Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I At The Right Place?

district519

By district519
in Related Issues & Disorders

Recommended Posts

district519 Newbie
district519
Posted

recently i have been getting these itchy spots on me, pretty proportional on the body ( 3-4 on left arm ) ( 3-4 on right arm ) and so on... itchy guys, annoying!

Cant sleep at night untill really really late 4-5am

when i do sleep i wake up every 2-3 hours find my self wide awake doing whatever, eating, music, tv, going for a ciggaret.... pissing me of really....

the craziest part is every now and then i get some f'en messed up dreams very real! like i'm being killed by demons, satan pretty creepy, usualy wake up pray and fall asleep.

I learned to control the dreams when i was younger i got dreams like this with demons and satan, and screamed really loud, but learned to control them.

Sometimes i sleep walk, for instance my mom said i went in her room while she was sleeping took her blanket off her and i asked her what she was doing? she said she tried talking to me and nothing, and that i really creeped her out.

i do eat corn, starch anything that includes gluten.... could this be why?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I would go to a sleep clinic to find out what's going on.

Have you seen a doctor about this?

district519 Newbie
district519
Posted
  • Author
I would go to a sleep clinic to find out what's going on.

Have you seen a doctor about this?

nope havent seen anyone, i made an appoitment for tomorrow... ill let you know what he sais

district519 Newbie
district519
Posted
  • Author

well he said it not celiac, he didnt do any blood tests or nothing, i know from research on my own it has to be celiac..

he gave me meds something called APO-CEPHALEX / CEPHALEXIN 205mg / ORNG/OBL

he said if these itchy dots dont stop growing by monday to go see him again.mmmm

  • 2 weeks later...
byrmanson Rookie
byrmanson
Posted

If it were me, I would do the gluten free diet correctly for a few weeks and see if you find positive results. That or seek out your own tests from a lab. However, start with the obvious... go to a sleep lab if this continues?

YoloGx Rookie
YoloGx
Posted
If it were me, I would do the gluten free diet correctly for a few weeks and see if you find positive results. That or seek out your own tests from a lab. However, start with the obvious... go to a sleep lab if this continues?

I have trouble sleeping too. Have all my life. Getting to sleep is rough. I figured out years ago to just keep busy til I drop. Of course this makes it hard to deal with the "real" world. Great for doing art. However I do both worlds since I manage a business--though by being the boss it means I don't have to always be there in the morning. Believe it or not having this condition has made me emphasize getting down to practicalities as quick as I can as well as using and developing my imagination. I am very good at creating strategies and figuring out problems. Probably from all that time I spent being ill. It gave me plenty of time to think about things and get down to basics.

I want to try the melatonin and see if it works. Definitely for me taking vitamin D (cod liver oil) and especially important co-enzyme B vitamins and L-glutamine with water on an empty stomach does wonders. Also anti scarring stuff like nattokinase and/or bromelain/papain combos really help. The co-enzyme B-vitamins stopped most of the leg twitching and pain. However due to an old injury I also do the nattokinase bromelain/papain plus if its bad hatha yoga which calms the mind and body.

An anti gluten diet is a matter of course. I didn't realize though that such small amounts like being around gluten cat food could cause a sleep disturbance. I will definitely have to check on this. Currently I don't touch the stuff but do pour it and then mix in some brewers yeast/garlic stuff with a spoon.. Its hard to always get completey gluten free cat food. Any suggestions?

I have found that taking herbs too like dandelion root and yellow dock root alternated with oregon grape root help the body detox. I think celiac creates a condition that leads to general toxicity which is hard on the liver as well as the intestines and downwind the kidneys. Toxicity creates bad dreams believe you me. As well as ear ringing and having visions. I used to have bad ear ringing but for me using detox herbs and change of diet plus exercise made it go away. It took the co-enzyme b vitamins however to help feed my nervous system and deal with digesting basic carbs and proteins--without which I was rapidly deteriorating despite all my best efforts with diet and herbs etc.

About the ear ringing--change the diet and detox yes. But for some its also caused by a wax build up. Not my problem though it is for a friend of mine who also has celiac.

Things that soothe and heal the gut lining are also good--like marshmallow root and slippery elm and pao de arco (this last also a good anti fungal).

Eat early in the evening too rather than late.

Doing art of course is great. Sounds like you could use something to focus your imagination on. Poetry has also helped me. I often write or do art inspired in the night especially if life will permit or even when it doesn't. You can direct what you decide to focus your imagination on.

Jungian psychology and even re-evaluation co counseling have been of great help to me too. Needless to say having gluten intolerance just doesn't often spring up out of nowhere. Often the family and forebears are involved having created a whole line of possible crazy intolerant behaviours and fears out of ignorance of this condition. So the psychological and emotional effects need to be dealt with as well as the physical food.

Doing protective grounding also sounds like it might possibly be valuable. It has been so for me. There are books on psychic protection that are useful. Also things like the Berkely Psychic Institute could help. Simply imagining a grounding cord from your lowest chakra to the center of the earth and letting all anxieties and all that is not you (other people's energy or entities etc.) go down the grounding cord to get burned up by the great mother earth's core and released to the universe. Similarly imagine a silver cord going from your highest chakra to the universe and pulling in clean energy from All That Is or whatever it is you believe in as Positive Light Energy. Ditto with pulling in the Clean Earth Energy from the lowest chakra. Imagine all that energy cleaning out and filling your auric field and then let the excess go down your grounding cord. Then imagine protective roses or whatever keeping guard at the edge of your auric field and then periodically do the grounding again. I often do this when I am driving but sometimes do it at night. Really I find it helps. You might too. That over developed imagination is usually good for something I find after all.

Hope some of this helps!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    2. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    4. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    5. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748
    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.