Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Official


bakinghomesteader

Recommended Posts

bakinghomesteader Contributor

Well, my husband wanted a firm diagnosis to justify not eating gluten. He didn't want me to not eat it if I didn't have to. So he wanted me to get bloodwork done. I had to eat gluten for a little over a month and I was so sick. I had it drawn and stopped eating it again after getting really sick. (dizzy, diarrhea, nausea)

I went to the doc today and she said it was positive. So now, I can have a gluten free home. I'm glad I had it done, because now I know I have to be really strict about it. My vitamin levels are low and I'm not absorbing well. I lost 1.5 lbs in 2 weeks and she said if I don't gain some weight in 2 months, she will have me scoped to check for cancer. I'm 32 :o I pray it's just from the celiac.

I am looking forward to feeling better. I've just felt so horrible lately. Btw, after I started eating gluten for the test, my gallbladder acted up and so did my upper gastric area. It is settling down now.

This is one time I'm glad for a diagnosis.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Congratulations on your official diagnosis. Even though really, it wasn't a fabulous thing to do, to go back to eating gluten! Apparently, you have destroyed your wonderfully healed villi again. I don't think you have cancer, you have just made sure you don't absorb nutrients again, and hence the weight loss.

Make sure you are awfully strict on the gluten-free diet, eliminate dairy for now (as you can't digest it, since the tips of the villi make the enzyme lactase that makes that happen) and eat simple, plain foods until you heal.

Your husband was wrong in not believing your enterolab results, and making you eat gluten again just to prove what you already knew, that you need to be gluten-free.

fedora Enthusiast

I am so glad your test was positive. congradulatons on a diagnoses.

If it had not been positive, I can't help but wonder what your hubby would have done. Would he have not been careful with gluten around you or pressured you to eat gluten again.

I would have told my husband to F off. But that is me.

When you got your enterolab results, did you get the gene test done?

bakinghomesteader Contributor
I am so glad your test was positive. congradulatons on a diagnoses.

If it had not been positive, I can't help but wonder what your hubby would have done. Would he have not been careful with gluten around you or pressured you to eat gluten again.

I would have told my husband to F off. But that is me.

When you got your enterolab results, did you get the gene test done?

No, I did not get a gene test done. Just a ttg from them. Don't beat my husband up too much. He just wanted to be sure and for me not to have to burden myself if I didn't have too. He thought it was something else and not gluten. He thought maybe I had an ulcer or gallbladder probs. I had that tested too and they were negative. She did say that my gallbladder could be a little colicky right now.

The hard thing is were are broke. I have no money for superfine rice flour. :( Our beliefs are somewhat conservative Mennonite and I baked a lot. I miss that right now. :( I will keep praying and if God wants me to have it, He'll provide.

gfpaperdoll Rookie

well, maybe the reason God has not provided you with any rice flour is that you really do not need any rice flour right now. ;)

It is better if you do not eat any of those gluten-free grains for a bit - to give your insides a chance to heal up.

as a side note, phewy, who can stand rice flour? - I hate the stuff... Whenever you can eat some of the gluten-free stuff - say maybe by Thanksgiving, I use a combination of sorghum flour, coconut flour, almond flour (make your own), corn meal or corn flour (bob's red mill is not gluten-free) & if you can tolerate Tapioca flour, Tapioca with sorghum makes the best texture...

fedora Enthusiast

hope I didn't offend you. I was definately not suggesting that was what you should say to your husband. I am probably not anywhere near as religious or conservative as you, but have managed to stay married for 13 years(since 19 years old).

I am glad your tests were positive. Did the diet make you feel better? Were you still having problems? The results from me going gluten free are very obvious. You may not think this from my post, but I am actually a much nicer person to my husband now(he definately noticed!)There is just no doubt with me, my doctor confirmed his belief in that too based just on diet.

I am a homesteader too! I am also 32! And I have a 10 year old son!

I use to bake lots years ago, but I had twins(already had one before that) and baking got pushed aside. I continued to can food though, and now they are older I can alot. I will probably be baking more soon. Maybe you can find something else you love to cook that is cheaper.

Eric-C Enthusiast

I hate rice flour and all the flour alternatives.

We've found it much easier to eat if we don't always try to relive old food habits with new food ingredients.

The only exception is rice pasta which is pretty good.

Otherwise we just eliminated everything else that would have included flour/gluten instead of trying the, usually poor, substitutes.

I don't know if your BBQ but most of the BBQ recipe magazines out right now are almost all gluten free and some great stuff.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munkee41182 Explorer

I like to bake too, and we can't afford me to buy all the different flours. So I stick to Gluten Free Pantry bread mix, rice pasta, and on occasion some brownies or chocolate cake mix (usualy about one every 2-3 months). My fiance will look at me say "you had to go on this diet now" because we just bought a home, paying for our wedding and hoping to go on a honeymoon. I know he's joking...but still I give him the "look" and he stops.

I stick to the basics, meat and veggies and regular rice. And one thing that you can do it put a couple of bucks away every so often and when your "stash" build up, you can go and buy the gluten-free flours and then you can bake up a storm! I stash away some of my money here and there to buy something I want that is a special treat. Lately it's been gluten-free food or wedding items rather than a cute pair of shoes.

Hope that helps you and I'm glad you're feeling better! :D

bakinghomesteader Contributor

Thank you all for your posts!

Fedora, I am not offended :) I was able to go to an Amish community and a store there carries an all purpose everything included flour. No having to buy everything separate will save me some money. I am glad for this. Trying to not get glutened is hard. I get confused with some labels for stuff like bbq sauce. I have baked things like donuts and such and they turned out really good. :)

Also, the diet did make me feel better for 9 mos. I think it's kinda like if someone is taking anitdepressents and they start to feel better they stop taking them even tho that's what made them feel better. That's how it started with my husband. I started to have stomach pain and he thought maybe it wasn't gluten all along and to see for sure. It was. So I am waiting for my intestines to heal and I can feel better.

I like the idea of stashing extra money for goodies. I will do that.

Btw, my mom asked if I wanted to go for pizza tonight. :blink: Uh, hello. I really thought she was more concerned than that. lol.

munkee41182 Explorer

Moms....gotta love them :D

I still remember the time my mom made lasagna for a family dinner (sister, husband and kids came by) and Didn't make me a gluten-free meal. lol. Lasagna, foccacia bread, salad with crutons in it already. Thanks mom <_<

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748

    Travis25
    Newest Member
    Travis25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.