Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could The Fog Be Lifting?

fkewatson

Recommended Posts

fkewatson Rookie
fkewatson
Posted

Hi - it's been a long time since I've posted anything, but we think we may be beginning to see the first benefits of being gluten-free with my 4 year old son (whom I need to mention has severe verbal apraxia and is completely non-verbal). It was 11 weeks this past Tuesday and this week has been amazing. He has begun to initiate going to the potty (he has been fully trained for some time now but we would have to take him - he would just hold it until we did). Now this week he is going into the bathroom and taking care of business on his own. His stool has begun to normalize (from chronic steatorrhea, not diarrhea) and he has become more responsive and focused. He is able to regulate his actions better in preschool (i.e. he is sitting for longer periods of time before getting up and wanting to run or wander around, and is giving me more verbalizations. There are other things that I can't even think of to mention right now - but it just seems like the "brain fog" that I hear people talk about is finally lifting. Poor little guy - he was on gluten his whole life up until 11.5 weeks ago and if not for the grace of God we still wouldn't know (the genetic Celiac test came back as "normal", but about 13 weeks ago a wonderful doctor took it upon herself to have an HLA expert read the results and she interpreted it as him having the genetic profile for "non-Celiac gluten sensitivity". So we went on the diet and my goodness, it appears it might be working!

Does his new behavior sound like it could be the gluten-free diet is beginning to pay off here on the fringe of the 3 month mark?

Am I hopefully in for bigger and better treats as the weeks go on?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfpaperdoll Rookie
gfpaperdoll
Posted

I am so happy for you with the progress your son has made - that is just wonderful.

Have you also eliminated dairy? You might also do that as a lot of these kids cannot handle dairy & I would not add in soy, no one needs soy or dairy...

be sure to watch for cross contamination, now that he has been gluten-free for 3 months, he is probably going to be more sensitive to gluten now...

I am so excited for you, keep us posted!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Ginger38's topic in Related Issues & Disorders
      13

      Shingles - Could It Be Related to Gluten/ Celiac

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    2. knitty kitty
      - knitty kitty replied to Ginger38's topic in Related Issues & Disorders
      13

      Shingles - Could It Be Related to Gluten/ Celiac

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    3. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      13

      Shingles - Could It Be Related to Gluten/ Celiac

      Thank you for the links to the articles. Interesting reading. I'll be telling my brother in law because he has a lot of pain
    4. chrisinpa
      - chrisinpa commented on Scott Adams's article in Additional Concerns
      5

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Oh my......will the danger never end? It has seemed like no matter what we do or have done the odds were/are against us. Next they'll tell us that just looking at wheat will be dangerous. Oh well....hang in there.
    5. trents
      - trents commented on Scott Adams's article in Winter 2026 Issue
      2

      Why Celiac Diagnosis Still Takes Years—and How to Change That

      Our understanding of that is very incomplete at this time. There are theories and it seems to involve multiple factors. We know there is a genetic component but that is far from the total answer since 40% of the general population has the genetic potential to develop celiac disease but only 1% actually does. Other suspects are the indiscriminate use of antibiotics...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,569
    • Most Online (within 30 mins)
      7,748
    CV327
    Newest Member
    CV327
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.