Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Vs Stool Antibody Test?


hill5384

Recommended Posts

hill5384 Newbie

I am new to the boards. I had my gallbladder removed about 7 weeks ago and since then have developed a lot of GI problems plus hives, tingling tongue and figertips. I also have Hashimotos Thyroiditis which is an autoimmune disease. I read that this makes me more predisposed for celiac. I have never had problems with wheat products in the past but maybe the surgery or a virus triggered it.

My doctor is testing me for gluten intolerance. It was a comprehensive gluten antibody blood test which was sent out for diagnosis. They told me it would take 12 days to get returned. Does this sound right?? Also, I have been told by a friend that the blood test is not as accurate as the stool antibody test done by Entero Labs (I think that is the name). Is anyone familiar with this and if my test come back negative...should I order a stool test as well just to be sure? Any help would be greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Open Original Shared Link

This article should be of interest to you.

Your friend is correct, blood testing is not always accurate. It can rule Celiac in, but it cannot rule it out. If yours comes back positive, it means that you do have Celiac. If it is negative, you may have Celiac or you may not.

Many people here have used Enterolabs and have been pleased with their results. They do not claim to diagnose Celiac, but rather they can test for sensitivities. I have not used them; and therefore, I do not recommend them.

I would suggest, if you have not done so, have a full metabolic blood panel done to check for any vitamins or mineral deficiencies.

gfpaperdoll Rookie

I have used enterolab.com & highly recommend them - especially if you get a negative blood test.

A lot of us do not have a positive blood test.

Although some people on this forum do not like Enterolab because he "is not published" in fact, some medical doctors do use Dr Fine's lab. Some doctors that are just trying to help their patients and are not hung up on ego trips. If you read the book "good calories bad calories" by Gary Taubes you will see a clear picture of how doctors and scientist are totally ignored when they publish a paper that the AMA or FDA do not approve, so it is a little more complicated than just publishing a paper - it is all a political mess controlled by big money - mostly from the drug companies and the insurance industry - and the huge grants from our government - the tax dollars that we pay... some diseases just cannot be cured because the drug companies & foundations would lose too much money...

fedora Enthusiast

I know it is hard to be patient. Hopefully your blood tests will help you. I also recommend the metabolic blood work if you haven't had it, just to rule out anything else. And check for vitamin mineral deficiencies.

I used enterolab, never had the bloodwork since I was already gluten free. I found it very helpful. I would have stayed gluten free without the stool test, but it has made it easier to not eat gluten at all. I was afraid I would have doubts without some evidence. I was right. I had doubts last week while thinking about pizza. So I made a gluten free pizza for breakfast, and one for lunch.

My daughters one celiac blood test( the PA did not request the whole panel. ugh. even after I asked her too) came back negative. I am now awaiting the enterolab results on her. She needs lab proof to stick with the diet. I understand.

If you don't need lab proof, then you could just go gluten free AFTER you get all your celiac bloodwork and the endoscope(if you get one) done. You can go gluten free and still do the enterolab stool test though. good luck

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,173
    • Most Online (within 30 mins)
      7,748

    D Luck
    Newest Member
    D Luck
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...