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Does This Sound Like Coeliac, And Has Anyone Noticed Bad Breath In Children With Coeliac?

lynne1978

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lynne1978 Rookie
lynne1978
Posted

Hi Just wondering, I am being tested for coeliac, my son was on a wheat free diet when little as he was always sick, and as he's gotten older they said he'd grow out of it, so hes eating normally now. The only thing is, when he's had a lot of wheat he's got dark circles around his eyes, tummy aches, is sometimes sick, very naughty and grumpy, and has really bad breath for a 5 year old, i thought it was down to the fact he is not drinking enough but I just wondered if this sounds like coeliacs and if anyone had noticed anything similar with the breath thing?

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Breila Explorer
Breila
Posted

Yes, my 7yo had awful morning breath before he was diagnosed. I had to get him in the habit of brushing his teeth as soon as he got up b/c he would come sit in my lap in the morning and I couldn't stand it.

I don't know really HOW they are related, but I'm pretty sure they are. His has gotten better.

home-based-mom Contributor
home-based-mom
Posted
Hi Just wondering, I am being tested for coeliac, my son was on a wheat free diet when little as he was always sick, and as he's gotten older they said he'd grow out of it, so hes eating normally now. The only thing is, when he's had a lot of wheat he's got dark circles around his eyes, tummy aches, is sometimes sick, very naughty and grumpy, and has really bad breath for a 5 year old, i thought it was down to the fact he is not drinking enough but I just wondered if this sounds like coeliacs and if anyone had noticed anything similar with the breath thing?

If he has all those symptoms when he eats wheat then to me it's rather obvious that he has not grown out of it, and it he is truly celiac, he will not ever grow out of it.

If you decide to have him tested, be sure to do it before removing wheat from his diet. But no matter what, it sounds like he should not be eating wheat. :(

lynne1978 Rookie
lynne1978
Posted
  • Author
If he has all those symptoms when he eats wheat then to me it's rather obvious that he has not grown out of it, and it he is truly celiac, he will not ever grow out of it.

If you decide to have him tested, be sure to do it before removing wheat from his diet. But no matter what, it sounds like he should not be eating wheat. :(

Yeah Ive been thinking this for some time, I dont give him bread ect at home, and his teacher has even commented on how much more attentive he is at school. The problem is his dad (we dont live with him) gives him everything and he;s often sick on returning from seeing him, and my parents don't believe he has a problem, myself (for 5 years) and my son have both been on soya milk (since 4 weeks old) and they still wont buy it for me or him and just give him normal milk and even give me it in tea; even though it makes me feel sick and my son was told by a dietician to stay off cows milk. I feel like i am fighting a losing battle and even if one or both of us have a positive dx I still think they would still give him normal foods.

home-based-mom Contributor
home-based-mom
Posted
Yeah Ive been thinking this for some time, I dont give him bread ect at home, and his teacher has even commented on how much more attentive he is at school. The problem is his dad (we dont live with him) gives him everything and he;s often sick on returning from seeing him, and my parents don't believe he has a problem, myself (for 5 years) and my son have both been on soya milk (since 4 weeks old) and they still wont buy it for me or him and just give him normal milk and even give me it in tea; even though it makes me feel sick and my son was told by a dietician to stay off cows milk. I feel like i am fighting a losing battle and even if one or both of us have a positive dx I still think they would still give him normal foods.
That makes things difficult. Why can't it ever be simple? Actually is *is* simple ~ but far from easy.

I don't know how assertive you are able to get with either your parents or your child's dad. Perhaps an official diagnosis might help. Some people will listen to doctor's orders and not to reason from someone else. Are you able to send food with him when he visits?

Welda Johnson Newbie
Welda Johnson
Posted

Hi,

I feel for you! I am of the opinion that feeding someone food that upsets their delicate balance is like feeding someone poison, and in the case of Celiac, those foods really are poison for us.

