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celiac3270

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celiac3270 Collaborator

I was poking through my favorites today and thought it would be a cool idea to compile all our links into a thread. This would be helpful for newbies and I'm sure we'd all find some good ones that we hadn't seen before:

Eating Out

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gluten-free Lists

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Online Shopping & gluten-free Products

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Message Boards

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Miscellaneous

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angel-jd1 Community Regular

celiac3270-

My list is already on here somewhere I believe......

-Jessica :rolleyes:

celiac3270 Collaborator

Oh yeah-- I remember you posted one a long time ago....now, if only I could remember where--I'll run a search and see if I can find the thread.

celiac3270 Collaborator

Yep--you did:

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WLJOHNSON Newbie

celiac3270,

What a great idea you had to post those links, and I know it had to take time to add all those you contributed. THANK YOU! I notice at the end of your post that you are still having persistent symptoms. Do you mind my asking what that is about? I did continue to have trouble too until I discovered all the foods and additives that bothered me. Maybe I could help in some way. I hope so. Welda

lbsteenwyk Explorer

celiac3270,

Thanks for all your great links. As I am fairly new to this forum, it will be a great help to me.

I'd like to add that I really enjoy reading your posts. I was completely blown away when you mentioned in a recent post that you are only 14 years old. I had just assumed you were much older. You are very well spoken in your posts and obviously have devoted a lot of time to researching celiac disease. :D

Jeap Newbie

Is anyone using the Clan Thompson list of gluten-free foods. I bought it and downloaded it on my Palm. It is new to me but seems like it would be helpful.

Has anyone else dealt with them? Is there a way we could help them build the database they have?

It is really a neat idea. No they are not paying me. I purchased it and the data base really seems to be a great idea.

Thanks :D


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flagbabyds Collaborator

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celiac3270 Collaborator
Is anyone using the Clan Thompson list of gluten-free foods. I bought it and downloaded it on my Palm. It is new to me but seems like it would be helpful.

Has anyone else dealt with them? Is there a way we could help them build the database they have?

I got some sample booklets (prescription drugs, foods, over the counter drugs, etc. Very helpful since they also list phone numbers. I also got a sample download of a computer database thingy they have--I like them a lot. You can't use it fully unless it was verified very recently, but they give you a good idea of what's gluten-free and the phone number to make sure :D

  • 1 month later...
celiac3270 Collaborator

My collection has since grown substantially, but on the Delphi board, there's someone there, Mireille, who is constantly posting there and seems to be a true celiac expert :D. Anyway, she posted her collection on that board awhile ago:

Have make an extensive research to retrieve this link goldmine as I had the msg # in my note book in Canada but I'm in Florida.

I would suggest you to take a note of this msg # for further use, or for helping others.

RECIPES:

All Recipes: general recipe database with gluten-free selections:

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Clan Thompson:

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CSA Recipe Collection

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Food For Life

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Celiac.com

https://www.celiac.com/recipes.html

Gluten Free Pantry Recipes

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Gluten Free Brewing - brew your own

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Gluten free Kitchen

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Gluten Freeda Recipes

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Celiac sight from Australia

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Savory Palate - Carol Fenster

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Specific Carbohydrate Diet (SCD)/ "Breaking the Viscious Cycle"

All of the recipes on these pages are "SCD safe". This means that they

do not contain milk, flour, or any other food item which is not

allowed in the Specific Carbohydrate Diet.

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SOAR Database: Huge recipe database with gluten free selections

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INFORMATION`:

Celiac.com

https://www.celiac.com/index.html#toc

CSA Website Directory

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Dr. Fine/lab testing

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Gluten Freeda

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Gluten Free Shopping List, University of Nevada: Listing of specific

safe foods, including brand names

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gluten-free Links

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Resource database

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No Soy

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Nutribase - Contact information for thousands of food manufacturers.

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Organic trade Association: Members include growers, shippers, processors,

certifiers, farmer associations, brokers, manufacturers, consultants,

distributors and retailers.

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Gluten Intollerance Group of North America

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Specific Carbohydrate Diet (SCD) Web Library

Based on the book "Breaking the Viscious Cycle" by Elain Gottschall

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State by state info (limited support group source)

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Savory Palate - Carol Fenster

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Sully's Living Without

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Wheat Free Zone - extensive database, must know info

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TRAVEL

Celiac Living in New York City

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Inn Seeker - gluten free lodging

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Gluten Free Utah

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SHOPPING/PRODUCTS

Akin's Natural Foods Market

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Cause Your Special

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The Dietary Shoppe

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The Gluten Free Grocery

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Gluten Free Delights

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The Gluten Free Mall

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Gluten Free Pantry

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The Gluten Free Supermarket

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Glutino

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Gluten Solutions

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Kinnikinnick

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Liv-N-Well: Liv-N-Well's mailorder division ships Gluten-Free and Low

Protein products worldwide

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Loprofin - low protien products

