Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Taste And Smell With Food Is Off - Part Of Nausea?


Nuala

Recommended Posts

Nuala Newbie

I am on week two of gluten free. Luckily, I have a long-standing interest in nutition, which has been helpful, in the process of remaining gluten-free. I must admit, I made an error in eating chinese food the other day, totally slipped my mind that the sauces, esp soy would have a gluten component. I felt so bad the next day, that it showed what improvement I made even over the two weeks, that I had not originally noticed, because it was so gradual. I can actually focus my eyes, and don't feel like I am in a complete fog all the time.

I am also a thyroid disease sufferer (hypo) and have been confounded as to why after treatment my "brian fog" had not lifted. Well, now I know that gluten intolerance was mimicing some hypo symtoms.

Anyway, I had tried to go gluten free last month, but gave in after 6 days due to the severe dizziness and nausea. I felt a palpible sense of relief after I ate a large quantity of pretzels. :( During the desperation period, I searched the web looking for "withdrawal" symptoms and going gluten free. I only half thought that it could exist, and to my surpise it does! Wow!. I wish someone had mentioned it to me.

Well, I am back at try two, and know my life it at stake. It is the only thing keeping me from nibbling on all the goodies around the house - filled with gluten. I have reached again the nausea phase. I feel "gaggy" all day, hungry but simultanouesly repulsed at the actual look, smell and taste of food.

I am wondering if anyone else has had such a reaction? Food tastes off, for instance, I just tried a piece of cheese, and it tasted nasty. The meat cooking this evening smelled rancid and made me sick to look at. I ended up having a piece of gluten-free bread, which was not too bad. I guess I should stay on a bland diet for the time being?

Any advice on this phenomeon welcome, and also and info on how long this might last. Fortunately, I have not felt dizzy this time, but maybe that is around the corner...though I hope not!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Darn210 Enthusiast

I'm not sure this will be of much help, but I did read somewhere on here that people needed to make adjustments to their meds . . . especially something like thyroid meds where the dosage is determined by blood tests and your bodies response. As your gut heals, you will do a better job of absorbing your meds. Do any of your symptoms act like your getting TOO much of any of the medications that you are on. It may be too early for this type of situation so keep it in mind for later down the road. And I wouldn't change your meds without talking to your doctor. Just a suggestion. Good Luck and stick with it! :)

loco-ladi Contributor

I still remember week 2...... vividly I also had a bit of the same things you do.

Look ahead to week 3 if you follow my footsteps anyways, thats when the craving will start in full force.... use these to your advantage, you crave those pretzels go find some but make sure they are gluten-free (gluten free) its a task in itself but worth the effort (I am munching on gluten-free pretzels even now) I got tired of fritos and plain old chips so went and found me some. the first bite was a bit of a shocker but, after a few they taste more and more like the ones back in the "olden days".

and might I just say ......

go Nuala, go Nuala, you can do it!

Nuala Newbie

Thanks for your replies!

I dont think it is due to my thyroid medication, but I am keeping an eye on it. I take my thyroid medication sublingually, so I don't have to worry about any malabsoprtion issues. I still don't have any dizziness this time around after I started gluten-free again, so who knows what happened.

Yep. The craving are definately getting more intense. I did try the gluten-free pretzels the other day, bough a small bag, since I wasn't prepared to part with 6 bucks for a full sixed bag. I could imagine being satisfied with them. I have been trying to stick with popcorn, but the variety of "crunchy" snacks is definately lacking. I am still 30 pound overweight which I put on about 4 years ago when the thyroid function totally ceased. I am not yet on a high nenough dose or my body's metabolism has not yet responded to the thyroid meds. I can't lose no matter what I do. So.....potato chips and other fatty gluten-free snack alternatives are definately out, which, incidentally, I would LOVE to be eating. I have tried the baked chips, but they are not as satisfying. Same with french fries. I guess I will just have to get used to the idea that convenience food is no longer an option for me, and I will have to make my own oven fries from fresh potoates sprayed with a little non stick spray, for instance, and make my own baked goods.

Well, I have always wanted to cut out the processed foods and go totally "healthy", and now I have my wish! Though it is a lot more difficult and time-consuming than I imagined.

thanks for the cheer, loco_ladi :D I am going to try my best.

JNBunnie1 Community Regular

If you're getting bored with other snacks, try taking sweet potato and slicing very thin width wise, then bake flat on a cookie sheet ( I use melted butter on both sides) til dry on top, flip, bake til crispy. Much more yummy than almost any snack you can think of.

Nuala Newbie

That sounds great! I had not even considered the sweet potato. I am down in Florida, so it is still warm here and I have not really gotten into my autumn mindset and associated foods. I am sure it will be yumm! :)

JNBunnie1 Community Regular
That sounds great! I had not even considered the sweet potato. I am down in Florida, so it is still warm here and I have not really gotten into my autumn mindset and associated foods. I am sure it will be yumm! :)

Oh, my, well, I might wait til using the oven wouldn't be a life threatening proposal...... :P

Also, for some reason, dried apricots have always been my favorite 'nongluten' snakc food, when I crave something gluteny. If it's really bad, then it's chocolate covered apricots.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,469
    • Most Online (within 30 mins)
      7,748

    Jcarder
    Newest Member
    Jcarder
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.