Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Traveling With Celiac Tots


AMQmom

Recommended Posts

AMQmom Explorer

Greetings! We are traveling from Michigan to Colorado on Thursday. Both of my girls are celiac. My eldest is 7 years old and also has EE. She is very oral (still sucks thumb and licks hands - I was hoping that this would go away with her anxieties once gluten free, but only diminishing). Here is my question: we will be on an airplane and in rental cars, etc. Have any of your children gotten gluttened just by being in that type of environment? My 3 year old is not oral - I don't worry about her too much with fingers in her mouth, but she is just 3 years old. I was considering gloves for them or masks. Am I going overboard? This is my first trip with them as celiac. Any suggestions are appreciated!!! (P.S. I am not worried about their food - I will pack snacks and already located stores where we will be staying - just worried about contamination while traveling).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Don't go overboard with things like masks or gloves, you will raise them to be paranoid if you do that. But take along travel wipes and wipe down the surfaces in the car, and the armrests in the plane, things like that. But don't make a big deal out of it, either.

gfpaperdoll Rookie

IMO, the plane will be worse because most everything they serve on there is wheat. & I saw a lady get on the plane with a box of donuts in her hand!!!! I thought OMG if she sits next to me I am moving!! - so yes, take wipes & wash their hands & wipe off the area where you are sitting. Also, that is where you get the germs on a plane is from touching things that 30,000 other people have touched - in the plane & in the airport.

rental car should not be so bad - I mean really how many of them actually have had anyone ever sit in the back seat ! much less eating there - I bet not many.

shan Contributor

i fly regularly, 4 times a year, and we have never had a problem with gluten - neither with the plane nor with rental cars. I make sure to bring with PLENTY of food for the plane, coz when everyone else gets, she also wants, and i also take with, and don't rely on, snacks to keep in the car. Thats for when we are stuck in traffic and stuff - Your dd is gonna know that you are stressed about it, so you have to make sure that you are relaxed about it ;)

I also make sure to wash her hands after the play area in the airport, coz everyone gives their kids lunch there, so there is bread crumbs all over...

Just a little tip, bring all food with in containers or bags that you can leave on the plane - it'll be easier when you leave the plane to get off with less luggage and cranky kids :D

dandelionmom Enthusiast

I do a quick wipe down before DD sits down and we do a lot of handwashing. You're probably already doing something similar to this but thought I'd mention it because it has really helped my DD: we came up with a quick phrase to let her know that I'm worried about gluten exposure, we call it "gluten-hands" and that tells her that she shouldn't eat or put her hands in her mouth until we've had a chance to wash them, it is our way of telling her to be careful. It also helps my other child to remember that she needs to wash her hands when she comes home from school before touching anything of her sister's and other things of that nature. They know that when I say that phrase I mean business. :)

Kibbie Contributor
Greetings! We are traveling from Michigan to Colorado on Thursday. Both of my girls are celiac. My eldest is 7 years old and also has EE. She is very oral (still sucks thumb and licks hands - I was hoping that this would go away with her anxieties once gluten free, but only diminishing). Here is my question: we will be on an airplane and in rental cars, etc. Have any of your children gotten gluttened just by being in that type of environment? My 3 year old is not oral - I don't worry about her too much with fingers in her mouth, but she is just 3 years old. I was considering gloves for them or masks. Am I going overboard? This is my first trip with them as celiac. Any suggestions are appreciated!!! (P.S. I am not worried about their food - I will pack snacks and already located stores where we will be staying - just worried about contamination while traveling).

My daughter was diagnosed when she was 18 months old. Exactly 1 month to the day of diagnosis we were on a plane to Arizona headed for a family reunion road/camping trip. I feel your pain the first trip is always the hardest! My daughter is 3 now and has only been glutened 2 times 1 was her own doing and the other was a mess up at a restaurant.

Anyhow I try my best to let her be as normal as possible and gloves and masks are something that I would not consider at all. Personally I think its going overboard.

For rental cars: I check cup holders, and open all the little storage places, plus check the floor to see if it had been cleaned and vacuumed before I got in there. If not I request that they either clean and vac. it or give me a clean car. (This is something I would do with or without having a Celiac kid) I also clean off the areas most likely to be touched by my daughter and food. (again something I would do anyhow just because other people germs gross me out) We've never had a problem with a rental car.

On planes if you tell them your child has an allergy they will either clean off their seat for you or offer you wipes to clean it off yourself. We've never had a problem with flying even when the person next to us is eating glutenful pretzels.

Staying healthy the rest of the trip is really just a matter of washing hands... a lot

Enjoy your trip!

AMQmom Explorer

Many, many thanks to you all! I have calmed down after reading your responses. No masks, no gloves. I went into full protection mode instead of just mommy mode. Thank you. I will follow your tips and hope for the best. I really want them to live life to the fullest and travel is one of those elements that I don't want them to miss out on. Thank you for all of your tips and personal examples.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748

    Travis25
    Newest Member
    Travis25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.