Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Treating Dh While Breastfeeding


jhow32000

Recommended Posts

jhow32000 Rookie

My sister is gluten-free and breastfeeding. She has been broken out terribly since giving birth and would like to use something to relieve her pain. What is safe to use while BFing? Everything topical I have heard of and looked up are not safe or have not been studied.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ItchyMeredith Contributor

With both of my children I broke out with DH terribly at 2 months postpartum. I breastfed them both. I still breastfeed my 18 month old. My dermatologist prescribed some topical steroid that started with an F. I'm sorry but I don't remember the name of it. Sadly, it didn't help me at all. How long has she been gluten free??? I was MUCH better within a month of going gluten free. I was DH free within 5 months.

I'm sorry I couldn't be more help.

Good Luck!

KimmyJ Rookie

Interesting to hear that other women experienced this. My DH actually cleared up during my pregnancy, but hit full force after I delivered my baby. (It wasn't until after my baby was born that I was diagnosed.) Is she gluten-free? My DH cleared up within a few weeks of going gluten-free. I didn't want to take anything that would hurt Layla, especially not Dapsone.

krisb Contributor
I didn't want to take anything that would hurt Layla, especially not Dapsone.

I have the same problem. I'm breastfeeding my 14 month old and I have used the topical steroids to help me. I never questioned the Dr.'s if it was ok. What kind of side effects does it have on the baby?

ravenwoodglass Mentor

I would be looking for the source of the contamination, something has had to trigger the DH. Since it cropped up after the baby was born and home perhaps something that she is using on the baby is not safe. Lotion, powder, baby wipes anything new that wasn't used in the home before. Is she on a new supplement? Or could her trigger have been something that they used or gave her to eat in the hospital? The antibodies remain in the skin sometimes for up to 2 years after diagnosis and starting the gluten-free life. Even a tiny amount will cause a flareup until they are absorbed. Something is triggering the flare up and until the source is ferreted out she will continue to suffer. I also found topicals to be very ineffective, they usually gave me oral steroids when things got too bad but I don't think that is safe while breastfeeding.

glutenfreedoc Newbie

Hi,

I agree, with other replies. There must be contamination, even maybe from meds/IV used during childbirth process. I would hope she is still on a good multi-vitamin. I would suggest she seek someone nearby to consult her on nutrition and supplementation, as she likely needs help healing her gut right now. She needs to heal form the inside-out. If she can find some gluten-free oat, she may soak in a warm bath of oatmeal. She should follow the warm bath with a cold rinse, it will help flush out the inflammation on the skin. She may also try chilled aloe to help. It will soothe the itching and help heal. Vitamin C will also help the decrease the allergic response. I have been gluten-free since 2003, I know it is hard. I am also still breast feeding my 9 month old son. It takes a toll on my nutrient content. So, it is really important to be very careful with the gluten right now.

My sister is gluten-free and breastfeeding. She has been broken out terribly since giving birth and would like to use something to relieve her pain. What is safe to use while BFing? Everything topical I have heard of and looked up are not safe or have not been studied.
ItchyMeredith Contributor

I have a weirdo theory-

I ate gluten through both of my pregnancies. I had no DH. When I was 2 months postpartum with both boys I was itching and blistering like crazy. Because your immune system is repressed during pregnancy- what if the crazy DH reactions postpartum is due to whatever cross contamination you may have gotten during your pregnancy. Maybe your body is somehow saving it up and waiting till it can have a DH response. DH blisters can come from IgA deposits from 2 years ago- maybe they are the blistering deposits from 9 months of slight cross contamination here and there that didn't become inflamed and blistered due to your suppressed immune system. Just a thought.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,540
    • Most Online (within 30 mins)
      7,748

    Suecon
    Newest Member
    Suecon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zuma888
      I forgot to mention that exercise also triggers it, except for the period right before I tried the gluten challenge where I could do moderately intense workouts without getting this burning sensation and extreme fatigue for days afterwards.
    • Zuma888
      Hello everyone, I am 30 years old, female, and have Hashimoto's thyroiditis and suspected celiac disease (wasn't able to complete a gluten challenge, but have the symptoms and HLA-DQ8) or at least some kind of gluten sensitivity. When I first got diagnosed with Hashimoto's thyroiditis, I went on AIP and never reintroduced gluten. Whenever I would eat a little bit of gluten I would wake up feeling very old, achy, and unrested, with a burning sensation everywhere especially on my hip bones and chest area. It felt like severe inflammation. This would also happen during stressful times and times where I hadn't been sleeping well.  This symptom had decreased in intensity and completely gone away before I tried to do a gluten challenge over a month ago. Now it is back and I have it every day when I wake up. It usually goes away or decreases in intensity after a few hours of being awake. Is this inflammation or something else, and is it related to Hashimoto's thyroiditis or celiac (or gluten sensitivity) or both? Could it be related to not moving for long periods of time (as is the case when I am sleeping)? I was also extremely sensitive to all foods when I first started AIP about 3 or 4 years ago, but with time, I could tolerate more foods and even gluten in small amounts occasionally. Now my stomach is super sensitive, I am afraid to eat again, and my stools are abnormal. Thank you.
    • knitty kitty
      @MagsM Did your doctor do the DGP IgG and DGP IgA tests or the tTg IgG test.  It looks like he just tested total IgG.   Were you taking any medications or over the counter stuff before the test?  Some can suppress the immune system and cause false negatives.  
    • Fabrizio
      Thanks for your article. 
    • NCalvo822
      Thank you.  Very helpful.
×
×
  • Create New...