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Can I Have Celiac With A Negative Biopsy And A Positive Elisa Panel

Guest Talia

By Guest Talia
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

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Guest Talia
Guest Talia
Posted

Hi Everyone,

I am sure i have Celiac, i have every symtom, and was sickly as a child. I am 55 now, and just had a endoscopy with 10 biopsies. all negative. I was gluten free for 3 months, but ate gluten for 2 weeks for the test. My ELISA panel was very high for wheat and gluten, Iam IGA deficient so I can't use that as an indicator. Would someone please help me figure this out.

Can celiac exist with what the doctor calls the gold standard of diagnosis of negative biopsy?

B)

i have fibro, pain disorder, thyroid disease,osteperosis, osteoarthritis, depression, periodontal disease, psoriosis, headaches, IBS, fatique, muscle weakness, family hx of sjogrens disease,

I would like one doctor to put the pioece4s together for me. what kind?

Thank you for your web site it is very helpful.. i have already learned a lot by reading other post.

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Ursa Major Collaborator
Ursa Major
Posted

Hi Talia, and welcome to these boards.

With being gluten-free for three months, and only being back on gluten for two weeks, you were pretty much guaranteed a negative biopsy, despite probably having celiac disease. All your symptoms point towards celiac disease. With an IGA deficiency you would obviously have negative blood work results, too.

Your ELISA panel combined with a positive dietary response really is all the diagnosis you need to permanently stay away from gluten!

Unfortunately, there is no guarantee that ANY kind of doctor will know enough about celiac disease to 'put the pieces together', as most of them are woefully ignorant when it comes to celiac disease, including gastroenterologists (even though they are supposed to be the celiac disease specialists).

Personally, I think you have already put the pieces together yourself and don't need a doctor to tell you what to do. Even though you may need an endocrinologist to test for thyroid and adrenal problems.

I hope you feel better soon.

Guest Talia
Guest Talia
Posted
Hi Talia, and welcome to these boards.

With being gluten-free for three months, and only being back on gluten for two weeks, you were pretty much guaranteed a negative biopsy, despite probably having celiac disease. All your symptoms point towards celiac disease. With an IGA deficiency you would obviously have negative blood work results, too.

Your ELISA panel combined with a positive dietary response really is all the diagnosis you need to permanently stay away from gluten!

Unfortunately, there is no guarantee that ANY kind of doctor will know enough about celiac disease to 'put the pieces together', as most of them are woefully ignorant when it comes to celiac disease, including gastroenterologists (even though they are supposed to be the celiac disease specialists).

Personally, I think you have already put the pieces together yourself and don't need a doctor to tell you what to do. Even though you may need an endocrinologist to test for thyroid and adrenal problems.

I hope you feel better soon.

Guest Talia
Guest Talia
Posted
Hi Talia, and welcome to these boards.

With being gluten-free for three months, and only being back on gluten for two weeks, you were pretty much guaranteed a negative biopsy, despite probably having celiac disease. All your symptoms point towards celiac disease. With an IGA deficiency you would obviously have negative blood work results, too.

Your ELISA panel combined with a positive dietary response really is all the diagnosis you need to permanently stay away from gluten!

Unfortunately, there is no guarantee that ANY kind of doctor will know enough about celiac disease to 'put the pieces together', as most of them are woefully ignorant when it comes to celiac disease, including gastroenterologists (even though they are supposed to be the celiac disease specialists).

Personally, I think you have already put the pieces together yourself and don't need a doctor to tell you what to do. Even though you may need an endocrinologist to test for thyroid and adrenal problems.

I hope you feel better soon.

Guest Talia
Guest Talia
Posted

thank you, for responding, being new the boards, I didn't even realize it until today.

It does fit together in a profile of celiac... especially the stuff as a child.

I didn't realize docs were so ignorant... it was like when my mom was dx with sjogrens disease.

I have always thought that fibromyalgia and IBS were words used when a real dx could

t be made. Hopefully with a change in diet and working with a nutritionist, I can turn my life around.

Everything is an effort.. I pray with the help of this board, and all the knowledgeable people I will one day have a life again.

B)

JerryK Community Regular
JerryK
Posted

I think the answer to your question is: Celiac is a term used for just one of the manifestations of a rather large spectrum of gluten sensitivity. Celiac being specific intestinal damage. It

Guest Talia
Guest Talia
Posted
I think the answer to your question is: Celiac is a term used for just one of the manifestations of a rather large spectrum of gluten sensitivity. Celiac being specific intestinal damage. It
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Guest Talia
Guest Talia
Posted
I think the answer to your question is: Celiac is a term used for just one of the manifestations of a rather large spectrum of gluten sensitivity. Celiac being specific intestinal damage. It

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