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Catching Gluten Sensitivity Early


jasonD2

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jasonD2 Experienced

After 5 yrs of digestive problems i finally decided to get an entire gastro/food allergy/blood/hormone workup. i'll have the results in a few weeks but i just found out from enterolab that i have elevated gliadin anitbodies. If ive had this sensitivity for 4-5 yrs, is there a chance I could develop stomach cancer? i'm worried that all the problems ive had are gonna cause long-term problems for me. my maternal great grandma and grandma both died of stomach cancer but they had terrible diets and never went to doctors. my mom has ibs and diverticulosis, but is now 65 and very healthy otherwise. u think i caught my problems early?


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MammaW Newbie

I don't about the stomach cancer part, but I do know that the damage to the intestines can heal. I am not even sure that there is any specific damage to the stomach itself, I have only read about the damage to the intestines-never the stomach though. I know that certain cancers do run in families, so I would just make sure that your gastroenterologist knows every little detail about your family history and keeps a very close eye on you....regardless of how the celiac stuff turns out.

Keep us posted!

kbtoyssni Contributor

I don't know for sure, but going gluten-free at this point is really, really going to decrease your chances of getting cancer int he future. You might have a slightly higher risk than the general population, but the average length of time it takes to diagnose celiac is 11 years so I'm thinking you're doing better than most of us :) I wish I could give you a better answer, but you're doing everything right now, and it's not like you were knowingly harming your body the past few years. You can't change the past, so focus on the future and keeping yourself healthy.

gfpaperdoll Rookie

I think from day 1 a healthy diet helps you avoid cancer. I read somewhere that people with celiac have a higher rate of cancer until they have been gluten free for 5 years when their cancer rate then equals that of the general population. Not sure where I read that... But I am also sure that varies, that could be only for people that have advanced villi damage...

Guest andie

Just a couple of things.

Are you sure your grandparents both had stomach cancer? It would be unlikely that a great grandmother ever had a scope or CT. It may very well have been bowel cancer as it would act similar in symptoms with an obstruction.

Regardless, any tracing of lines with one type of cancer should be monitored closely. If you are in Canada they recommend yearly colonoscopy, EGD for bowel cancer history.

You were born with celiac disease. Some people are more sensitive then others and significant damage will be done before symptoms appear. Has something happened in the last 5 years that you would consider a 'trigger'?

Andie

jasonD2 Experienced

well 5 years ago i had a bout of gastroenteritis and it happened at the worst possible time...right after finishing up a 4 month course of antibiotics and during an extremely stressful time in my life. that sound like a trigger to you?

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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