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Lactose Intollerance And Celiacs


Krystens mummy

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Krystens mummy Enthusiast

Hi all, I hope someone can help me. My child is gluten intollerant with all the signs of celiacs(including DH). She hasn't been formally tested as she is just 12 mths old. I have heard somewhere that celiacs are often also lactose intollerant. I have also heard that celiacs can also sometimes tolerate yoghurt because it has a and b cultures in it and this helps break down the lactose. Now my daughter has been gluten free for about three months and all signs of the gluten are out of her system. She eats yoghurt with no reactions. She is on a lactose based formula (here is where it gets tricky) The formula contains bifidus cultures found in yoghurt. She is fine with this. Over the past week I have been giving her small amounts of cows milk in with her formula. She has had diarrhoea like with the gluten but not as severe and the eczema has returned but also not as severe. I am wondering wherther the bifidus in the formula is helping her tolerate it?She is on heinz nurture gold follow on (we live in australia) I also should mention that she ate some gluten free crackers recently with msg on them however she has had them before with no ill effects. All comments are welcome. Thanks for your help


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lmvrbaby Newbie

It sounds like with the cows milk she is having the reactions. Maybe you need to try rice milk or soy milk. You could always ask the pediatrician. After being diagnosed with celiac and going gluten free to help recover most people have to go off dairy. It was about a year after I went gluten free that I had problems with dairy and I went off it for about 6 months before re-introducing it back into my diet. But it wasn't everything dairy, just milk and cheeses. I did fine with ice cream (gluten free of course) and yogurt. Change your childs milk, if any questions ask the doctor, hoepfully they will be able to help. :rolleyes:

rmlacoste Newbie

It's my understanding that when gluten attacks the cells which help break down proteins they get so destroyed that other proteins typically broken down easily don't get broken down which can cause reactions. (Thus, the inability to process dairy.)

My son is gluten free and dairy free. He has tollerated little bits of dairy here and there, but whenever gluten has accidentally gotten into his system, he has a difficult time with any dairy as well as meat and soy proteins.

We basicly eat vegan, gluten free with very little soy.

It's difficult, but worth every effort knowing if we don't eliminate the proper foods it's awful for my son!

Eliminating foods that cause even the slightest discomfort is the best way for healing to begin.

Listen carefully to our bodies which are trying so desperately to tell us something!

:)

shan Contributor

My daughter, nearly a year on, still gets exzema from dairy. I give her soya milk, although i do give her cheese every so often, and dairy chocolate ;) Yes she itches and i have to put loads of cream on, but i can't deprive her of everything. BUT i can't tolerate dairy so at least i know where the dairy thing comes from :D

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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