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High Ttg Level

CeliacSister33

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CeliacSister33 Newbie
CeliacSister33
Posted

I was diagnosed with Celiac Disease last week, a day after I found out I was pregnant. My tTG level was 260. Is this really high? I've gone completely gluten free but I was wondering if there was any way to lower it quicker. Will probiotics help?

I have had one live birth and 4 miscarriages so I now realize this was most likely the cause of at least some of them.

Anyone had a high tTG level like this and gone on to deliver a baby? My level was drawn before I went gluten-free obviously.

Thanks

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gfpaperdoll Rookie
gfpaperdoll
Posted

I just want to welcome you to the board & I am sure someone with the answers to your questions will come along soon.

I am sorry that you have had the miscarriages. That is so hard to go through, I hope you have had a lot of family to support you. {{{{{{{{{{{{{hugs}}}}}}}}}}}}}}

Just learn everything that you can about the gluten free diet. I suggest that you go mostly grain free and eat whole foods, like meat, fish, nuts, fruits, veggies with some good olive oil. Wait till later to try the gluten free crackers & things. I also suggest that you go dairy free and soy free at the same time. You do not need dairy - even pregnant. Do get all your vitamin & mineral levels checked & take supplements - you are going to need them. Most all of us have the same problems, we need the B12 & the D & the calcium & a few other things... Just a hint, even if your B12 level checks out okay take a supplement...

hang around & ask any questions - someone here has been where you are, at what ever stage you are B)

there is a pregnancy thread so if you have not found it yet, you might want to post your questions there.

CeliacSister33 Newbie
CeliacSister33
Posted
  • Author

Thank you so much!!

I do have family support. My sister was also just diagnosed with celiac, as were two of my nieces. We are waiting on the results from my biological daughter (we adopted two daughters as well).

My vitamins were low. My vitamin D was 9. It is back up to 56 now. My B was within normal but it does need to be supplemented. I'm not anemic but my ferritin was low.

Thanks, I will try the pregnancy forum!

happygirl Collaborator
happygirl
Posted

Welcome to the board!

Here are some good websites for information.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link (they have a list of companies that clearly list gluten, so if you dont see wheat/rye/barley/oats, then it doesn't contain those ingredients)

and of course, the parent site to this board, www.celiac.com

The best thing to do to help bring down your tTG is to go 100% gluten free!!!! Best of luck!

cruelshoes Enthusiast
cruelshoes
Posted
My tTG level was 260. Is this really high? I've gone completely gluten free but I was wondering if there was any way to lower it quicker. Will probiotics help?

Anyone had a high tTG level like this and gone on to deliver a baby? My level was drawn before I went gluten-free obviously.

Each lab that processes the bloodwork will have a different range of what is normal. For example, one lab will say anything below 3 is negative, and another will say that anything below 20 is negative and so on. So it is difficult to compare one person's bloodwork to another unless both labs were using the same measurement scale. It is also important to note that the number of the test does not necessarily have a correlation to how much damage there is. I know lots of people that had negative bloodwork and had intestinal damage on the severe end of the spectrum. It's not necessarily a 1:1 relationship, so don't get to wrapped up in the number.

I was diagnosed in August of 2005. My GI doctor said I was one of the sickest people he had ever seen. I was very close to death, and had to be hospitalized for weeks due to malnutrition. For the month after I was released, I had to get fed daily through an IV. I got pregnant 2 months after I was diagnosed. My pregnancy was normal and I delivered a healthy baby girl. She's now 18 months old and rules the house. :)

I think the most important thing for you to do is to go totally gluten-free right away and concentrate on eating a healthy diet for your baby. There is nothing you can do to make your numbers go down faster. Removing gluten from your diet will cause that to happen, but it might take longer than you think it should. Just eat well, be good to yourself and enjoy your pregnancy.

  • 1 year later...
wunderwuman1234 Newbie
wunderwuman1234
Posted

I was diagnosed with Celiac Disease last week, a day after I found out I was pregnant. My tTG level was 260. Is this really high? I've gone completely gluten free but I was wondering if there was any way to lower it quicker. Will probiotics help?

I have had one live birth and 4 miscarriages so I now realize this was most likely the cause of at least some of them.

Anyone had a high tTG level like this and gone on to deliver a baby? My level was drawn before I went gluten-free obviously.

Thanks

My daughter who is 11 had a tTG level of 161 and that was high for her and was diagnosed with celiac then. as of yesterday her tTG level is 7.5!!! yaay. so it took 5 months to get it this low. i am very proud and feel validated now. i just want to buy her more food now!! lol good luck

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