I've had symptoms of Celiac since age 8 but no one knew in those days what was going on. I'm now 63, avoid all grains, all milk and dairy, egg whites, yeast, and meat, poultry, etc. since I have asthma symptoms even after eating animal products.

I sent away to Enterolab for tests for my newly-born grandson when he started having symptoms ($400 or so) and then for my three grown children, sister and brother. My kids didn't take the tests, and my sister did and has Celiac, but my brother doesn't have it. However, my sister doesn't do the diet and has had thyroid cancer, colon polyps which they told her they were 99% cancerous but proved to be benign when they took them out, and a couple of weeks ago non-malignant skin cancer on her leg.

So I believe that those foods really are poison! Probably you will get more perseverant about your son's health as you see your own health improve, and while you can't control what his father or grandparents feed him, you can be extremely diligent about getting him on a good diet now, because what we teach our kids when they are young is so important. Has he had any symptoms of ADD or ADHD? My grandson's Kaiser doctor said he would "outgrow it" but I think that is wrong. His blood test came back negative at a year old, but we had had him totally on a gluten free and milk free diet for his first year, just before the testing.

I love Enterolab! For $100 they will identify gluten intolerance, then you can do an elimination diet for milk, dairy, casein, whey, etc. etc. etc. as symptoms crop up. I'll be thinking of you and wishing you well in your quest for good health for your son and you. Please feel free to email me at welda@att.net if you have any questions. Welda

lynne1978 Rookie
lynne1978
Posted
  • Author
Has he had any symptoms of ADD or ADHD? My grandson's Kaiser doctor said he would "outgrow it" but I think that is wrong. His blood test came back negative at a year old, but we had had him totally on a gluten free and milk free diet for his first year, just before the testing.

I love Enterolab! For $100 they will identify gluten intolerance, then you can do an elimination diet for milk, dairy, casein, whey, etc. etc. etc. as symptoms crop up. I'll be thinking of you and wishing you well in your quest for good health for your son and you. Please feel free to email me at welda@att.net if you have any questions. Welda

YHi thanks! yes he has; we have been looking in to ADD and ADHD as he cant concentrate on anything or keep still!!!

Unfortunately I cant use enterolabs, I am in the UK. That sucks, Itd be a great help. I think i'm gonna go to the doc monday and tell him everything and see if I can get him tested too. at least if it was disgnosed I can then get really strict with anyone who feeds him gluten!

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Darn210 Enthusiast
Darn210
Posted
Hi Just wondering, I am being tested for coeliac, my son was on a wheat free diet when little as he was always sick, and as he's gotten older they said he'd grow out of it, so hes eating normally now. The only thing is, when he's had a lot of wheat he's got dark circles around his eyes, tummy aches, is sometimes sick, very naughty and grumpy, and has really bad breath for a 5 year old, i thought it was down to the fact he is not drinking enough but I just wondered if this sounds like coeliacs and if anyone had noticed anything similar with the breath thing?

Just another confirmation . . .

My daughter had acid reflux as her symptom . . . she would have sour breath in the morning from the acid reflux. Good Luck with your diagnosis.

Terri-Anne Apprentice
Terri-Anne
Posted

Hi Just wondering, I am being tested for coeliac, my son was on a wheat free diet when little as he was always sick, and as he's gotten older they said he'd grow out of it, so hes eating normally now. The only thing is, when he's had a lot of wheat he's got dark circles around his eyes, tummy aches, is sometimes sick, very naughty and grumpy, and has really bad breath for a 5 year old, i thought it was down to the fact he is not drinking enough but I just wondered if this sounds like coeliacs and if anyone had noticed anything similar with the breath thing?

Hi Lynne,

My son was in the same situation......wheat made him obviously sick, so we removed it completely from his diet. After 4 years wheat-free, he did a ingestion-trial at the allergist office, and I was fully expecting him to break into a full body itchy rash, and writhing stomach pain followed by violent diarrhea. When this expected reaction didn't happen, we were advised to put him back on a regular diet including wheat. He seemed okay, and the wheat free diet is so restrictive, we did put him back on the regular diet. He has been wheat filled for 3 years now.

