Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Double-dip

miles2go

By miles2go
in Coping with Celiac Disease

Recommended Posts

miles2go Contributor
miles2go
Posted

Hi all,

Had my endoscopy/colonoscopy on Monday and am awaiting biopsies on the one polyp and the test for celiac, which seems a little ironic after almost two years of being gluten-free. I'm not absorbing iron and so my PCP wanted me in for what I imagined was the worst, or course. Even though awakening during the colonoscopy to what was about 20 seconds of excrutiating pain, I have to say that overall, it really isn't that bad and I'd recommend that anyone reading this board who personally has these issue get that procedure done. It is a great comfort to know that things on the inside aren't really as bad as one might think and since we're at greater risk for lymphoma...anyways, off my soapbox.

I have a beef, though. The wonderful medical professionals that I find here in downeast Maine seem to be in all the odd places, the dietician, the dermatologist, the health-risk assesment nurses at the fitness center, not where I want them, like my GI doctor!! Yeesh. Apparently I have mild diverticulosis and he wants me to eat more fiber. Now I was vegetarian before this gluten-free thing came up and I yearn to go back there, but I am eating the minimal amount of meat that I need in order to get protein, since I have allergies to beans. I think I can eat some. My usual diet is veggies, fruits, dairy products, which I seem to tolerate well and I've kind of been alternating veggie weeks with light carnivorous weeks. I don't eat a lot of grains, but when I do, they're usually of the brown rice type with some sorghum, kasha, and non-GM corn. I'm allergic to corn but have never figured out what my reaction to that is...

So, I have excellent blood pressure, cholesterol and weight and my problem is usually D, not C and I've been told by two different sets of medical professionals to a.) cut back on the veggies (seriously!) and b.) eat more fiber.

Does anyone have any good advice? I can't trust these guys.

Sorry for the long-windedness,

Margaret

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


miles2go Contributor
miles2go
Posted
  • Author

Ooops, found all I needed in the Doctors section, where I prolly should have posted in the first place. :)

In the words of the great Roseanne Rosannadanna...

*never mind*

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to MagsM's topic in Related Issues & Disorders
      18

      Inflammation and Menier’s disease link?

      Okay, so the term was being used loosely and informally, then.
    2. MagsM
      - MagsM replied to MagsM's topic in Related Issues & Disorders
      18

      Inflammation and Menier’s disease link?

      Hi Trents, yes classic Alzheimer's is caused by plaque build up but the diagnosis of Alzheimer's often covers other types of cognitive decline including mild cognitive impairment, short term memory loss and vascular dementia which are all of the issues that my Mom has. She does not show any plaque build up on MRI.
    3. trents
      - trents replied to MagsM's topic in Related Issues & Disorders
      18

      Inflammation and Menier’s disease link?

      Alzheimer's is caused by a buildup of beta amyloid plaque tangles in the neurons. I don't see how that would be influenced by hearing loss. I can see where sensory deprivation could contribute to mental decline in indirect ways but Alzheimer's is a disease with a biochemical base.
    4. MagsM
      - MagsM replied to MagsM's topic in Related Issues & Disorders
      18

      Inflammation and Menier’s disease link?

      Thank you all for your feedback. I did see the Consultant Otolaryngologist today and unfortunately she is not doing any research into potential functional immune or inflammatory mechanism that could be driving Ménière’s. My Mom was diagnosed with Meniere's at my age (58) and then did develop Alzheimer's in her 70's. The consultant mentioned that my Mom's A...
    5. Scott Adams
      - Scott Adams replied to RMJ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Damage after 13 years gluten free

      Your frustration is completely understandable—after 13 years of strict gluten-free living and mostly normal antibody levels, it’s disheartening to still see biopsy evidence of lingering damage, especially without clear guidance from your GI. The subtle improvements (like "focal" vs. "patchy" changes) might suggest some healing, but the persistent villous blu...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,109
    • Most Online (within 30 mins)
      7,748
    Betsyhoff
    Newest Member
    Betsyhoff
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Inflammation and Menier’s disease link?

      By trents · Posted

      Okay, so the term was being used loosely and informally, then.
    • MagsM
      Inflammation and Menier’s disease link?

      By MagsM · Posted

      Hi Trents, yes classic Alzheimer's is caused by plaque build up but the diagnosis of Alzheimer's often covers other types of cognitive decline including mild cognitive impairment, short term memory loss and vascular dementia which are all of the issues that my Mom has. She does not show any plaque build up on MRI. 
    • trents
      Inflammation and Menier’s disease link?

      By trents · Posted

      Alzheimer's is caused by a buildup of beta amyloid plaque tangles in the neurons. I don't see how that would be influenced by hearing loss. I can see where sensory deprivation could contribute to mental decline in indirect ways but Alzheimer's is a disease with a biochemical base.
    • MagsM
      Inflammation and Menier’s disease link?

      By MagsM · Posted

      Thank you all for your feedback. I did see the Consultant Otolaryngologist today and unfortunately she is not doing any research into potential functional immune or inflammatory mechanism that could be driving Ménière’s. My Mom was diagnosed with Meniere's at my age (58) and then did develop Alzheimer's in her 70's. The consultant mentioned that my Mom's Alzheimer's could have been triggered from the hearing loss due to the Ménière’s. She then went into worst case scenarios which freaked me out entirely (full hearing loss and cochlear implants)! Apparently it is very important to keep those neural pathways (hearing, balance vision etc.) fully functional to stave off potential brain...
    • Scott Adams
      Damage after 13 years gluten free

      By Scott Adams · Posted

      Your frustration is completely understandable—after 13 years of strict gluten-free living and mostly normal antibody levels, it’s disheartening to still see biopsy evidence of lingering damage, especially without clear guidance from your GI. The subtle improvements (like "focal" vs. "patchy" changes) might suggest some healing, but the persistent villous blunting and lymphocytosis raise valid concerns about ongoing low-level inflammation, cross-contamination, or even refractory celiac disease (though your normal antibodies make this less likely). It’s especially frustrating when your symptoms (nausea, pain) are dismissed with generic advice, and communication feels like a game of telephone...
×
×
  • Create New...