Anyone With Experience With Enterolab And A Toddler?

[pinkdljj]

Hi, I was diagnosed 3 months ago with gluten and casein intolerance. I have improved greatly with the diet. Thank God!! One month ago my 17 month old daughter came down with diarrhea. For one whole month I dealt with doctors and blood tests and found nothing. I decided on my own to stop gluten for a week. No diarrhea! Then I gave her a Starbucks butterhorn and she had diarrhea the whole night and next day.

Since then I have done the Enterolab test on her stool and also the gene test. Her results came back that the gluten antibody was 15. It was elevated. The rest of the numbers came back normal. She does have both genes, one for celiac and one for gluten sensitivity. They recommended a diet free of gluten for the rest of her life.

I was hoping that someone had Enterolab experience. Are they pretty right on? I had my testing done by blood and the Enterolab tech said that many young children don't produce enough antibodies to show up elevated by the blood test.

So I went back to her ped and she said if anything was wrong with her it would have shown up in the blood test. UHHGGG! I'm started to not trust doctors. I feel like I know more about this than they do.

Thanks for any input. I guess since she has both genes that I need to have my 11 and 8 year old tested too. They're thriving but I don't want them to end up with a degenerative disease in the future.

Leslie

[Nic]

A lot of people here have a lot of faith in enterolab. My son was diagnosed through blood and biopsy but he was already 4. Your doctors comment doesn't surprise me because even my son's gastro won't listen to anything except blood and biopsy. The best test though is the diet. If you are really concerned that your child is getting a false positive from enterolab then do a challenge. Keep her off gluten for a while and then reintroduce it to her diet. You should know within the first day back on gluten if it is the problem.

[gfpaperdoll]

Not trusting doctors might save your life one day.

nothing much has changed, 37 years ago, I told my doctor that every time I gave my toddler son a soda cracker he got diarrhea. my doctor said that there was no way that a soda cracker could give a child diarrhea. That he had a virus or something. I said okay. So I am at home & I will never forget this picture in my head - my son is standing in the doorway of the kitchen & he was eating a soda cracker & before he finished the cracker the diarrhea was running down his leg. I thought okay, am I going to believe what the doctor says or what I am seeing with my own eyes.

although my family made fun of me, I went to the health food store & bought my baby some rice crackers - no more dairrhea... But of course we are DQ1 and after a few years it was constipation...

& yes, I love Enterolab...