Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Treating Dh While Breastfeeding


jhow32000

Recommended Posts

jhow32000 Rookie

My sister is gluten-free and breastfeeding. She has been broken out terribly since giving birth and would like to use something to relieve her pain. What is safe to use while BFing? Everything topical I have heard of and looked up are not safe or have not been studied.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ItchyMeredith Contributor

With both of my children I broke out with DH terribly at 2 months postpartum. I breastfed them both. I still breastfeed my 18 month old. My dermatologist prescribed some topical steroid that started with an F. I'm sorry but I don't remember the name of it. Sadly, it didn't help me at all. How long has she been gluten free??? I was MUCH better within a month of going gluten free. I was DH free within 5 months.

I'm sorry I couldn't be more help.

Good Luck!

KimmyJ Rookie

Interesting to hear that other women experienced this. My DH actually cleared up during my pregnancy, but hit full force after I delivered my baby. (It wasn't until after my baby was born that I was diagnosed.) Is she gluten-free? My DH cleared up within a few weeks of going gluten-free. I didn't want to take anything that would hurt Layla, especially not Dapsone.

krisb Contributor
I didn't want to take anything that would hurt Layla, especially not Dapsone.

I have the same problem. I'm breastfeeding my 14 month old and I have used the topical steroids to help me. I never questioned the Dr.'s if it was ok. What kind of side effects does it have on the baby?

ravenwoodglass Mentor

I would be looking for the source of the contamination, something has had to trigger the DH. Since it cropped up after the baby was born and home perhaps something that she is using on the baby is not safe. Lotion, powder, baby wipes anything new that wasn't used in the home before. Is she on a new supplement? Or could her trigger have been something that they used or gave her to eat in the hospital? The antibodies remain in the skin sometimes for up to 2 years after diagnosis and starting the gluten-free life. Even a tiny amount will cause a flareup until they are absorbed. Something is triggering the flare up and until the source is ferreted out she will continue to suffer. I also found topicals to be very ineffective, they usually gave me oral steroids when things got too bad but I don't think that is safe while breastfeeding.

glutenfreedoc Newbie

Hi,

I agree, with other replies. There must be contamination, even maybe from meds/IV used during childbirth process. I would hope she is still on a good multi-vitamin. I would suggest she seek someone nearby to consult her on nutrition and supplementation, as she likely needs help healing her gut right now. She needs to heal form the inside-out. If she can find some gluten-free oat, she may soak in a warm bath of oatmeal. She should follow the warm bath with a cold rinse, it will help flush out the inflammation on the skin. She may also try chilled aloe to help. It will soothe the itching and help heal. Vitamin C will also help the decrease the allergic response. I have been gluten-free since 2003, I know it is hard. I am also still breast feeding my 9 month old son. It takes a toll on my nutrient content. So, it is really important to be very careful with the gluten right now.

My sister is gluten-free and breastfeeding. She has been broken out terribly since giving birth and would like to use something to relieve her pain. What is safe to use while BFing? Everything topical I have heard of and looked up are not safe or have not been studied.
ItchyMeredith Contributor

I have a weirdo theory-

I ate gluten through both of my pregnancies. I had no DH. When I was 2 months postpartum with both boys I was itching and blistering like crazy. Because your immune system is repressed during pregnancy- what if the crazy DH reactions postpartum is due to whatever cross contamination you may have gotten during your pregnancy. Maybe your body is somehow saving it up and waiting till it can have a DH response. DH blisters can come from IgA deposits from 2 years ago- maybe they are the blistering deposits from 9 months of slight cross contamination here and there that didn't become inflamed and blistered due to your suppressed immune system. Just a thought.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.