Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help...newly Diagnosed And Questions


RunnerGrl

Recommended Posts

RunnerGrl Newbie

Hi everyone

I've been recently diagnosed with Celiac. Endo with biopsy and positive blood test. At first I was thinking that this wasn't going to be "too" hard....I could deal with rice pasta...I could deal with gluten free bread/waffles, etc. But wooohooo! Are there a million things that I had no idea that gluten in them?!?!??? I am freaking out a bit. I didn't think that I could be glutened by my Hershey's chocolate...or Kellog's Rice Krispies! Ok, with the diet stuff being said, I am also pretty darn anemic and feeling physically bad from that. Serious headaches, heart palpitations, shortness of breath (Iron total 22 L, % of Saturation 5 L, Ferritin 3 L) bruising, etc.

What I am finding is that I am feeling really bad and crazy mood swings. I am generally a very together person (ok, PMS gets me from time to time but this is bordering on rediculous now) and I am finding I have no patience, I feel depressed, like I have no control and very emotional (could cry at every Hallmark commercial if I didn't skip them all on the DVR!).

Is it "normal" to feel like that?? I am so not a "crazy" person. I've lost it at work...had a meltdown in front of some people and left for the day (over something really stupid) and it is SO not how I normally behave.

Is this the gluten? Is this the celiac? Is this the anemia? ARGH. I feel really alone in all of this.

~~Kris


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Hi everyone

I've been recently diagnosed with Celiac. Endo with biopsy and positive blood test. At first I was thinking that this wasn't going to be "too" hard....I could deal with rice pasta...I could deal with gluten free bread/waffles, etc. But wooohooo! Are there a million things that I had no idea that gluten in them?!?!??? I am freaking out a bit. I didn't think that I could be glutened by my Hershey's chocolate...or Kellog's Rice Krispies! Ok, with the diet stuff being said, I am also pretty darn anemic and feeling physically bad from that. Serious headaches, heart palpitations, shortness of breath (Iron total 22 L, % of Saturation 5 L, Ferritin 3 L) bruising, etc.

What I am finding is that I am feeling really bad and crazy mood swings. I am generally a very together person (ok, PMS gets me from time to time but this is bordering on rediculous now) and I am finding I have no patience, I feel depressed, like I have no control and very emotional (could cry at every Hallmark commercial if I didn't skip them all on the DVR!).

Is it "normal" to feel like that?? I am so not a "crazy" person. I've lost it at work...had a meltdown in front of some people and left for the day (over something really stupid) and it is SO not how I normally behave.

Is this the gluten? Is this the celiac? Is this the anemia? ARGH. I feel really alone in all of this.

~~Kris

Hi Kris,

Yes, it's very normal to have mood swings and to be tempermental. Alot of this is due to the malabsorption due to Celiac. If you haven't already, start a good multivitamin and some sub lingual B-12 may help with the neuro issues.

No need to feel alone, there are at least 20,000 of us on this site alone. The gluten free diet is a tough learn though. Keep reading and learning here and it will become easier.

cpicini Rookie

Welcome to the club!

I'm new to this site but was diagnosed back in October of 2007. I remember all too well the shock of discovering how many foods have wheat. After 8 months I am still finding gluten in items that I use everyday. Just yesterday I discovered wheat was in my hair gel.

Everyone that I've talked to has different simptoms and reactions since being diagnosed. I expereinced some of that same reaction you've had, short patience (and I have a four year old), mood swings, fatigue etc. I'm not sure if it's all from the gluten or not I just know that I think it's from the realization of how our lives must change.

The one thing you can look forward to is that you will feel better :) For sometime before and after being dx I felt like I was the worst Dad in the world. I didn't want to go outside and play with my son, I just wanted to be on the couch or take a nap. It took about a month and I started to feel much better. Better mood, more energy and just a total positve feeling towards everything. The problem is that I have recently regressed. I know feel similar to how I did before and immediatly after being dx. I am discovering that I've gotten lazy and take too many chances with foods that I'm unsure about. Cross contamination has also been my biggest achiles heel.

My other big mistake was not taking my vitamins. I'd talk to your doctor about what he would recommend. I just recently started taking B-12, B complex, Vitamin C, D3, E, Coral Calcuim and Omega 3's.

Good luck and you've come to the right place. I've only just found this site in the past week or so and it's been huge help in gettign me back on the right track.

