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Feels Like Ice Going Up Body

dmchr4

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dmchr4 Apprentice
dmchr4
Posted

Well, 8yo dd has been eating a little bit better the last few days. I've been trying to give her more bland foods and I wonder if she may have been getting some contamination.

But the last three days or so she's told me that she gets a weird feeling that starts in her feet and moves quickly up through her whole body. She says it feels like ice going up her body. Is this a celiac thing too? She's told me this has happened about 3 or 4 times. Could she have a few more weird things happen to her??

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darlindeb25 Collaborator
darlindeb25
Posted
<_< its hard to tell what that means without feeling how she means i guess--it could mean there is something else wrong or it could be that she is having a reaction to some other food intolerance--my soy intolerance reacted differently then my wheat does--i would just keep an eye on her now and occasionally ask her if it is still happening :) deb
FreyaUSA Contributor
FreyaUSA
Posted

It could be from the celiac disease. There are quite a few people here that have had some degree of nerve damage caused by gluten (it runs in my family.) It usually effects the extremities: hands up arms, feet up legs. Numbness, tingling, pain are the usual descriptions, though. Did she ever have this happen before going gluten-free? If so, it could be just a number of things happening that are causing it to flare up (even a withdrawel symptom or maybe an accidental gluten ingestion?) However, if she didn't, like Deb said, it could be caused by something else. (Fyi, if it is gluten related, it shouldn't get worse and, over time, should heal as she stays gluten-free.)

judy05 Apprentice
judy05
Posted

I had a weird reaction when I first started to go gluten-free.

Everytime I consumed rice I would get an overall

body chill to the point I would shiver and have to

wrap up in a heavy blanket. To some extent I

still get it especially this winter, I am constantly

adjusting the thermostat.

  • 2 weeks later...
dmchr4 Apprentice
dmchr4
Posted
  • Author

Well, she never mentioned having this before going gluten-free. Now it seems like it's been happening more frequently. I'll have to pay better attention to when it happens and if it is food related.

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    • Resada
      Work friends & food

      By Resada · Posted

      Yeah, that one is always hard, especially since life seems to revolve around food. That happened to me 2 weeks ago with hibachi and with Hungarian hot dogs. I used to be more picky, but now I would love to try all the things if I could. On the bright side, my husband is absolutely wonderful with it, and his mom often brings a few certified gluten-free things to family get-togethers just for me (and tries to make sure main dishes are safe too). Having the people closest to you be supportive can make a huge difference. 
    • trents
      Work friends & food

      By trents · Posted

      I hear you. My extended family is very good about factoring in my celiac disease safety needs when making family celebration meal plans but sometimes it breaks down in the spur of the moment decisions to "Oh, let's go out and get some teriyaki" or the like. Especially when my brother in law comes into town 'cause he's pretty particular about what he likes to eat. So, sometimes I just say, "You guys go ahead without me. I'll find some leftovers." But, still, I admit to feeling a little left out at such times and a little like a 5th wheel.
    • Resada
      Work friends & food

      By Resada · Posted

      Same, and I appreciate your comments. I just needed to get it off my chest. Sometimes, even when its a genuine mistake, it can feel all too hurtful and I didn't want to go back to work tomorrow still in my feelings. 
    • trents
      Work friends & food

      By trents · Posted

      Yes, probably slipped his mind. Grace is in order here is my thought.
    • Resada
      Work friends & food

      By Resada · Posted

      I should have added that, while I dont have access during the meetings, I do as soon as I leave them (same for him) so I would have seen before I even left work. He has my number since we've needed to coordinate by cell a few times for work and other stuff. I usually have a protein bar or two in my desk for emergencies so I could have grabbed one of those and gone to meet them at the right restaurant.  Someone else decided on the change of restaurant and it must have slipped his mind that I wasn't coming back to my desk.
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