The one thing that has me still wondering if he should be back on the restricted diet is insatiable appetite. He eats enormous amounts! His supper portions are typically DOUBLE what my husband and teen aged son eat, and he is only 8 years old! About an hour after supper he usually asks for a sandwich, and becomes upset insisting he's hungry if I do not allow him to have one. (He also has the WORST breath ever, as well as THE stinkiest farts imaginable) Does your son eat lots? How about gas?

I'm interested in talking more with you about symptoms, both before you took wheat from your son and since he's been back on wheat, to compare notes.....Will you be removing wheat from his diet again? Having more testing done? Please write back.

Ursa Major Collaborator
Ursa Major
Posted
My son was in the same situation......wheat made him obviously sick, so we removed it completely from his diet. After 4 years wheat-free, he did a ingestion-trial at the allergist office, and I was fully expecting him to break into a full body itchy rash, and writhing stomach pain followed by violent diarrhea. When this expected reaction didn't happen, we were advised to put him back on a regular diet including wheat. He seemed okay, and the wheat free diet is so restrictive, we did put him back on the regular diet. He has been wheat filled for 3 years now.

The one thing that has me still wondering if he should be back on the restricted diet is insatiable appetite. He eats enormous amounts! His supper portions are typically DOUBLE what my husband and teen aged son eat, and he is only 8 years old! About an hour after supper he usually asks for a sandwich, and becomes upset insisting he's hungry if I do not allow him to have one. (He also has the WORST breath ever, as well as THE stinkiest farts imaginable) Does your son eat lots? How about gas?

I'm interested in talking more with you about symptoms, both before you took wheat from your son and since he's been back on wheat, to compare notes.....Will you be removing wheat from his diet again? Having more testing done? Please write back.

My oldest grandson (who is almost six years old now) was like your son. He would eat and eat and eat, and would cry when my daughter told him he wouldn't get any more. He also was so skinny that every rib showed. He was light as a feather, while still being a normal height.

Bad breath, stinky farts and insatiable appetite are TYPICAL celiac disease symptoms!

When my daughter took my grandson off gluten (at the same time as herself and the other four kids), my grandson started gaining weight immediately, as well as not being so emotional any more. He is a changed kid. And he also eats normal sized portions of food and is satisfied with that.

You would do well to take your son off gluten again. Just because his reaction to gluten has changed and his symptoms aren't that obvious doesn't mean his villi aren't being destroyed by the gluten. Some people have no obvious symptoms at all, while their villi are completely gone!

Ursa Major Collaborator
Ursa Major
Posted
YHi thanks! yes he has; we have been looking in to ADD and ADHD as he cant concentrate on anything or keep still!!!

Unfortunately I cant use enterolabs, I am in the UK. That sucks, Itd be a great help. I think i'm gonna go to the doc monday and tell him everything and see if I can get him tested too. at least if it was disgnosed I can then get really strict with anyone who feeds him gluten!

ADD and ADHD are very common symptoms in children (and actually, in adults as well).

Your son has LOTS of symptoms of gluten intolerance!

lynne1978 Rookie
lynne1978
Posted
  • Author
Hi Lynne,

My son was in the same situation......wheat made him obviously sick, so we removed it completely from his diet. After 4 years wheat-free, he did a ingestion-trial at the allergist office, and I was fully expecting him to break into a full body itchy rash, and writhing stomach pain followed by violent diarrhea. When this expected reaction didn't happen, we were advised to put him back on a regular diet including wheat. He seemed okay, and the wheat free diet is so restrictive, we did put him back on the regular diet. He has been wheat filled for 3 years now.

