Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Set Of Problems


HeatherPK

Recommended Posts

HeatherPK Newbie

As part of ongoing autoimmune health issues - I was diagnosed as coeliac last year. I had already been told I had an autoimmune liver disease which to be honest took precidence in my mind as to its seriousness and I sort of passed off the gluten issue - so I'd give up bread was my immediate thought! However, just before christmas I had alot of problems that were obviously down to me not taking my diet seriously and I was getting worse - so I reluctantly started gluten free eating and I was amazed how much better I felt and quickly. My most obvious symtoms - chronic bloating, stomach pains and diarreah eased within a week. But my issue now - several months on - is I have developed a cycle of constipation now - my system shuts down for almost a week - and then I spend nearly a whole day in the loo - only then to swing back the other way. I now feel weakened by this - I find to take things to help with the problem like lactulose for eg just causes a reoccurance of diarreah once my system decides to actually work - I thought maybe it might be just my system readjusting - i just feel miserable having worked hard to stick to a gluten free diet and now getting new problems which I don't seem to have much control over

any advice gratefully received - I'm a vegetarian and have an autoimmune liver disease called PBC so I am compromised in taking supplements

thank you for listening - Heather


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Are still eating/drinking dairy? Are you using a lot of soy? Either one could be causing your problems. You may be intolerant to dairy and/or soy as well as gluten.

YoloGx Rookie
As part of ongoing autoimmune health issues - I was diagnosed as coeliac last year. I had already been told I had an autoimmune liver disease which to be honest took precidence in my mind as to its seriousness and I sort of passed off the gluten issue - so I'd give up bread was my immediate thought! However, just before christmas I had alot of problems that were obviously down to me not taking my diet seriously and I was getting worse - so I reluctantly started gluten free eating and I was amazed how much better I felt and quickly. My most obvious symtoms - chronic bloating, stomach pains and diarreah eased within a week. But my issue now - several months on - is I have developed a cycle of constipation now - my system shuts down for almost a week - and then I spend nearly a whole day in the loo - only then to swing back the other way. I now feel weakened by this - I find to take things to help with the problem like lactulose for eg just causes a reoccurance of diarreah once my system decides to actually work - I thought maybe it might be just my system readjusting - i just feel miserable having worked hard to stick to a gluten free diet and now getting new problems which I don't seem to have much control over

any advice gratefully received - I'm a vegetarian and have an autoimmune liver disease called PBC so I am compromised in taking supplements

thank you for listening - Heather

I suggest taking some herbs. The best for this I think are the soothing herbs marshmallow root and/or slippery elm. Caps are the easiest however you can also cook them up.

The slippery elm in particular is gloppy but healing. Put a tablespoon or two in small amount of water and mix til smooth. Then add a cup or two of water. Whisk with a wire whisk or egg beater. Cook 10 miuntes on a low boil, stirring every once in a while.

I need to do this myself I think when I react to trace glutenings. It may be you too are having some kind of cross contamination gluten issues. This can be ruinous as it has been for me. Bear with it and try the above soothing herbs and somehow try to calm down the nerves.

I went to see an acupuncturist and she really helped by the way. Just wish I had enough money to see her more frequently.

I also think meditation helps to calm and strengthen the nervous system. Skullcap, chamomile, rosemary and lavender can also help restore the nerves too. I thiknk the nerves are always involved when one has a immune system reaction.

With your liver situation you really might consider detox herbs such as dandelion root or milk thistle, yellow dock or Oregon grape root, one week on and one week off. When you are up to it saunas are great.

Mud packs too on the feet and hands will pull out toxins so your liver doesn't get trashed. You should add a little vinegar or lemon juice to the bentonite when you are making a paste with water. Just leave on for 15 minutes; don't do this more than every other day.

Also, like was just suggested by the previous poster, avoid any milk products for now and consider avoiding soy. They often cause these kind of problems at first--and create a food and reaction diary so you can determine what its what. With a veg diet you should find out what you are and aren't sensitive to. I had to go off it myself because I was allergic to most vegetarian forms of protein for instance. Everyone is different however. But a fast or simple diet at first with just vegetables you don't normally eat and slowly add things in every two days or so can help determine what is what.

Exercise really helps quite a lot too when you are up to it. Again start with the yoga and stretching, graduate to walks and then start little weights before doing anything more strenuous.

You also might have a case of fungus and/or candida. Let us know if you do or not and I will make some more suggestions.

I believe the herbs for me at least along with diet helped me the most. And certainly if bought in bulk by a safe supplier they are very inexpensive and safe for most people although there are those that have difficulty with them too like with anything.

I have considered homeopathy but if you go that route avoid anything with alcohol in it. If you have a lactose sensitivity that could be a problem with their pastilles. However you might be able to work with a homeopath to get past this with some alternative water based homeopathic remedies.

Good luck! I have had many similar problems and yet did get through it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    2. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    4. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,085
    • Most Online (within 30 mins)
      7,748

    kk007
    Newest Member
    kk007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      I agree.  If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication).  I have two friends with this.  The PPI it does have side effects but they still have to take it.  
    • knitty kitty
      Do talk to your doctor about making changes to your medication.    I'm not a medical doctor.   I'm a microbiologist.  I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.   
    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.