Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Found Out.......


S-J-L

Recommended Posts

S-J-L Apprentice

That i do have celiac disease. Everyone thought so due to my really positive blood results, but my biopsies came back positive too :(

I have to ring my specialist tomorrow to discuss it and i am going to the doctors the next day.

At least now i know that i can feel better and feeling sick wasnt in my head.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I know it is a shock. But try to think positive, because now you are going to get your health back!

Have you started the gluten-free diet already?

S-J-L Apprentice

I have to go on a big shopping spree first cos i dont have much gluten free food. Im also down to see a dietician. Hard to know where to start.

Ursa Major Collaborator

Well, the easiest and safest way to start is to just eat naturally gluten-free foods. Like potatoes, rice, meat, fish, eggs, vegetables and fruit. If you prepare them yourself you won't have to worry about what might be in them.

A lot of dieticians know less than you about eating gluten-free, and might even give you wrong advice. Some might be good, but many are a waste of money.

S-J-L Apprentice

Its hard to know what to eat for lunch. Usually i would just have sandwiches and fruit. Im at university all day, so i cant cook.

Any ideas?

MDRB Explorer
Its hard to know what to eat for lunch. Usually i would just have sandwiches and fruit. Im at university all day, so i cant cook.

Any ideas?

Hi,

I usually take in a salad, gluten-free pasta or potato salad if you need something more filling. Also I carry around gluten free snack bars with me everywhere I go incase I get hungry and tempted.

You could try having your usual lunch but using gluten free bread, but to be honest, most gluten-free breads taste like a kitchen sponge. You could try rice or corn cakes or corn tortillas.

Good luck :)

Joni63 Collaborator
Its hard to know what to eat for lunch. Usually i would just have sandwiches and fruit. Im at university all day, so i cant cook.

Any ideas?

Hi,

When I'm out for the day I use Hormel Healthy Choice turkey and soy cheese on rice crackers. If you can pack a small carry around cooler with you, you will have lots of choices.

Fruit, salad, spam, Planters mixed nuts, peanut butter and jelly, soy joy bars or gluten free bars, rice chex made into a snack mix w/ nuts raisins, chocolate chips, gluten free pretzels. I never eat the bread unless I can toast it at home, but crackers do work in place of bread.

There are lots of choices. I'm sure you'll find what works for you. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



S-J-L Apprentice

Thanks for the ideas. Ive only been gluten free for a day now and am already finding it hard. Please tell me it gets easier?? The gluten free products ive tried are OK but its just not the same. Im getting cranky cos i feel so limited.

My doctor is looking into getting me a food subsidy which is good.

MDRB Explorer
Thanks for the ideas. Ive only been gluten free for a day now and am already finding it hard. Please tell me it gets easier?? The gluten free products ive tried are OK but its just not the same. Im getting cranky cos i feel so limited.

My doctor is looking into getting me a food subsidy which is good.

Yes it does get easier. Eating gluten free has become second nature for me. I still feel a bit frustrated not being able to eat out at many places or at other peoples houses, but this is a small frustration compared to how much better I feel without the gluten in my diet. It takes a while to adjust to the alternative foods, mainly because you will still be craving for the gluten. Stick with it, experiment with recipes and products, you will soon find favorites that you enjoy as much as or even more that the old ones.

jparsick84 Rookie

Also, you might want to consider going to see a therapist or counselor. You are losing an entire way of life, and you're going to have to allow yourself to mourn it without wallowing. Eating gluten-free didn't start to get easier until I went to see someone - even just to talk to someone who will just listen, you know?

It does get easier, and more and more things are gluten-free all the time. Rice Chex JUST became gluten-free the other day, and remember fresh foods (meat, potatoes, fruits, eggs, veggies) are always safe if you prepare them yourself. And Cheetos and Fritos are both gluten-free, so you can still have friends over for a movie and serve "normal" foods.

The best advice I ever got was to remember that you're not normal, you're special. And being special is way better than just being normal. :)

Just take it one day at a time, keep a "good foods" list for meal inspiration, and remember you're not alone.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,600
    • Most Online (within 30 mins)
      7,748

    rita jean
    Newest Member
    rita jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.