The one thing that has me still wondering if he should be back on the restricted diet is insatiable appetite. He eats enormous amounts! His supper portions are typically DOUBLE what my husband and teen aged son eat, and he is only 8 years old! About an hour after supper he usually asks for a sandwich, and becomes upset insisting he's hungry if I do not allow him to have one. (He also has the WORST breath ever, as well as THE stinkiest farts imaginable) Does your son eat lots? How about gas?

I'm interested in talking more with you about symptoms, both before you took wheat from your son and since he's been back on wheat, to compare notes.....Will you be removing wheat from his diet again? Having more testing done? Please write back.

Hi thanks so much for your reply YES!!! he has bad breath, REALLY REALLY bad farts-i mean you clear the room if he says 'pardon me' as you cant breathe!!! He is also starving all the time, to the point this morning getting to school, he asked for snacks and was told to wait and he sneaked a snack anyway even though the teacher had told him no. I have booked an appointment at the doctors this afternoon to see what to do!!

nikki-uk Enthusiast
nikki-uk
Posted
YHi thanks! yes he has; we have been looking in to ADD and ADHD as he cant concentrate on anything or keep still!!!

Unfortunately I cant use enterolabs, I am in the UK. That sucks, Itd be a great help. I think i'm gonna go to the doc monday and tell him everything and see if I can get him tested too. at least if it was disgnosed I can then get really strict with anyone who feeds him gluten!

Hi Lynne :)

Don't forget if you are going to get your son tested for coeliac, he needs to be on a high gluten diet for at least 6 weeks before the test (did you say he's 'low gluten' at the moment?)

Good luck :)

lynne1978 Rookie
lynne1978
Posted
  • Author
Hi Lynne :)

Don't forget if you are going to get your son tested for coeliac, he needs to be on a high gluten diet for at least 6 weeks before the test (did you say he's 'low gluten' at the moment?)

Good luck :)

Hi yes hes been on low gluten at home, although he does still get it in his diet, definately thursdays and fridays with school dinners, and at least everyother weekend due to either my parents or his grandparents feeding him cakes, biscuits or loads of sandwiches, and readybrek!!! he's really ill after that, I learnt this but they wont listen to me, hey, I'm just his mother what do i know!

MELINE Enthusiast
MELINE
Posted
Hi Just wondering, I am being tested for coeliac, my son was on a wheat free diet when little as he was always sick, and as he's gotten older they said he'd grow out of it, so hes eating normally now. The only thing is, when he's had a lot of wheat he's got dark circles around his eyes, tummy aches, is sometimes sick, very naughty and grumpy, and has really bad breath for a 5 year old, i thought it was down to the fact he is not drinking enough but I just wondered if this sounds like coeliacs and if anyone had noticed anything similar with the breath thing?

Just confirm what the others already told you, that yes bad breath is a symptom. Whenever somehtning is wrong in our intestine, bad breath will definately appear. It happened to me too.

tipnpat Newbie
tipnpat
Posted

My 6 year old son also has really bad breath but I never knew it was a symptom. He eats a lot too and say's he's SUPER hungry. All this time I've thought that meant he didn't have Celiac. Maybe he still doesn't. He has the gene and I'm waiting on Enterolab results and a referral to the pediatric GI doc. I feel like I need to carefully word my symptom list and probably not even mention the Enterolab stuff as I'm sure he'll just scoff at us. But, the renegade part of me wants to just say, "Hi, my name is Tipton. This is Liam. Oh, that's not a symptom? Well, I know a thousand other Celiacs who say it is. This is what's going on and regardless of what you think could we just start with the blood tests please?" Guess that would be a bad note to start on, ay? I'm just sick of doctors not listening to their patients. When I was a cardiac nurse our motto with the heart monitors was, "Treat the patient, not the machine." Nobody seems to follow that motto anymore. They all rely so heavily on their technology without laying hands (or ears) on their patients. Ugh! That's enough ranting for now.

I love this forum,

tipnpat

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    • lizzie42
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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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