Chris

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,740
    • Most Online (within 30 mins)
      7,748

    PamF
    Newest Member
    PamF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Has anyone had any feeling in the throat like Phlegm , thick throat feeling after eating gluten ? Just wondering if this could be a symptom ?
    • nanny marley
      Has anyone had any feeling in the throat like plemb, thick throat feeling after eating gluten ? Just wondering if this could be a symptom ?
    • knitty kitty
      If you're more comfortable starting slow, that's fine, but do increase your dose to 500 mg per day as quickly as possible.  The World Health Organization recommends 500 mg thiamine HCl per day when deficiency is suspected.  Dr. Lonsdale had researched high dose thiamine for decades, and he has used higher doses, 1 to 3 grams in some cases.   Like I explained above, it's at that 500 mg level or higher that passive diffusion happens and thiamine can get into cells.  Inside the cells, thiamine turns the mitochondria back on.  Mitochondria produce energy the cells use to function.  I had been taking a multivitamin containing thiamine HCl regularly and still had become deficient.  Malabsorption of celiac disease really affects vitamin absorption.  I bought a bottle of thiamine HCl.  I was skeptical, too. I thought it couldn't be that easy.  I took 500 mg all at once.  I had improvement within minutes.  I couldn't believe the sensation of energy spreading to all parts of my body.  My brain felt like it was lifted out of a sub-sub-basement by an elevator and lights were coming on, floor by floor, of a skyscraper.  It was mental improvement, mental clarity.  Thiamine is needed for nerves to transmit electrical impulses, so the more nerves transmitting electrical impulses, the more my brain started working better.  The better my brain started working, the better I felt physically.  My muscles had more energy.  I wanted to get up and do stuff.   P.S. Questions are welcome.  "there's no poverty like ignorance, no wealth like knowledge". Keep learning!
    • badastronaut
      Thanks! I think I'll start slow. See what happens. Should I notice the thiamine working almost straight away if I'm really deficient? What kinda of difference did you notice? More mental? Of also physical in the sense of more energy?    Sorry for all the questions! 
    • knitty kitty
      Absolutely no danger of overdosing on the stuff.  Thiamine is nontoxic, and safe.  I had gotten to 1000 mg of Thiamine HCl a day at one point.   Do continue taking the multivitamin with the other B vitamins.  You may want to add a magnesium supplement because magnesium and thiamine make enzymes together.  I like Magnesium l-Threonate (Neuro-Mag by life extension).  You may want to add a B Complex in addition to the multivitamin (take them at different times).  All the B vitamins are water soluble.   With Thiamine HCl, there's a "magic moment" about 500 mg, where sufficient thiamine can get into the cells by passive diffusion, and the difference is amazing.  In thiamine insufficiency, the thiamine transporters (special gates into the cell) shut down.  Thiamine cannot get into the cells until there's a higher concentration outside of the cell.  Once that happens, the  thiamine can get through and go to work inside the cells.   If you're brave, start with 300 mg at one meal and 200 mg at the next meal.  Increase as you feel comfortable.  You may want to stay at one amount for a few days before increasing again.  Just keep adding another 100 mg as long as you keep feeling improvement.  If you feel uncomfortable, skip the next dose.  Thiamine HCL is water soluble and excess is easily excreted.  Don't take thiamine close to bedtime because you may feel too energized to sleep.   Thiamine HCl may feel like riding in the back of a pick up truck on a gravel road.  Benfotiamine feels like you're in a chauffeur driven Rolls Royce.  TTFD feels like you're driving a Lamborghini.  You'll get there no matter what kind of thiamine is taking you there.  Just keep taking it.  The health improvements can be very subtle, but you'll notice in the long run.   I started with 500 mg of Thiamine HCl, to see what would happen and had amazing improvement within an hour.  I took 300 mg with each of two meals and 100 mg with snacks.  I eventually added in Benfotiamine (250 mg  a couple of times a day) and reduced the thiamine HCl.  Later I added in TTFD (50 mg) several times a day.  Just experiment and see what feels right for you. Everyone is different and has a different level of deficiency.   I kept having additional improvement with each type of thiamine.  I've taken thiamine for almost fifteen years now.  I still take all three kinds on maintenance doses.  You have to experiment and see which ones work best for you in which combination.   I'm right here if you need anything.   You'll be fine.
×
×
  • Create New...