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Marie Nature

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Mr. Spice

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Miss Roben: Food source for those with multiple food allergies

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The Silly Yak

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Specialty Food Shop

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Trader Joes

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Twin Valley Mills

www.twinvalleymills.com=20

UltraClear

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Vance's Foods: Home of Dari-Free

www.vancesfoods.com

Whole Foods Market=20

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Wild Oats Grocery

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MANUFACTURERS

Natural Foods Products

Amy's Kitchen

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Annie's Naturals

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Baking For Health: products are organic and free of wheat, dairy, sugar

and animal products

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Barbara's Bakery

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Bearitos

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Big Valley: Big Valley, Flavorland, Big Valley Fruitatious, or Big

Valley/Yan Can Cook: Frozen fruits and vegetables

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Bob's Red Mill

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California Natural: organic rice syrups, rice syrup solids, rice protein

concentrate (80%), Dexta Plus rice oligodextrins, StarchPlus rice

starches.

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Cascadian Farm

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Cedarlane Natural Foods INC: including award winning low fat frozen

dinners and entrees, fat free and specialty breads, and fresh salads.

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Country Choice Naturals: Certified organic hot cereals, cookies and

hot cocoa mixes.

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Earth's Best Baby Food

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Ener-G Foods

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Fantastic Foods

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Food For Life

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Frieda's: Wholesale fruits, vegetables, tofu, Asian and Latin produce,

processed and jarred items - inc. tofu hot dogs, burgers.

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Gluten Free Foods LTD

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Glutino

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Hain: The Hain Food Group markets natural "better-for-you" foods and

snacks across 24 brands. Brands containing organic products include

Hain Pure Foods, Westbrae Natural, WestSoy, Little Bear, Bearitos,

Arrowhead Mills, DeBoles, Farm Foods, Earth's Best, and Garden of Eatin'.

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Horizon Organic Dairy

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Imagine Foods: Rice Dream, Soy Dream, dairy free pudding, soups and broths

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J.R. Wood Products: Frozen fruits, vegetables, baby food, concentrates,

purees, smoothies

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Kingsmill Foods: bread, cookies, Lacteeze

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LifeStream

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Little Bear

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Lundberg Family Farms

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Muir Glen Organics: tomato products

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Nature's Path

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Near East

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Nueman's Own

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Newman's Own Organics

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Rapunzel: Organic chocolate, coffee, juices, sugar,seasonings, snacks, soups

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Rocky Mountain Snacks

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Pamela's Products

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Premier Valley Foods: Organic dried fruit, organic chilled juice,

organic tomatoes, organic juice concentrates, and dried peppers

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Seeds of Change

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Simple treats: vegan, wheat, sugarr free (barley) bakery

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Small Planet Foods

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Spectrum Organic

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Stoneyfield Farm

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Sunflour Baking: dairy, egg, wheat and wheat free products.

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Sunspire: Sunspire Organics, Sunspire Sundrops, FruitSource® and

Maranatha:certified organic line of chocolate chips, chocolate-coated nuts,

clusters, organic sugar, grain-sweetened chocolate chips, chocolate-coated

nuts and fruits and other handmade candies, organic peanut butters, almond

butters, cashew butters; natural and organic bulk trail mixes

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Terra NostraOrganics: distributors of Terra Nostra Organic products,

including chocolate bars

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Vance's Foods: Home of Dari-Free

www.vancesfoods.com

Van's International Foods: waffles

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Vitasoy

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Westbrae

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Whole Foods Private Label Products

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Wildwood natural Foods: Traditional Mid-East hummus, low fat hummus,

spicy hummus, pesto hummus, baba ganooj, tabouli salad, wild dogs

(veg hot-dogs), meltables (soy cheese), and garlic aioli (vegan mayo

alternative).

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Yves Veggie Cuisine

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Mireille, Waterloo Quebec.

Canadian Karen Community Regular

You are right, celiac3270. She is an expert. She saved my butt a few times when I was trying to bake bread - I posted about my failure and what I did, and she posted back what the problem probably was - and she was right..... She is a sweetheart!

Karen

  • 2 weeks later...
Sada Newbie

Hey guys great thread!!!

I have a lot of favorites as you guys do too...

To add a few

www.celiacchicks.com -- great NY information about foods, bakeries, etc.

www.silly-yak.com t-shirts etc...

www.angelicgrooves.com -- great celiac awareness jewelry that are donated to celiac awareness.

www.glutenfreeandmore.com great newsletter for baking!!!

www.dippychick.com -- dips that are gluten free.

That is all I can think of right now.

I haven't ever heard of the delphi forums.. . thanks for that I will have to check them out!!!!

Sada

Sada Newbie

oops one of my links was wrong

www.glutenfreebakingandmore.com

sorry!

Sada

gfbeatrice Newbie

Wow! What a great list! Thank you so much for it. It has many Web sites that I have not seen before. Thanks

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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