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Best Celiac Shopping Lists/guides?

dmchr4

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dmchr4 Apprentice
dmchr4
Posted

I've seen that the CSA has a shopping list/guide for $20 (last updated 2003), and there's one at www.clanthompson.com for about $6. I saw a 2004 one on ebay for $4.95.

Are these guides worth it? Are there other ones? Which one is the best? Or do you all just do your own research?

Thanks!

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celiac3270 Collaborator
celiac3270
Posted

There are some Clan Thompson lists, too....you can get previews, kinda, or buy the lists...updated annually.

To be honest, I don't really like using lists, so I'm not the best person to answer this. I would give you the link to the latest 50 page adobe file list...... :D , but I have it as a favorite place on AOL, which hasn't been working for awhile (so I'm checking by aol.com...etc.).

gf4life Enthusiast
gf4life
Posted

Here is the direct link to the list I believe celiac3270 is referring to.

I use this list and a Gluten-free Casein-free guidebook I bought to help me narrow down our choices. I find this list the most helpful for mainstream products. You still need to be reading EVERY label on everything you buy, but this list is free and it will get you started on figuring out what you can eat. I've heard the CSA book isn't worth the money.

Open Original Shared Link

God bless,

Mariann

Rikki Tikki Explorer
Rikki Tikki
Posted

I have the Clanthompson list downloaded on my computer. It has a lot of useful information. The only problem with it is that I can't take it with me to the grocery store.

celiac3270 Collaborator
celiac3270
Posted

Yes, Mariann...that was the list :D

Guest Lindam
Guest Lindam
Posted

;) I purchased the book and still found myself looking at every label, because companies change the ingredients, processes or whatever. The book was helpful for telephone numbers and website, but to be honest with you, don't waste your money. I took the book out for the 1st month after being diagnosed, and not since.

:) Linda

dmchr4 Apprentice
dmchr4
Posted
  • Author

Thanks for the great online list and for the advice not to buy one!

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stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

I go shopping with the glutenfree list to which Mariann posted the link. I printed it out, put it in a folder and take it with me to Giants and WalMart. Nobody ever said anything.

tpineo Rookie
tpineo
Posted

I have tried the delphi list, mac list, csa list, and clan thompson list. They are all helpful resources since sometimes one has information the others don't. However, I agree that carrying them all into the store is a pain. I purchased the Clan Thompson program for a palm pilot and found this much easier and quite helpful. So if you have a palm or can purchase one this may help. I was also able to download a lot of other lists of gluten-free information into the palm, too which makes traveling easier. Hope that helps. Tania Greenville, PA

This is the link for the palm program:

Open Original Shared Link

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    • rei.b
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      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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