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Newly Diagnosed-- Any Advice Appreciated!

LoriNC

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LoriNC Newbie
LoriNC
Posted

Hi

Our daughter Olivia (6 yrs old) was just diagnosed with Celiac and we are in the beginning and overwhelming stages of the gluten-free diet. Any advice for us from you experienced gluten-free shoppers, lunch makers, tear dryers, etc?? Anything you would tell us to do or not do? buy or not buy?

Also, we had to switch her vitamins and have tried dinosaur shaped ones that are gluten free. She really doesn't like them. Any suggestions for a gluten-free multi-vitamin kids actually like?

Thank you so much!

Lori

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dandelionmom Enthusiast
dandelionmom
Posted

My daughters (7 and 4) really like the book Eating Gluten-free With Emily. Our favorite brands of kid friendly gluten-free stuff:

pancake mix- pamela's

cupcake mix- pamela's

cereal- Dora Stars

bread, bagels, and donuts- kinnikinnick (bread must be toasted)

cookies- ktoos (just like oreos)

pretzels and crackers- glutino

Some of the gluten-free stuff out there is very expensive and not very good. When I'm in doubt, I check here before buying it!

Lisa Mentor
Lisa
Posted

Hi Lori and welcome:

Here is a list of companies who will clearly list gluten (wheat, barley, rye, malt). It will be a great help while shopping.

Open Original Shared Link

mmcdaniels Apprentice
mmcdaniels
Posted

Lori,

I will get easier. My son is 8 and has been gluten free for almost 2 months. We still have a lot of learning to do but are getting some things figured out.

These aren't the most well rounded choices but my son's not good with his fruits & veggies and here are some things we have liked:

The Chebe pizza crust mix is expensive but quite tasty.

Annie's makes an Gluten-Free mac & cheese that both my kids really like. (sort of like Kraft mac & cheese)

Our school lunches have been simplified by the fact that my son is in special ed & his teacher warms leftovers for his lunches in the microwave in the classroom.

Josh really like the gluten-free panty chocolate chip cookies.

Pamela's chocolate cake mix was great.

We liked the Glutino pancake mix (but I wouldn't recommend their breakfast bars).

Trix, Fruity Pebbles, & Cocoa pebbles should all be okay although I've heard to check each box of Trix as their formula has changed a few times.

There are several legal junk food options like plain Lays or Ruffles potato chips or Lays Staxx and many popcorns.

Our Kroger's carries "Allergy Free Foods" chicken nuggets which was Josh's main dietary staple.

The cheap "Carl Buddig" lunch meats are all labeled gluten-free.

Many products at Walmart (juice, dairy, etc) are labeled gluten-free.

I hope that helps a bit.

Marsha

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  • Posts

    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

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      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
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    • trents
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