Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could He Be Celiac?


Wishuk

Recommended Posts

Wishuk Newbie

Hi

This is a longish story, I have cut it short as possible.

Last Feb 07 my husband came down with what he thought was a flu virus, it took a few weeks to get over, but he gradually got better and got back to work. After this he noticed he had started getting like a burning pain under his ribs, this progressed onto to what seemed like back pain, right hand side. This got really bad so we went to A & E, they took bloods and X-rays, the X-Rays came back that he had chronic constipation (even though he had been going the loo daily) his bllods came back and showed that his LFT's were quite elevated, GGT was over 300 AST and ALT were also quite high. They admitted him and performed an ultrasound on his liver, which was clear, he also got asked about a billion times was he a heavy drinker, which he isn't. He was in for 7 days, in lots of pain, on morphine for it and was having terrible trouble going the loo.

Since then, nothing really has progressed, hes had a range of symptoms, which I will list as it may help you help me, pain in his heel, knee, all his joints ache, his back aches, his hip hurts, he has pain mostly all the time in his upper right abdomen, constipation, very large, hard stools, wind, consstant loud gurgling noises from his stomach (really loud) he feels incredibly tired, he just about manages to go to work and not much else, this is a man that used to cycle 20 miles a day and work a 10 hour shift. The Dr put it down to the effects of the virus and he has head an MRI which was clear and a barium meal which was clear. After he had the barium meal though, he had a horrendous reaction, it actually seemed to compact in his system and left him in terrible pain, and made the costipation much much worse. He's had a few blood test to keep an eye on his LFT's and they were graudally going down, but never actually got to the proper level, he had blood work again a couple of weeks ago and the results have came back and his LFT's have shot back up again. GGT 200, AST and ALT are also up again. We feel that after such a long length of time we would like some kind of diagnosis as to whats causing the elevated LFT's and all his other symptoms. I found this site by basically googling elevated LFT and constipation. Can anyone shed any light on whether these kinds of symptoms could be Celiac related? As my husband is going to ask to be checked for it.

Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Some of your husbands symptoms could point to Celiac. Celiac Disease has over 200 symtoms.

Here is the blood panel for Celiac to requestion of your doctors:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

To generate the most accuracy in testing, he must continue to eat gluten.

withnail69 Rookie
Hi

This is a longish story, I have cut it short as possible.

Last Feb 07 my husband came down with what he thought was a flu virus, it took a few weeks to get over, but he gradually got better and got back to work. After this he noticed he had started getting like a burning pain under his ribs, this progressed onto to what seemed like back pain, right hand side. This got really bad so we went to A & E, they took bloods and X-rays, the X-Rays came back that he had chronic constipation (even though he had been going the loo daily) his bllods came back and showed that his LFT's were quite elevated, GGT was over 300 AST and ALT were also quite high. They admitted him and performed an ultrasound on his liver, which was clear, he also got asked about a billion times was he a heavy drinker, which he isn't. He was in for 7 days, in lots of pain, on morphine for it and was having terrible trouble going the loo.

Since then, nothing really has progressed, hes had a range of symptoms, which I will list as it may help you help me, pain in his heel, knee, all his joints ache, his back aches, his hip hurts, he has pain mostly all the time in his upper right abdomen, constipation, very large, hard stools, wind, consstant loud gurgling noises from his stomach (really loud) he feels incredibly tired, he just about manages to go to work and not much else, this is a man that used to cycle 20 miles a day and work a 10 hour shift. The Dr put it down to the effects of the virus and he has head an MRI which was clear and a barium meal which was clear. After he had the barium meal though, he had a horrendous reaction, it actually seemed to compact in his system and left him in terrible pain, and made the costipation much much worse. He's had a few blood test to keep an eye on his LFT's and they were graudally going down, but never actually got to the proper level, he had blood work again a couple of weeks ago and the results have came back and his LFT's have shot back up again. GGT 200, AST and ALT are also up again. We feel that after such a long length of time we would like some kind of diagnosis as to whats causing the elevated LFT's and all his other symptoms. I found this site by basically googling elevated LFT and constipation. Can anyone shed any light on whether these kinds of symptoms could be Celiac related? As my husband is going to ask to be checked for it.

Thank you.

jeez that all sounds way too familar. I've been asked If i was a heavy drinker. I've had ultrasound that showed up nothing. I have the pains but all below my ribs rather than under them

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      how much gluten do I need to eat before blood tests?

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.