Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibd Flareup, First In 3 Months

num1habsfan

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

I think my IBD diet is the reason why I haven't had one of these flareups in 3 months, but i think its all 3 months combined. You all know I can normally tough this stuff out, but I've been in tears all day long. I can't sleep, I cant even sit in the same spot for too long without breaking into tears.

I'm about to leave for my 3 hour class, so I'm going to go a bit early and make sure I get a seat close to the door and tell my teacher before class that if I get too bad I'll just leave. I'll also ask one of the ladies if I can borrow her notes (because I expect to spend a lot of time crying in the bathroom).

And in case you are wondering, I'm not going to bother with the ER here in Regina, I'll somehow have to live until 10 pm tomorrow night when I go home on the bus to Canora, and go to the hospital. At least I know they'll give me something for the pain...

~ Lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cmbajb Rookie
cmbajb
Posted

Lisa, I have been gluten-free since April of 2007 and was doing great. Then, the beginning of this year, all my gastritis, ibs etc. symptoms came back, horribly horribly. I sat down and recognized I was getting these symptoms and others even when eating gluten-free food, and began to wonder if I had problems with other foods. I've been on an elimination diet for a month. Within the first three days, ALL my stomach pain was gone, as well as my watery/itchy eyes and runny nose. I've been adding food in slowly. Good on dairy (yeah!), but allergic to chocolate, eggs, so far. Chocolate?

blueeyedmanda Community Regular
blueeyedmanda
Posted

Lisa do you think maybe all the recent changes and stress in your life could have caused it?

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Lisa do you think maybe all the recent changes and stress in your life could have caused it?

I'm not sure, manda...it may have been part of it. I also did eat a bit of meat before then :/

By the way, I went to the doctor yesterday afternoon. The nurse who was there said "I haven't seen you in awhile", and I said "Yeah, kinda surprising isn't it?" she answered "Yes it is". How's that for a clue that I've been in the hospital too much??

It was the new doc, who I now like having as a doctor. He got the basic bloodwork done, felt around on the stomach, took a urine sample...of course everything was negative. I am still supposed to collect a couple stool samples, which I was supposed to give to them this weekend, BUT i haven't 'gone' since Friday afternoon so the samples will have to wait until this weekend, which is fine I'm sure. He is concerned about it, but said it's hard to give me any treatment without me having any diagnosis. So he said take Buscopan 3 times a day, and do whatever I've been doing now to to keep these flareups under control. Also said if I get bad again to go to the hosp here in Regina, if I can't get to Canora, and get them to phone to Canora hospital.

I did some research online and in my Crohn's book and it says that heat from either a heating pad or hot water bottle can help. So I have been trying that, too. I will be so happy once this flare dies down... :(

~ Lisa ~

blueeyedmanda Community Regular
blueeyedmanda
Posted

I didn't realize the post was a few days old when I first replied, how are you doing today? I don't have the same pain you have so I cannot compare but I do use the heating pain and it helps relax my cramps/pain. I also like to take warm baths....very relaxing.

Hope you are feeling better! :)

num1habsfan Rising Star
num1habsfan
Posted
  • Author
I didn't realize the post was a few days old when I first replied, how are you doing today? I don't have the same pain you have so I cannot compare but I do use the heating pain and it helps relax my cramps/pain. I also like to take warm baths....very relaxing.

Hope you are feeling better! :)

It's ok, I'm just glad someone DID reply! Because I always get pretty upset when I get these flareups since I feel so out of control.

I'm still "on fire", no doubt about that. Throw some arthritis into the mix and I didn't fall asleep until 5 am last night (or i guess...this morning?). Hopefully I won't have to go to the bathroom until I'm back at the apartment though, so I can at least collect my sample!

I'm currently drinking my daily dose of Tim Horton's coffee so maybe that will make me feel a little better. Nothing better than a good ol' caffeine buzz ;)

~ Lisa ~

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,209
    • Most Online (within 30 mins)
      7,748
    gingerkane77
    Newest Member
    gingerkane77
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.