Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could The Fog Be Lifting?

fkewatson

Recommended Posts

fkewatson Rookie
fkewatson
Posted

Hi - it's been a long time since I've posted anything, but we think we may be beginning to see the first benefits of being gluten-free with my 4 year old son (whom I need to mention has severe verbal apraxia and is completely non-verbal). It was 11 weeks this past Tuesday and this week has been amazing. He has begun to initiate going to the potty (he has been fully trained for some time now but we would have to take him - he would just hold it until we did). Now this week he is going into the bathroom and taking care of business on his own. His stool has begun to normalize (from chronic steatorrhea, not diarrhea) and he has become more responsive and focused. He is able to regulate his actions better in preschool (i.e. he is sitting for longer periods of time before getting up and wanting to run or wander around, and is giving me more verbalizations. There are other things that I can't even think of to mention right now - but it just seems like the "brain fog" that I hear people talk about is finally lifting. Poor little guy - he was on gluten his whole life up until 11.5 weeks ago and if not for the grace of God we still wouldn't know (the genetic Celiac test came back as "normal", but about 13 weeks ago a wonderful doctor took it upon herself to have an HLA expert read the results and she interpreted it as him having the genetic profile for "non-Celiac gluten sensitivity". So we went on the diet and my goodness, it appears it might be working!

Does his new behavior sound like it could be the gluten-free diet is beginning to pay off here on the fringe of the 3 month mark?

Am I hopefully in for bigger and better treats as the weeks go on?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfpaperdoll Rookie
gfpaperdoll
Posted

I am so happy for you with the progress your son has made - that is just wonderful.

Have you also eliminated dairy? You might also do that as a lot of these kids cannot handle dairy & I would not add in soy, no one needs soy or dairy...

be sure to watch for cross contamination, now that he has been gluten-free for 3 months, he is probably going to be more sensitive to gluten now...

I am so excited for you, keep us posted!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,005
    • Most Online (within 30 mins)
      7,748
    Ellen Watts
    Newest Member
    Ellen Watts
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these...
×
×
  • Create New...