Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

15 Month With Possible Celiac


Blainesmom

Recommended Posts

Blainesmom Newbie

I need help. My son has lost weight since his 12 month well check. He has diarrhea off and on, sometimes up to 6 or 7 a day. He has horrible allergies and eczema. He was put on Elecare at 3 mos of age due to diarrhea and blood in his stool. We are being worked up for celiac disease. Here are his lab results, can anyone help me with these.

Antigliadin Abs IgA- 16

Antigliadin Abs IgG-48

both of which are high.

tTg IgA - 1

tTg IgG- 1

Endomysial Antibody IgA-negative

IgA quant-86

all of which are normal.

We are seeing a GI on Thurs. My pedi told me they would probably perform a biopsy. Did anyone else have elevated antigliadin and normal tTg and still have celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WeThreeEs Newbie

My son was diagnosed at 15 months but not from the GI or his pedi he had seen for over a year. They ran his blood tests at 4 and 9 months but I was told everything was fine. We consulted with an allergist after he started to display worsening malnutrition symptoms, negative growth charts and 7+ loose stools a day. She told us that in the Celiac's panel he had 1 test come back elevated and 2 that were closer to normal but still concerning given his other tests and his symptoms. She also informed us that blood tests and the biopsy often give false negatives in children under 5. Apparently they just have not been reacting to the gluten long enough to have damage that would show on these tests. Hopefully your GI is more aware of Celiac's than ours was. I had to just try it on my own and see. The results were literally miraculous for us. He is sleeping all night which he never did before and is down to 1-2 normal stools a day that no longer look like undigested food but "normal" poop.

As far as the biopsy, It is up to you. To me it seemed pretty invasive for a test that was likely to be inconclusive for his age group. The best diagnostic tool for us was the gluten-free diet. If you do go with the biopsy it will need to be while he is on gluten to see the damage.

I hope that you find the answers you need with the GI. My son has not started to grow again but hopefully he will heal enough to start gaining and growing again. Right now at almost 17 months he is in 6-9 month clothing. I was very hard to have his doctors telling us that nothing was wrong. If he is not growing I think you are doing the best thing by pursuing answers. I wish I had earlier.

April in KC Apprentice
Did anyone else have elevated antigliadin and normal tTg and still have celiac?

Here is a link you might find helpful for explaining why TTG or EMA might be negative in a young child but antigliadin antibodies positive:

Open Original Shared Link

"Young children may not make the some of the

Blainesmom Newbie

Thank you for the reply. I will let you know how the appt goes. Glad your little one is better. :D

My son was diagnosed at 15 months but not from the GI or his pedi he had seen for over a year. They ran his blood tests at 4 and 9 months but I was told everything was fine. We consulted with an allergist after he started to display worsening malnutrition symptoms, negative growth charts and 7+ loose stools a day. She told us that in the Celiac's panel he had 1 test come back elevated and 2 that were closer to normal but still concerning given his other tests and his symptoms. She also informed us that blood tests and the biopsy often give false negatives in children under 5. Apparently they just have not been reacting to the gluten long enough to have damage that would show on these tests. Hopefully your GI is more aware of Celiac's than ours was. I had to just try it on my own and see. The results were literally miraculous for us. He is sleeping all night which he never did before and is down to 1-2 normal stools a day that no longer look like undigested food but "normal" poop.

As far as the biopsy, It is up to you. To me it seemed pretty invasive for a test that was likely to be inconclusive for his age group. The best diagnostic tool for us was the gluten-free diet. If you do go with the biopsy it will need to be while he is on gluten to see the damage.

I hope that you find the answers you need with the GI. My son has not started to grow again but hopefully he will heal enough to start gaining and growing again. Right now at almost 17 months he is in 6-9 month clothing. I was very hard to have his doctors telling us that nothing was wrong. If he is not growing I think you are doing the best thing by pursuing answers. I wish I had earlier.

Blainesmom Newbie

Thanks you so much for the link. It was very helpful. I am anxiously awaiting his appt on thurs. I will let you know how it goes. :)

Here is a link you might find helpful for explaining why TTG or EMA might be negative in a young child but antigliadin antibodies positive:

Open Original Shared Link

"Young children may not make the some of the

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,114
    • Most Online (within 30 mins)
      7,748

    Brysfrys
    Newest Member
    Brysfrys
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zuma888
      Hello, I was diagnosed with Hashimoto's thyroiditis about 3 years ago. At that time I quit gluten and it really helped my symptoms. I hadn't known that I should've tested for celiac before doing so.  Up till recently, gluten would cause my symptoms to flare up, although I never noticed anything with cross contamination, so I wasn't strict about that. But recently, I noticed I could get away with more gluten, and so I decided to do a gluten challenge to see if I had celiac and if I had to be strict. Note that my thyroid antibodies had been decreasing steadily up to this point. My anti-TPO had reached 50 IU/ml from 250 IU/ml (reference range 0-5.6) when I had first been diagnosed. After just a week of the gluten challenge, I measured my thyroid antibodies and they were at 799 IU/ml! I felt fine, but a few days after I started to feel the symptoms. Extreme brain fog, insomnia, diarheaa, fatigue, sleepiness yet cannot sleep, stomachache after eating gluten, nausea, swollen throat (probably due to my thyroid), burping, and gas. I cannot function properly. I'm also worried that I'm killing my thyroid. Should I just quit the challenge? It's been almost two weeks, but the first week I wasn't tracking well, so that's why I didn't want to count it. I can't eat gluten anyway because of my thyroid, but I wanted the diagnosis to know if I should be strict about cross contamination or not.  
    • Zuma888
      You really saved me as I was on day 4 of 3 g per day for 6 weeks. Thank you very much!
    • trents
      Two weeks is the minimum according to the guideline. I would go for four weeks if you can endure it, just to make sure.
    • Zuma888
      Thank you so much! So I can do 10 g worth of gluten in the form of gluten powder per day for two weeks and that should be enough?
    • trents
      It applies to both blood tests and biopsies. Guidelines for the gluten challenge have been revised for the very issue your question raises. It was felt by medical professionals that the longer term but less intense consumption of gluten approach was not proving to be reliable for testing purposes and was resulting in too many false negatives. But do keep in mind that the gluten consumption doesn't have to be in the form of bread slices. It can come in any form: pasta, cake, wraps, etc. Another approach would be to buy gluten powder at a health food store and mix it in a shake. The idea is to get at least 10g of gluten daily, whatever form it comes in.
×
×
  • Create New...