Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have I Given It To Her?


Krystens mummy

Recommended Posts

Krystens mummy Enthusiast

Hi all I hope you can help me piece the puzzle together. My daughter is 14 months old and has been gluten intollerant most of her short life. Through an elimination diet we found out really quickly. Since then however we have been trying to find out where in the genes she has inherited it. At first thought we thought it was mt husbands mother who has been plagued by unusual skin rashes since going through the menopause. She was tested however and the result was negative and so was the gene test. Here is the interesting part. My mother has just emailed from overseas. I asked her about my development when I was a child. She told me that the doctors were worried because I wasn't growing as well as they would have liked. :o I am 5ft tall 152cm. She said that she ignored them because I seemed to be healthy other than that. The only other symptom that I may have is that my poop smells like amonia. ;) The only reason I say this is so does my daughters when she has an attack and my sons poop never smelt like that. I appreciate your imput. Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I wouldn't be overly concerned about which side of the family she got it from. For one thing she most likely has people on both sides that carry the genes, there are now 9 known to cause some variety or another of gluten intolerance. By the way the person who has the rashes and had a negative blood test should try the diet anyway. Up to 30% of us show negative in blood screening. Everyone on both sides should be blood screened at the very least and those having any symptoms should try the diet regardless of the test results.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,199
    • Most Online (within 30 mins)
      7,748

    Carlos Burbano
    Newest Member
    Carlos Burbano
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.