Breaking Celiac Point- Frustrated Confused Anyone...

[Jeano]

So today I met with the gastronolgist waiting to hear the results of my upper endoscopy, he informed me that he did not find any sprues (other than the inflammation in the stomach area currently being treated with Nexium), my blood work showed antibodies of celiac so he said its possible it could be in my small intestine... So he thought it would be a good idea for me to try a gluten-free diet for 6-8 weeks and see if I felt any better and follow up visit with him then. I have been sick for almost a year off and on, I am always tired, my joints hurt, body aches, abdominal pain, vitamin D and vitamin b-12 deficient, blood sugar up and down , etc--- ahhhh I am going to lose my mind, - oh and I've had just about test after test, doctor after doctor- they probably already think I am crazy, the gastronolgist asked me today if everything was okay with my family and job- I told him don't even go there- I am not depressed, I am frustrated with no confirmation of what is going on with my body,! Did I mention I take 2 presidone steriods/ plaquenil (some drug that takes 2 months to work for inflammation of joints although the test show no inflammation ), a day just to help me get thru the day?--- I feel like one of those mystery diagnosis cases, I have gotten to the point if I don't feel any better trying this gluten free diet and try to lose 20lbs, I am going to demand specialist, and do some crazy research mission till I find answers.. Any one ever been where I at???? Any suggestions or comments?

[itchygirl]

I'm on Plaquenil for my Sjogrens, it worked quicker than two months. more like two weeks. Hopefully after you go gluten free things will get a lot better, you can get off the steroids and be healthier (and loose the 'roid bloat) Have you seen a Rheumy?

You don't sound like a mystery, you sound like an undiagnosed celiac