2 can of green beans (mixed up and heated in the microwave). Sounds gross, but I love it! Good luck!

I was diagnosed with celiac in Feb 2005 and have been gluten free ever since. My problem is that ever since I started the diet I continue to gain weight, I went from 150 to 218. I've begun an exercise routine, tried dieting, and end up missing lunch a lot. Does anyone have any suggestions for healthy recipes or ways to lose weight because I'm getting married in about half a year and I want to look my best. Please help! :(
janjal Newbie
I gained weight too when going gluten free. I started doing weight watchers and stopped eating and drinking wine at night. One thing I love to eat that is easy and gluten free for lunch is a can of tuna, a 1/2 cup of cottage cheese and a 1/2 can of green beans (mixed up and heated in the microwave). Sounds gross, but I love it! Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
megsbaby Newbie
I've begun an exercise routine, tried dieting, and end up missing lunch a lot.

It's great you have begun an exercise routine. I noticed you mentioned that you miss lunch alot. Missing meals might add to the problem. Eating regularly throughout the day and NOT skipping any meals/snack times is important. I met with a dietician/nutritionist recently who really stressed the importance of this for all people. Eating breakfast, snack, lunch, dinner and snack keeps your body's metabolism up all day.

I am sure you will have great success!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      High TTG-IgG and Normal TTG-IgA

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      High TTG-IgG and Normal TTG-IgA

    3. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    5. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.