Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iron Deficiency Anemia


MommyStina

Recommended Posts

MommyStina Rookie

I was diagnosed only about six weeks ago, but the doctor who diagnosed me had very little to say about the disease and offered little help or direction. He also did not do any other blood tests to tell whether or not there were other nutritional deficiencies present other than the obvious. I have lost a lot of weight and have very little energy even though I have been eating a lot more and a lot more often than before. I was just wondering if anyone can tell me what the symptoms of iron deficiency anemia are and what do I do about it. I have an appt. to see a celiac disease specialist in Chicago on the 31st of this month, so I am trying to get "well" in the mean time. Maybe they would test for other things...I don't know.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Open Original Shared Link has some information, as does Open Original Shared Link.

the main symptoms are fatigue, weakness, headache, and irritability. decreased appetite and odd food cravings are also symptoms. obviously, that overlaps with a lot of other things, and they test for it by doing a couple of different blood tests. how to treat it, however, depends on the cause. anemia isn't always cause by iron deficiency, so it's important to find out what is causing it, and if it is caused by iron deficiency (or another deficiency, such as b12) what's causing that - sometimes, it's just the malabsorption.

  • 2 weeks later...
davis85 Newbie

I discovered that I have iron deficiency anemia when I went to the ER with shortness of breath and mild chest pressure (these were my only symptoms). A CT scan also discovered a large tumor in my stomach which turned out to be non-Hodgkins Lymphoma (dx 11/07). I've been taking 225 mg of iron daily for two months but my RBC, HGB and HCT levels remain low. Ferritin, Iron and % saturation levels have improved to the low end of the normal range and TIBC levels remain high. My oncologist feels that the IDA is a result of bleeding at the site of the tumor but my own IDA research led me to celiac disease and alot of what I learned about celiac seems to fit. I'll be tested for celiac on Wednesday.

Stay on top of your iron levels. Your IDA could be due to many things so continue to search for the cause.

disneyfan Apprentice
I was diagnosed only about six weeks ago, but the doctor who diagnosed me had very little to say about the disease and offered little help or direction. He also did not do any other blood tests to tell whether or not there were other nutritional deficiencies present other than the obvious. I have lost a lot of weight and have very little energy even though I have been eating a lot more and a lot more often than before. I was just wondering if anyone can tell me what the symptoms of iron deficiency anemia are and what do I do about it. I have an appt. to see a celiac disease specialist in Chicago on the 31st of this month, so I am trying to get "well" in the mean time. Maybe they would test for other things...I don't know.

I have also suffered from low iron for years until I discovered celiac and gluten free information. My symptoms were similar to the last postings, fatigue, weakness, irritability. I also had heavy periods and had terrible restless legs at night and while sitting in the car for long periods of time. I had those awful looking dark circles under my eyes. I was always underweight too.

I noticed that once I went gluten free almost immediately my restless legs stopped and the dark circles were gone after a few weeks. I have lab work done frequently and my hemoglobin levels are now fine. Ferritin is also the other test they need to run. I feel my low iron was due to malabsorption but you do need to rule out any source of internal bleeding. A doctor told me that if you are anemic, you tend to gain weight because your metabolism slows down and you are so exhausted. It's possible the reason why you are losing weight and feel so exhausted is due to malabsorption because you are not getting the nutrients no matter what you eat. I did gain weight after going gluten free.

Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.