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Blood Vs Stool Antibody Test?


hill5384

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hill5384 Newbie

I am new to the boards. I had my gallbladder removed about 7 weeks ago and since then have developed a lot of GI problems plus hives, tingling tongue and figertips. I also have Hashimotos Thyroiditis which is an autoimmune disease. I read that this makes me more predisposed for celiac. I have never had problems with wheat products in the past but maybe the surgery or a virus triggered it.

My doctor is testing me for gluten intolerance. It was a comprehensive gluten antibody blood test which was sent out for diagnosis. They told me it would take 12 days to get returned. Does this sound right?? Also, I have been told by a friend that the blood test is not as accurate as the stool antibody test done by Entero Labs (I think that is the name). Is anyone familiar with this and if my test come back negative...should I order a stool test as well just to be sure? Any help would be greatly appreciated.


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Lisa Mentor

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This article should be of interest to you.

Your friend is correct, blood testing is not always accurate. It can rule Celiac in, but it cannot rule it out. If yours comes back positive, it means that you do have Celiac. If it is negative, you may have Celiac or you may not.

Many people here have used Enterolabs and have been pleased with their results. They do not claim to diagnose Celiac, but rather they can test for sensitivities. I have not used them; and therefore, I do not recommend them.

I would suggest, if you have not done so, have a full metabolic blood panel done to check for any vitamins or mineral deficiencies.

gfpaperdoll Rookie

I have used enterolab.com & highly recommend them - especially if you get a negative blood test.

A lot of us do not have a positive blood test.

Although some people on this forum do not like Enterolab because he "is not published" in fact, some medical doctors do use Dr Fine's lab. Some doctors that are just trying to help their patients and are not hung up on ego trips. If you read the book "good calories bad calories" by Gary Taubes you will see a clear picture of how doctors and scientist are totally ignored when they publish a paper that the AMA or FDA do not approve, so it is a little more complicated than just publishing a paper - it is all a political mess controlled by big money - mostly from the drug companies and the insurance industry - and the huge grants from our government - the tax dollars that we pay... some diseases just cannot be cured because the drug companies & foundations would lose too much money...

fedora Enthusiast

I know it is hard to be patient. Hopefully your blood tests will help you. I also recommend the metabolic blood work if you haven't had it, just to rule out anything else. And check for vitamin mineral deficiencies.

I used enterolab, never had the bloodwork since I was already gluten free. I found it very helpful. I would have stayed gluten free without the stool test, but it has made it easier to not eat gluten at all. I was afraid I would have doubts without some evidence. I was right. I had doubts last week while thinking about pizza. So I made a gluten free pizza for breakfast, and one for lunch.

My daughters one celiac blood test( the PA did not request the whole panel. ugh. even after I asked her too) came back negative. I am now awaiting the enterolab results on her. She needs lab proof to stick with the diet. I understand.

If you don't need lab proof, then you could just go gluten free AFTER you get all your celiac bloodwork and the endoscope(if you get one) done. You can go gluten free and still do the enterolab stool test though. good luck

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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